探索遗传咨询师与土著患者群体打交道的经验。

IF 3.2 3区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Journal of Racial and Ethnic Health Disparities Pub Date : 2024-10-09 DOI:10.1007/s40615-024-02194-8
Kimberly McDowell, Leah Wetherill, Bethany Pollock, Colin Halverson, Jennifer Ivanovich
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引用次数: 0

摘要

本研究调查了美国和加拿大遗传咨询师在应对土著患者潜在的独特因素和考虑方面的准备情况。考虑到土著居民在医疗保健方面面临的差异,尤其是在专科护理方面,本研究旨在评估遗传咨询师在应对土著患者的独特需求和文化因素方面的准备情况。研究采用了在线调查的方式,并选择了一部分参与者进行访谈。结果显示,与非原住民患者相比,遗传咨询师对原住民患者的胜任程度较低,尤其是在遗传咨询的特定方面,如应对文化问题或确定资源等。在研究生培训期间,经验年限的增加和接触原住民人群的机会增多等因素与自评能力较高有关。尽管根据自我报告,患者群体中平均有 7% 是原住民,但遗传咨询师在研究生课程和专业培训中缺乏与原住民接触的机会。这些发现强调了加强遗传咨询教育和接触原住民培训机会(如志愿活动或原住民客座演讲者)的重要性,以提高原住民社区的文化胜任能力并解决医疗差距问题。
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Exploring Genetic Counselors' Experiences with Indigenous Patient Populations.

This study investigates the preparedness of genetic counselors in addressing the potentially unique elements and considerations of Indigenous patients in the United States and Canada. Considering the healthcare disparities Indigenous populations face, particularly in specialty care, this study aims to assess the preparedness of genetic counselors in addressing the unique needs and cultural considerations of Indigenous patients. An online survey was utilized, and a subset of participants was selected to be interviewed. Results reveal genetic counselors felt less competent with Indigenous patients compared to non-Indigenous patients, especially in specific aspects of genetic counseling such as responding to cultural issues or identifying resources. Factors such as increased years of experience and more exposure to Indigenous populations during graduate training correlated with higher self-rated competency. Despite a patient population that is on average 7% Indigenous by self-report, genetic counselors lacked exposure to Indigenous encounters in graduate programs and professional training. These findings underscore the importance of enhancing genetic counseling education and exposure to Indigenous training opportunities such as voluntary events or Indigenous guest speakers to improve cultural competency and address healthcare disparities for Indigenous communities.

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来源期刊
Journal of Racial and Ethnic Health Disparities
Journal of Racial and Ethnic Health Disparities PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH-
CiteScore
7.30
自引率
5.10%
发文量
263
期刊介绍: Journal of Racial and Ethnic Health Disparities reports on the scholarly progress of work to understand, address, and ultimately eliminate health disparities based on race and ethnicity. Efforts to explore underlying causes of health disparities and to describe interventions that have been undertaken to address racial and ethnic health disparities are featured. Promising studies that are ongoing or studies that have longer term data are welcome, as are studies that serve as lessons for best practices in eliminating health disparities. Original research, systematic reviews, and commentaries presenting the state-of-the-art thinking on problems centered on health disparities will be considered for publication. We particularly encourage review articles that generate innovative and testable ideas, and constructive discussions and/or critiques of health disparities.Because the Journal of Racial and Ethnic Health Disparities receives a large number of submissions, about 30% of submissions to the Journal are sent out for full peer review.
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