将 15 岁以下儿童的声音纳入儿科全球健康研究。

IF 3.6 Q2 INFECTIOUS DISEASES Current Tropical Medicine Reports Pub Date : 2024-09-01 Epub Date: 2024-06-19 DOI:10.1007/s40475-024-00323-1
Dillon T Wademan, Jean Hunleth, Musonda Simwinga, Tahiya Mahbub, Sarah Bernays, Graeme Hoddinott, Amrita Daftary
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引用次数: 0

摘要

审查目的:尽管有证据表明将儿童的声音纳入全球健康研究是有益的,但他们的代表性仍然不足。如何将儿童的声音纳入全球健康研究似乎仍是一个障碍。在本手稿中,我们提出了一个认识论框架,倡导儿童作为自身经验的专家和知识的传承者。然后,我们提供了四个案例研究,以说明在儿科健康研究的设计和实施过程中为建立公平所做的不懈努力:要确保儿童的公平参与,就必须承认儿童是其健康和福祉的积极参与者,让他们在与研究人员的所有互动中发挥自己的能动性,同时承认这些互动的对话性质。摘要:我们介绍了四个案例研究,描述了在印度、菲律宾、南非、美国和赞比亚等全球环境中,如何让儿童参与与慢性病和急性病(结核病、艾滋病、宫颈癌和其他形式的癌症)的预防、治疗和/或护理有关的研究和研究开发。这些范例详细介绍了扎根于参与式行动研究框架的各种艺术方法的新颖应用。它们强调了在整个研究过程中投入资金、培训、时间和资源,让儿童尽早并持续参与的必要性。最后,我们提出了让儿童公平参与全球健康研究的原则。
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Including the voice of children <15-years-old in paediatric global health research.

Purpose of review: Despite evidence of the benefits of including children's voices in global health research, they continue to be underrepresented. Implementation of how to include children's voices appears to remain an obstacle to their inclusion in global health research. In this manuscript, we present an epistemological frame that advocates children as experts of their own experiences and knowledge-bearers. Then we provide four case studies, to illustrate ongoing efforts to build equity in the design and execution of paediatric health research.

Recent findings: Ensuring children's equitable inclusion requires recognizing them as active participants in their health and wellbeing, and empowering them to employ their agency in all interactions with researchers, while recognizing the dialogical nature of those interactions. Successfully involving children in global health research can lead to important psychosocial and clinical insights, that could be leveraged to inform future treatment and care practices.

Summary: We present four case studies describing the inclusion of children in research and research development related to prevention, treatment and/or care of chronic and acute diseases (tuberculosis, HIV, cervical and other forms of cancer) in a number of global settings including India, Philippines, South Africa, United States, Zambia. The exemplars detail novel applications of a diversity of arts-based methods that are rooted in frameworks for participatory action research. They highlight the need to invest funds, training, time and resources for early and sustained engagement with children throughout the research process. We conclude by offering principles for equitably engaging children in global health research.

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来源期刊
Current Tropical Medicine Reports
Current Tropical Medicine Reports Medicine-Infectious Diseases
CiteScore
9.30
自引率
1.90%
发文量
23
期刊介绍: Current Tropical Medicine Reports provides expert views on recent advances in the field of tropical medicine in a clear and readable form. This journal offers reviews by domestic and international contributors that highlight the most important, recent papers and findings related to this specific field. We accomplish this by appointing renowned leaders in major tropical medicine subject areas to select topics addressing virology, bacteriology, parasitology, entomology, immunology, cell and molecular biology, epidemiology, ecology, behavioral science and clinical medicine for review by experts who assess the latest developments and highlight significant papers published over the last few years on their topics. These review articles also stress recently published papers of importance in the references, which are accompanied by annotations explaining their importance. In addition to these Section Editors, our international Editorial Board ensures our journal upholds its standards.
期刊最新文献
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