呼吸机依赖儿童的学校适应经验:母亲视角的现象学研究。

Jin-Fen Chen , Mei-Yin Lee , Jainn-Jim Lin , Bao-Huan Yang
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引用次数: 0

摘要

目的:本研究旨在从母亲的角度描述呼吸机依赖儿童(VDC)适应学校生活的经历:本研究采用描述性现象学方法。从 2021 年 7 月至 2022 年 9 月,通过目的性抽样招募了 10 位呼吸机依赖儿童的母亲,并对她们进行了深入的个别访谈。数据采用科莱兹现象学方法进行分析。本研究遵循了定性研究的 COREQ 准则:出现了四个主题:(1) 母亲角色的转变和负担;(2) 积极调整和资源评估;(3) 制定满足健康和学习需求的策略;(4) 对无障碍学校环境的期望:结论:母亲们广泛评估并不断调整应对策略,以确保她们的孩子获得满足其个人需要的资源,促进同伴交往,帮助他们适应学校生活。孩子们的改善和进步超出了母亲们的预期,也证明了学校教育的益处。未来的教育机构应注重为有特殊需要的儿童建立无障碍的学校环境:这些研究结果有助于医护人员评估不同教育水平的 VDC 的需求,并制定符合其医疗保健和教育需求的护理计划。本研究还为修订针对残疾儿童的个性化教育计划的政策和法规提供了参考,并为实现无障碍学校环境以帮助他们适应学校生活提供了指导。
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School adjustment experiences of ventilator-dependent children: A phenomenological study of mothers' perspectives

Purpose

This study aimed to describe the experiences of ventilator-dependent children (VDC) in adjusting to school life from the perspectives of their mothers.

Design and method

This study employed a descriptive phenomenological approach. From July 2021 to September 2022, ten mothers of VDC were recruited via purposive sampling and underwent in-depth individual interviews. Data were analyzed using Colaizzi's phenomenological method. This study adheres to the COREQ guidelines for qualitative study.

Findings

Four themes emerged: (1) the transition and burden of the mother's role; (2) positive adjustment and assessment of resources; (3) develop strategies to meet health and learning needs; (4) expectations for accessible school environments.

Conclusions

The mothers extensively assessed and adjusted their coping strategies on a rolling basis to ensure that their children received the resources that met their individual needs, promoted peer interactions, and helped adjustment to school life. The children's improvement and progress surpassed their mothers' expectations and demonstrated the benefits of a school education. Future educational settings should focus on building accessible school environments for special needs children.

Practice implications

These findings allow healthcare professionals to assess the needs of VDC at different educational levels and create care plans that meet their healthcare and educational needs. This study also provides a reference for amending policies and regulations on individualized educational programs for VDC and developing guidelines for realizing accessible school environments to help them adjust to school life.
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来源期刊
CiteScore
3.70
自引率
8.30%
发文量
291
审稿时长
65 days
期刊介绍: Official Journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society (PENS) The Journal of Pediatric Nursing: Nursing Care of Children and Families (JPN) is interested in publishing evidence-based practice, quality improvement, theory, and research papers on a variety of topics from US and international authors. JPN is the official journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society. Cecily L. Betz, PhD, RN, FAAN is the Founder and Editor in Chief. Journal content covers the life span from birth to adolescence. Submissions should be pertinent to the nursing care needs of healthy and ill infants, children, and adolescents, addressing their biopsychosocial needs. JPN also features the following regular columns for which authors may submit brief papers: Hot Topics and Technology.
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