Olivia Hughes, Katherine H Shelton, Helen Penny, Andrew R Thompson
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引用次数: 0
摘要
背景:患皮肤病儿童的父母可能会因额外的护理责任而感到压力。目的:调查(1)向皮肤病患儿的父母提供 "活在当下 "正念课程是否能减轻压力并提高父母/患儿的生活质量(QoL);(2)确定干预措施的可接受性:10名湿疹、外胚层发育不良、鱼鳞病和脱发患儿的家长参加了正念干预。采用混合方法,进行了单组实验案例设计(SCED),并对退出访谈进行了专题分析。家长们完成了有关养育压力的特异性测量、有关QoL、压力和正念的标准化测量,并参加了退出访谈。儿童也完成了 QoL 测量:特异性测量的 Tau-U 分析表明,有三位家长在积极目标方面有了一定程度的改善,有五位家长在消极目标方面有了一定程度的改善。对可靠变化的评估表明:1 名家长在用心养育方面有所改善,3 名家长在养育压力方面有所改善,7 名家长在焦虑方面有所改善,3 名家长在抑郁方面有所改善,6 名家长在 QoL 方面有所改善,4 名儿童在 QoL 方面有所改善。不过,有两名家长的焦虑情绪有所加重。主题分析表明,正念后情绪发生了积极变化,但也凸显出一些挑战,包括持续在家练习:研究结果表明,这种特定形式的正念干预对患有皮肤病的儿童的父母可能有效;但是,还需要进一步的深入研究。
'Living in the Present' mindfulness for parents of children with skin conditions: a single group case series.
Background: Parents of children with skin conditions can experience stress from the additional responsibilities of care. However, there is a lack of psychological interventions for families affected by a dermatological diagnosis.
Aims: To investigate (1) whether delivering the 'Living in the Present' mindfulness curriculum to parents of children with skin conditions reduced stress and increased both parental/child quality of life (QoL), and (2) determine intervention acceptability.
Method: Ten parents of children with eczema, ectodermal dysplasia, ichthyosis, and alopecia took part in a mindfulness-based intervention. Using mixed methods, a single-group experimental case design (SCED) was conducted and supplemented by thematic analysis of exit interviews. Parents completed idiographic measures of parenting stress, standardised measures of QoL, stress, mindfulness, and took part in exit interviews. Children also completed QoL measures.
Results: Tau-U analysis of idiographic measures revealed three parents showed some significant improvements in positive targets, and five parents showed some significant improvements in negative targets. Assessment of reliable change demonstrated that: one parent showed improvement in mindful parenting, three parents showed improvement in parenting stress, seven parents showed improvement in anxiety, three parents showed improvements in depression, six parents showed improvement in QoL, and four children showed improvement in QoL. However, two parents showed increased anxiety. Thematic analysis revealed positive changes to mood following mindfulness, although challenges were highlighted, including sustaining home practice.
Conclusion: Findings suggest this specific form of mindfulness intervention could be effective for parents of children with skin conditions; however, further robust studies are needed.
期刊介绍:
An international multidisciplinary journal aimed primarily at members of the helping and teaching professions. Behavioural and Cognitive Psychotherapy features original research papers, covering both experimental and clinical work, that contribute to the theory, practice and evolution of cognitive and behaviour therapy. The journal aims to reflect and influence the continuing changes in the concepts, methodology, and techniques of behavioural and cognitive psychotherapy. A particular feature of the journal is its broad ranging scope - both in terms of topics and types of study covered. Behavioural and Cognitive Psychotherapy encompasses most areas of human behaviour and experience, and represents many different research methods, from randomized controlled trials to detailed case studies.