"我将面临无法工作的临界点":自身免疫性疾病患者职业生涯中的沟通抗逆力(Precarity Amidst Communicative Resilience in the Careers of Individuals with Autoimmune Diseases)。

IF 3 3区 医学 Q1 COMMUNICATION Health Communication Pub Date : 2024-10-28 DOI:10.1080/10410236.2024.2421609
Willow Craine, Bianca Siegenthaler, Jared V Worwood, Patrice M Buzzanell
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引用次数: 0

摘要

在整个职业生涯中,自身免疫性疾病患者必须在健康和幸福不断受到干扰的情况下,应对工作场所的不稳定因素。在复原力沟通理论(CTR)的指导下,我们对 25 名自身免疫性疾病患者进行了半结构式叙事访谈,以研究他们与职业相关的干扰和沟通复原力。数据分析揭示了两大主题:(1)残疾是一种话语-物质干扰;(2)职业生涯引发的疾病并发症。从理论上讲,我们的研究结果通过这个群体的职业生涯和健康历程中相互交织的每时每刻的干扰,扩展了预期性和适应性-转化性 CTR 的紧张关系。在实践中,我们寻求重新认识工作场所的便利性和残疾问题,以更好地满足被污名化的慢性病患者(如自身免疫性疾病患者)的健康和工作需求。
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"There's Going to be a Tipping Point Where I'm Not Gonna Be Able to Work": Communicative Resilience Amidst Precarity in the Careers of Individuals with Autoimmune Diseases.

Throughout their career, people living with autoimmune diseases must navigate workplace precarity amidst ongoing disruptions to health and wellbeing. Informed by the communication theory of resilience (CTR), we conduct semi-structured, narrative interviews with 25 individuals living with autoimmune diseases to examine their career-related disruptions and communicative resilience enactments. Data analysis reveals two major themes: (1) disability as a discursive-material disruption and (2) career-triggering illness complications. Theoretically, our findings extend anticipatory and adaptive-transformative CTR tensions through the moment-to-moment disruptions that intersect this community's careers and health journeys. Practically, we seek to re-imagine workplace accommodations and disability to better meet both the health and work needs of stigmatized and chronically ill individuals, such as individuals with autoimmune diseases.

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来源期刊
CiteScore
8.20
自引率
10.30%
发文量
184
期刊介绍: As an outlet for scholarly intercourse between medical and social sciences, this noteworthy journal seeks to improve practical communication between caregivers and patients and between institutions and the public. Outstanding editorial board members and contributors from both medical and social science arenas collaborate to meet the challenges inherent in this goal. Although most inclusions are data-based, the journal also publishes pedagogical, methodological, theoretical, and applied articles using both quantitative or qualitative methods.
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