帮助儿童应对母亲的乳腺癌诊断:"倾诉箱"--一项试点研究

Joyce M.J. de Vos-Houben , Femke Bruls , Christel Heiyerjans , Rianne Roijen , Trijntje Völlink , Esther C. Bakker
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引用次数: 0

摘要

目标与儿童讨论癌症是一项挑战。有证据表明,在父母被诊断出患有癌症时,透明的沟通对于帮助儿童建立应对机制非常重要。我们开发了 "倾诉箱 "干预措施,以帮助母亲与子女讨论癌症问题。本研究旨在探讨护士和母亲对 "倾诉箱 "的看法。方法对六名肿瘤科护士和五名确诊为乳腺癌的母亲进行了半结构式访谈,以评估她们对 "倾诉箱 "的经验和看法。护士们认为 "倾诉箱 "是与儿童开始讨论癌症问题的宝贵资源,但缺乏时间和知识是阻碍她们分发 "倾诉箱 "的因素。目前的 "倾诉箱 "设计不能满足母亲们的需求,而且分发的时机也不理想。我们建议对护士进行有关使用'倾诉箱'的教育,并根据儿童的年龄和母亲的治疗阶段定制其内容。倾诉箱 "是在医护人员和患者的共同努力下开发出来的。
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Helping children cope with a mother's breast cancer diagnosis: ‘The telling box’ – A pilot study

Objective

Discussing cancer with children presents challenges. Evidence underscores the importance of transparent communication in aiding children's coping mechanisms amidst a parent's diagnosis. ‘The telling box’ intervention was developed to assist mothers in discussing cancer with their children. This study aimed to explore nurses' and mothers' perspectives on the ‘telling box’.

Methods

Semi-structured interviews were conducted with six oncology nurses and five mothers diagnosed with breast cancer to assess their experiences and opinions regarding ‘the telling box’.

Results and conclusion

Both nurses and mothers emphasize the significance of open communication with children. Nurses identified ‘the telling box’ as a valuable resource for starting discussions about cancer with children, but lack of time and knowledge were factors preventing them from distributing the boxes. The current design of the box did not meet the mothers' needs, and the timing of its distribution was suboptimal. We recommend education of nurses on the use of ‘the telling box’ and customizing its content based on the child's age and treatment stage of the mother.

Innovation

This study offers important insights from both patients and healthcare professionals. ‘The telling box’ was developed through collaborative efforts involving healthcare professionals and patients.
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来源期刊
PEC innovation
PEC innovation Medicine and Dentistry (General)
CiteScore
0.80
自引率
0.00%
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0
审稿时长
147 days
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