Jessica E Young, Antonia C Lyons, Kevin Dew, Richard Egan
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引用次数: 0
摘要
研究探讨了人们寻求辅助死亡(AD)的原因、家属的丧亲之痛以及辅助死亡提供者的经历,但很少有研究调查辅助死亡的时间和日期决策。本文阐释了在新西兰,癌症患者、家属和辅助死亡提供者是如何决定辅助死亡的日期和时间并体验其生活的。我们对 23 人进行了纵向访谈。通过主题分析,我们确定了四个决策阶段:决定如何以及何时在沙地上划出一条线、最后的倒计时、与死亡约会以及合适的时间。选择一个日期是一个体现性的、关系性的、情境性的决策,需要在剩余时间、家属意愿、服务提供者需求和 AD 法规之间取得平衡。时间是急性衰竭决策中一个无声的因素;选择日期将时间重新调整为时钟、事件和体现时间,并为死亡创造合适的时间。我们将讨论其中的含义,并建议助老服务提供者和政策制定者如何为服务使用者和提供者提供支持。
Is there a right time to die? How patients, families and assisted dying providers decide on and anticipate a date with death.
Research has explored why people seek assisted dying (AD), families' bereavement, and AD providers' experiences, yet few studies have investigated decision-making of the time and date for AD. This article elucidates how cancer patients, families and AD providers decide on and experience living with a date and time for AD in New Zealand. We longitudinally interviewed 23 people. Using thematic analysis, we identified four decision-making phases: deciding how and when to draw a line in the sand, the final countdown, a date with death and the right time. Picking a date was an embodied, relational, situational decision that balanced time left, families' wishes, providers' needs, and AD regulations. Time is a silent factor in AD decision-making; choosing a date reorients time to clock, event and embodied time, and contrives the right time for death. We discuss the implications and recommend how AD providers and policymakers can support service users and providers.
期刊介绍:
Now published ten times each year, this acclaimed journal provides refereed papers on significant research, scholarship, and practical approaches in the fast growing areas of bereavement and loss, grief therapy, death attitudes, suicide, and death education. It provides an international interdisciplinary forum in which a variety of professionals share results of research and practice, with the aim of better understanding the human encounter with death and assisting those who work with the dying and their families.