我不想二选一":了解家长对直接支持或家长辅导年幼自闭症儿童的偏好。

IF 5.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Autism Pub Date : 2024-10-12 DOI:10.1177/13623613241287300
Phoebe Jordan, Carla Wallace-Watkin, Jessica Tupou, Sarah Pillar, Hannah Waddington
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引用次数: 0

摘要

内容提要:专业人员通常通过直接与自闭症儿童一起工作(直接支持)或指导其父母来支持自闭症儿童。我们知道很多家长对家长辅导的看法,但对他们对直接支持的看法却不甚了解。我们也不知道家长更喜欢家长辅导还是直接支持。目前的研究涉及 22 位家长,他们每人每周接受 2 小时的自闭症儿童直接支持,以及最多每周 1 小时的家长辅导,为期 6 个月。在 6 个月结束时,所有这些家长都在一份调查中表示,他们更喜欢家长辅导还是直接支持。其中 11 位参与调查的家长还选择参加访谈,以进一步了解他们的偏好。我们的调查结果表明,家长们普遍喜欢这两种支持方式,并认为它们能很好地配合使用;但是,与家长辅导相比,他们更喜欢直接支持。虽然家长们认为这两种方法都有益处,但每种方法都有其优势和挑战。这些研究结果强调了家长选择提供支持的重要性。也有可能对这两种方法进行调整,以应对一些已发现的挑战,并改善整个家庭的体验。
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'I wouldn't want one or the other': Understanding parents' preferences for direct support or parent coaching for young autistic children.

Lay abstract: Professionals often support autistic children by working with them directly (direct support) or by coaching their parents. We know a lot about what parents think about parent coaching, but we do not know as much about what they think about direct support. We also do not know whether parents prefer parent coaching or direct support. The current study involved 22 parents who each received 2 h a week of direct support for their autistic child and up to 1 h a week of parent coaching for 6 months. At the end of 6 months, all these parents indicated in a survey whether they preferred parent coaching or direct support. Eleven of these participating parents also chose to take part in an interview to understand more about these preferences. Our findings suggest that parents generally liked both supports and believed they worked well together; however, they preferred direct support over parent coaching. While parents think that both approaches are beneficial, there are strengths and challenges of each. These findings emphasise the importance of parent choice in the delivery of support. It may also be possible to adapt both approaches to address some of the identified challenges and improve the whole family's experience.

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来源期刊
Autism
Autism PSYCHOLOGY, DEVELOPMENTAL-
CiteScore
9.80
自引率
11.50%
发文量
160
期刊介绍: Autism is a major, peer-reviewed, international journal, published 8 times a year, publishing research of direct and practical relevance to help improve the quality of life for individuals with autism or autism-related disorders. It is interdisciplinary in nature, focusing on research in many areas, including: intervention; diagnosis; training; education; translational issues related to neuroscience, medical and genetic issues of practical import; psychological processes; evaluation of particular therapies; quality of life; family needs; and epidemiological research. Autism provides a major international forum for peer-reviewed research of direct and practical relevance to improving the quality of life for individuals with autism or autism-related disorders. The journal''s success and popularity reflect the recent worldwide growth in the research and understanding of autistic spectrum disorders, and the consequent impact on the provision of treatment and care. Autism is interdisciplinary in nature, focusing on evaluative research in all areas, including: intervention, diagnosis, training, education, neuroscience, psychological processes, evaluation of particular therapies, quality of life issues, family issues and family services, medical and genetic issues, epidemiological research.
期刊最新文献
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