“这完全取决于这些支持的性质”:社区对自闭症儿童早期支持服务的适当性的看法。

IF 5.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Autism Pub Date : 2024-12-04 DOI:10.1177/13623613241302372
Rhylee Sulek, Chris Edwards, Ruth Monk, Lee Patrick, Sarah Pillar, Andrew Jo Whitehouse, Hannah Waddington
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引用次数: 0

摘要

摘要:我们不知道人们认为什么样的支持服务适合年幼的自闭症儿童。这项研究调查了253人。我们询问了来自澳大利亚和新西兰的自闭症成年人、父母和专业人士,他们是否认为为自闭症儿童提供支持服务是可以的。大约一半的人分享了他们的想法,他们认为为自闭症儿童提供支持服务是可以的,另一半人说这取决于支持服务是什么样的。对于支持服务是否可行,他们有三个主要观点。首先,我们应该记住,这些自闭症儿童首先是儿童,所以我们需要记住他们的童年经历,让他们在决定中有发言权。第二,我们不应该试图“修理”孩子,相反,使用尊重和理解孩子独特思维方式的支持。最后一个想法是,早期的个性化帮助对自闭症儿童有好处,可以对他们的生活产生积极的影响。这项研究表明,我们应该关注每个孩子的需求,思考孩子如何参与进来,并以尊重自闭症儿童的方式提供帮助。
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'It depends entirely on the nature of those supports': Community perceptions of the appropriateness of early support services for autistic children.

Lay abstract: We do not know much about what support services people think are okay for young autistic children. This study was a survey of 253 people. We asked autistic adults, parents, and professionals from Australia and New Zealand whether they thought it was okay to provide support services to autistic children. About half the people who shared their thoughts said it was okay to provide support services to autistic children and the other half said it depended on what the support service was like. They had three main ideas about whether support services were okay or not. The first one is that we should remember that these autistic children are children first, so we need to keep their childhood experiences in mind and let them have a say in decisions. The second is that we should not try to 'fix' the child, but instead, use supports that respect and understand the unique ways the child thinks. The final idea is that early, personalised help is good for autistic children and can make a positive difference in their lives. This study suggests that we should focus on what each child needs, think about how children can join in, and provide help in ways that respect autistic children.

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来源期刊
Autism
Autism PSYCHOLOGY, DEVELOPMENTAL-
CiteScore
9.80
自引率
11.50%
发文量
160
期刊介绍: Autism is a major, peer-reviewed, international journal, published 8 times a year, publishing research of direct and practical relevance to help improve the quality of life for individuals with autism or autism-related disorders. It is interdisciplinary in nature, focusing on research in many areas, including: intervention; diagnosis; training; education; translational issues related to neuroscience, medical and genetic issues of practical import; psychological processes; evaluation of particular therapies; quality of life; family needs; and epidemiological research. Autism provides a major international forum for peer-reviewed research of direct and practical relevance to improving the quality of life for individuals with autism or autism-related disorders. The journal''s success and popularity reflect the recent worldwide growth in the research and understanding of autistic spectrum disorders, and the consequent impact on the provision of treatment and care. Autism is interdisciplinary in nature, focusing on evaluative research in all areas, including: intervention, diagnosis, training, education, neuroscience, psychological processes, evaluation of particular therapies, quality of life issues, family issues and family services, medical and genetic issues, epidemiological research.
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