对与文化相关的社会处方在支持居住在英国的巴基斯坦照护者中的作用的定性探索。

IF 3 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Health Expectations Pub Date : 2024-11-10 DOI:10.1111/hex.70099
Sarah McMullen, Shoba Poduval, Megan Armstrong, Nathan Davies, Chris Dayson, Kalpa Kharicha, Pushpa Nair, Manoj Mistry, Madiha Sajid, Kate Walters, Abi Woodward
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引用次数: 0

摘要

背景:英国约有 570 万人在提供非正式护理。所有种族群体的照护者都可能在身心健康方面受到负面影响,但一些少数民族群体面临的挑战更大。与英国白人照护者相比,巴基斯坦照护者的社会隔离程度更高,但人们对巴基斯坦照护者的需求以及支持服务如何满足这些需求的了解却不多。社会处方可以帮助人们以非医疗的方式更好地控制自己的医疗保健。目的:探讨与文化相关且经过调整的社会处方在帮助巴基斯坦照护者方面的潜在作用,并确定文化和宗教对照护者健康行为的影响和障碍:对居住在英国伦敦和谢菲尔德的巴基斯坦家庭照护者(27 人)和社会处方相关人员(10 人)进行了一对一的半结构式访谈。参与者通过志愿和社区组织 (VCSO)、社交媒体、宗教组织和口碑进行招募。访谈数据由 NVivo 使用反思性主题分析方法进行分析:形成了两个主题:(1) 个人和社区层面的影响:(1) 个人和社区层面的影响:在巴基斯坦社区内引导和获得照护者支持,包括照护者的身份和获得支持服务的文化障碍,以及促进支持巴基斯坦照护者健康和福祉的文化适应,(2) 社会和结构层面的挑战:为巴基斯坦照护者获取和提供社会处方,包括提供与文化相关的照护者支持所面临的资金挑战、初级保健与社会处方的整合,以及提高巴基斯坦照护者在社会处方中的文化意识和能力:结论:在巴基斯坦社区中,围绕照护者身份、家庭动态、污名化以及对社会处方缺乏了解等问题存在复杂性。有必要提供更多文化上胜任的支持、文化上相关的教育、提高认识以及初级保健和志愿服务组织之间的合作,以便通过社会处方更好地支持巴基斯坦照护者,承认并解决这些复杂问题:该研究包括一个由两名南亚家庭照护者组成的患者咨询小组,他们对研究的各个阶段都做出了贡献。他们为研究文件(主题指南和招募材料)和招募策略提供反馈意见,为研究文件的翻译和访谈数据的解释提供支持,并为我们的传播活动提供帮助。
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A Qualitative Exploration of the Role of Culturally Relevant Social Prescribing in Supporting Pakistani Carers Living in the UK

Background

Approximately 5.7 million people in the UK are providing informal care. Carers across all ethnic groups can experience negative impacts on their physical and mental health but some minority ethnic groups face greater challenges. Higher levels of social isolation exist among Pakistani carers compared to White British carers, yet the needs of Pakistani carers and how well support services meet these needs is less well understood. Social prescribing can help people get more control over their health care in a nonmedical way. South Asian and other ethnically diverse populations are under-served in social prescribing and there is little evidence available on why this is the case.

Aim

To explore the potential role of culturally relevant and adapted social prescribing in assisting Pakistani carers and identify the cultural and religious influences and barriers on carer health behaviours.

Methods

Semi-structured one-to-one interviews with Pakistani family carers (n = 27) and social prescribing stakeholders (n = 10) living in London and Sheffield, UK. Participants were recruited through voluntary and community sector organisations (VCSOs), social media, religious organisations, and word of mouth. Interview data was analysed in NVivo using reflexive thematic analysis methods.

Findings

Two themes were developed; (1) Individual and community level influences: Navigating and accessing carer support within Pakistani communities, including carer identity and cultural barriers to accessing support provision, and cultural adaptation to facilitate support for Pakistani carer health and well-being, (2) societal and structural level challenges: Accessing and providing social prescribing for Pakistani carers, including funding challenges for the provision of culturally relevant carer support, integration of primary care and social prescribing, and enhancing cultural awareness and competence in social prescribing for Pakistani carers.

Conclusions

There are complexities surrounding carer identity, family dynamics, stigma, and a lack of knowledge of social prescribing within Pakistani communities. There is a need for more culturally competent support, culturally relevant education, awareness-raising, and collaboration among primary care and VCSO's to better support Pakistani carers through social prescribing, which acknowledges and addresses the complexities.

Patient and Public Contribution

The study included a patient advisory group comprised of two South Asian family carers who contributed towards all stages of the study. They provided feedback on study documents (topic guides and recruitment materials) and recruitment strategy, supported with translation of study documents and interpretation of the interview data, and helped with facilitation of our dissemination activities.

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来源期刊
Health Expectations
Health Expectations 医学-公共卫生、环境卫生与职业卫生
CiteScore
5.20
自引率
9.40%
发文量
251
审稿时长
>12 weeks
期刊介绍: Health Expectations promotes critical thinking and informed debate about all aspects of patient and public involvement and engagement (PPIE) in health and social care, health policy and health services research including: • Person-centred care and quality improvement • Patients'' participation in decisions about disease prevention and management • Public perceptions of health services • Citizen involvement in health care policy making and priority-setting • Methods for monitoring and evaluating participation • Empowerment and consumerism • Patients'' role in safety and quality • Patient and public role in health services research • Co-production (researchers working with patients and the public) of research, health care and policy Health Expectations is a quarterly, peer-reviewed journal publishing original research, review articles and critical commentaries. It includes papers which clarify concepts, develop theories, and critically analyse and evaluate specific policies and practices. The Journal provides an inter-disciplinary and international forum in which researchers (including PPIE researchers) from a range of backgrounds and expertise can present their work to other researchers, policy-makers, health care professionals, managers, patients and consumer advocates.
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