为语言能力不同的少数民族自闭症青少年和成人提供服务。

IF 1 4区 医学 Q3 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Seminars in Speech and Language Pub Date : 2024-11-01 Epub Date: 2024-11-14 DOI:10.1055/s-0044-1793913
Teresa Girolamo, Alicia Escobedo, Samantha Ghali, Kyle Greene-Pendelton, Iván Campos, Poornima Ram-Kiran
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引用次数: 0

摘要

在种族和族裔上属于少数群体(minoritized)的自闭症患者在向成年过渡的过程中,在获得服务方面面临着交叉性差异。由于系统性地将他们排除在研究范围之外,并且没有适当的方法来描述服务的特点,我们对差异的理解受到了限制。为了弥补这些差距并进行有效宣传,本研究(1)调查了少数自闭症青少年和成人所接受的服务、未满足的服务需求以及存在的障碍;(2)确定了语言、NVIQ 和自闭症特征在作为二元变量或连续变量时是否能预测服务。学术和社区合作伙伴根据当地情况对基于社区的参与式研究(CBPR)进行了调整。参与者(N = 73,年龄在 13-30 岁之间)完成了一项行为评估方案。参与者和照顾者提供了有关所接受的服务、未满足的服务需求以及服务障碍的信息。数据采用描述性和回归法进行分析。参与者接受了多种服务,但也存在多种未满足的服务需求和障碍。服务效果因方法而异。语言障碍(而非语言分数)可预测接受更多服务的情况。自闭症特质和自闭症特质得分越高,预示着未满足的服务需求越多。虽然服务数量和未满足的服务需求与之前的研究相似,但个别服务变量和效果的差异支持对异质性的关注。研究结果支持 CBPR 和自闭症研究的交叉方法。
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Services in Minoritized Autistic Adolescents and Adults Varying in Language Skills.

Racially and ethnically minoritized (minoritized) autistic individuals face intersectional disparities in service access in the transition to adulthood. Our understanding of disparities is limited by systematic exclusion from research and inadequate approaches to characterizing services. To address these gaps and effect advocacy, this study (1) examined services received, unmet service needs, and barriers in minoritized autistic adolescents and adults and (2) determined if language, NVIQ, and autism traits predict services when deployed as binary or continuous variables. Academic and community partners tailored community-based participatory research (CBPR) to a local context. Participants (N = 73, ages 13-30) completed a behavioral assessment protocol. Participants and caregivers provided information on services received, unmet service needs, and barriers to services. Data were analyzed using descriptive and regression. Participants received multiple services yet had multiple unmet service needs and barriers. Effects of services differed by approach. Language impairment, but not language scores, predicted receiving more services. High levels of autism traits and autism trait scores predicted more unmet service needs. While the number of services and unmet service needs was similar to prior work, differences in individual service variables and effects support attention to heterogeneity. Findings support intersectional approaches to CBPR and autism research.

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来源期刊
Seminars in Speech and Language
Seminars in Speech and Language AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY-REHABILITATION
CiteScore
2.40
自引率
0.00%
发文量
37
期刊介绍: Seminars in Speech and Language is a topic driven review journal that covers the entire spectrum of speech language pathology. In each issue, a leading specialist covers diagnostic procedures, screening and assessment techniques, treatment protocols, as well as short and long-term management practices in areas such as apraxia, communication, stuttering, autism, dysphagia, attention, phonological intervention, memory as well as other disorders.
期刊最新文献
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