在研究中减少欺诈性参与和突出自闭症声音的方法。

IF 5.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Autism Pub Date : 2024-11-24 DOI:10.1177/13623613241298037
Meghan E Carey, Kiley J McLean, Kyle Chvasta, Ashley de Marchena, Anne M Roux
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引用次数: 0

摘要

内容提要:在过去十年中,尤其是自闭症大流行以来,越来越多的研究都是在网上进行的。在网上开展研究可以创造机会,让世界各地的自闭症患者参与进来,使我们的研究更加多样化。然而,在网上开展研究曾导致骗子或假装自闭症患者参与自闭症研究。阻止骗子的策略可能会意外遗漏那些在处理时间和开放式问题方面有困难的自闭症患者。我们尝试了一些有据可查的策略来阻止骗子参与自闭症研究。我们还测试了新的策略,以了解它们的帮助程度。利用这些策略,我们怀疑 100 多名希望参与研究的人是骗子,因此没有邀请他们参与研究。作为研究人员,我们必须确保阻止骗子参与我们的研究。突出自闭症患者的声音并保证我们获得准确的结果非常重要。然而,识别骗子的策略也可能会遗漏有交流障碍的自闭症患者。这是不公平的,也可能使我们的结果不那么可靠。现有的和新的阻止骗子的策略需要花费大量的时间和资源,但为了确保我们的数据是可靠的,并且只包括自闭症患者的声音,这些策略是值得的。
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Methods to reduce fraudulent participation and highlight autistic voices in research.

Lay abstract: Over the last decade, especially since the pandemic, more research has been happening online. Conducting research online can create opportunities to include autistic people across the world and make our studies more diverse. However, conducting research online had led to scammers, or people pretending to be autistic, participating in autism research studies. Strategies to stop scammers may accidentally leave out autistic people who have difficulty with processing time and open-ended questions. We tried out documented strategies to stop scammers from participating in autism research. We also tested new strategies to understand how helpful they are. Using these strategies, we suspected over 100 people who wanted to participate were scammers and did not invite them to participate. As researchers, we must ensure we stop scammers from participating in our studies. It's important to highlight autistic voices and guarantee we get accurate results. However, the strategies to identify scammers may also leave out autistic people who have communication differences. This is unfair and could also make our results less reliable. The existing and new strategies to stop scammers take a lot of time and resources but they're worth it to make sure our data are reliable, and include only autistic voices.

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来源期刊
Autism
Autism PSYCHOLOGY, DEVELOPMENTAL-
CiteScore
9.80
自引率
11.50%
发文量
160
期刊介绍: Autism is a major, peer-reviewed, international journal, published 8 times a year, publishing research of direct and practical relevance to help improve the quality of life for individuals with autism or autism-related disorders. It is interdisciplinary in nature, focusing on research in many areas, including: intervention; diagnosis; training; education; translational issues related to neuroscience, medical and genetic issues of practical import; psychological processes; evaluation of particular therapies; quality of life; family needs; and epidemiological research. Autism provides a major international forum for peer-reviewed research of direct and practical relevance to improving the quality of life for individuals with autism or autism-related disorders. The journal''s success and popularity reflect the recent worldwide growth in the research and understanding of autistic spectrum disorders, and the consequent impact on the provision of treatment and care. Autism is interdisciplinary in nature, focusing on evaluative research in all areas, including: intervention, diagnosis, training, education, neuroscience, psychological processes, evaluation of particular therapies, quality of life issues, family issues and family services, medical and genetic issues, epidemiological research.
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