针对韩国家庭的 RUBI 干预(K-RUBI)的文化适应性:混合方法研究。

IF 3.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Journal of Autism and Developmental Disorders Pub Date : 2024-10-26 DOI:10.1007/s10803-024-06599-6
James D Lee, Veronica Y Kang, Gospel Kim, Sehee Jung, Sean Joo, Haemi Kim, Jinsun Son, Karen Bearss
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引用次数: 0

摘要

对于包括照护者在内的许多家庭成员来说,自闭症幼儿的挑战性行为仍然是养育子女的一大挑战。来自文化或语言背景不足的照护者可能会遇到更多与挑战性行为相关的困难,因为他们难以获得具有文化持续性和响应性的干预措施。以证据为基础的行为家长培训计划(如 RUBI)能够利用行为分析原理,在自然环境中非常有效地提高照顾者预防和应对这些行为的能力。因此,本研究的目的是考察文化适应性 RUBI 计划对服务不足家庭的有效性、可接受性和可行性。我们对 31 个韩国自闭症或疑似自闭症幼儿家庭进行了焦点小组访谈,并采用试验性随机对照试验和候补对照组的方法,开展了一项融合性混合方法研究。韩国的 RUBI 使用文化适应检查表进行了严格的文化适应调整,包括使用多个社区咨询委员会为文化适应提供信息。定量和定性研究结果显示,家长对行为原则的信心和知识有了显著提高,挑战行为的严重程度也有所下降,这表明 RUBI 在代表性不足、资源匮乏的社区中具有临床实用性。针对不同人群的文化适应性干预可以被视为一种新构建的干预。本研究深入探讨了自闭症干预措施的系统文化适应过程,以及 RUBI 的有效性、可行性和可接受性。
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Cultural Adaptation of RUBI Intervention with Korean Families (K-RUBI): A Mixed Method Study.

Challenging behaviors of young autistic children remain a major parenting challenge for many of their family members, including caregivers. Caregivers from underrepresented cultural or linguistic backgrounds may experience exacerbated difficulties related to challenging behaviors due to limited access to culturally sustaining and responsive interventions. Evidence-based behavior parent training programs, such as RUBI, are highly effective in increasing caregivers' capacity in preventing and responding to these behaviors in naturalistic settings using behavior analytic principles. Therefore, the purpose of this study was to examine the effectiveness, acceptability, and feasibility of the culturally adapted RUBI program with underserved families. We conduct a convergent mixed-methods study using a pilot randomized controlled trial with a waitlist control group and focus group interviews with 31 Korean families of young children with or suspected of autism. The Korean RUBI underwent rigorous cultural adaptation using the Cultural Adaptation Checklist, including the use of multiple community advisory boards to inform cultural adaptation. Both quantitative and qualitative findings revealed significant improvements in parents' confidence and knowledge in behavioral principles and decrease in severity of challenging behaviors, which suggest clinical utility of RUBI in an underrepresented, low-resourced community. A culturally adapted intervention for a different population can be perceived as a newly constructed intervention. This study provides insight on the systematic process of cultural adaptation of an established autism intervention and effectiveness, feasibility, and acceptability of RUBI.

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来源期刊
CiteScore
8.00
自引率
10.30%
发文量
433
期刊介绍: The Journal of Autism and Developmental Disorders seeks to advance theoretical and applied research as well as examine and evaluate clinical diagnoses and treatments for autism and related disabilities. JADD encourages research submissions on the causes of ASDs and related disorders, including genetic, immunological, and environmental factors; diagnosis and assessment tools (e.g., for early detection as well as behavioral and communications characteristics); and prevention and treatment options. Sample topics include: Social responsiveness in young children with autism Advances in diagnosing and reporting autism Omega-3 fatty acids to treat autism symptoms Parental and child adherence to behavioral and medical treatments for autism Increasing independent task completion by students with autism spectrum disorder Does laughter differ in children with autism? Predicting ASD diagnosis and social impairment in younger siblings of children with autism The effects of psychotropic and nonpsychotropic medication with adolescents and adults with ASD Increasing independence for individuals with ASDs Group interventions to promote social skills in school-aged children with ASDs Standard diagnostic measures for ASDs Substance abuse in adults with autism Differentiating between ADHD and autism symptoms Social competence and social skills training and interventions for children with ASDs Therapeutic horseback riding and social functioning in children with autism Authors and readers of the Journal of Autism and Developmental Disorders include sch olars, researchers, professionals, policy makers, and graduate students from a broad range of cross-disciplines, including developmental, clinical child, and school psychology; pediatrics; psychiatry; education; social work and counseling; speech, communication, and physical therapy; medicine and neuroscience; and public health.
期刊最新文献
Correction: The Knowledge of Autism Questionnaire-UK: Development and Initial Psychometric Evaluation. Correction: Analyzing Community-Based Support Requests Made by Black Families Raising Autistic Children. Brief Report: Differential Persistence of Primary Reflexes for Children with Autism Spectrum Disorder: A Systematic Replication. Increasing Vocabulary and Listening Comprehension During Adapted Shared Reading: An Intervention for Preschoolers with Autism Spectrum Disorder. Developmental Play Skills as Outcomes of Early Intervention.
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