[儿童癌症后长期随访中远程会诊的患者认知]。

Bulletin du cancer Pub Date : 2025-02-01 Epub Date: 2024-12-19 DOI:10.1016/j.bulcan.2024.10.012
Romane Requier, Charlotte Demoor-Goldschmidt, Amandine Bertrand, Agnes Dumas
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引用次数: 0

摘要

在过去的十年中,对成人治愈的儿童癌症建立了“长期随访会诊”,以确保预防、早期发现和治疗的长期效果。这些磋商现在有时以远程磋商的形式进行,这种做法在2019冠状病毒病危机后得到了显著发展。本研究的目的是评估由肿瘤学家或血液学家进行的远程会诊作为儿童癌症治愈成人长期随访的一部分的满意度、有效性和患者体验。这是一个描述性的多中心研究样本的成人患者治愈儿童癌症谁受益于长期随访远程咨询。每次远程会诊后,向患者发送满意度问卷。对所有变量进行描述性分析,对感兴趣的变量(满意度、信任、有用性)和五个协变量(性别、诊断类型、健康状况感知、教育水平、先前远程咨询经验)进行双变量分析,采用Fisher精确检验。对于长期随访远程会诊体验的总体评价,73%的患者非常满意,25%的患者相当满意。值得注意的是,他们都对咨询时间感到满意(88%),感觉他们能够讨论他们想要的话题(83%)。因此,71%的患者表示希望在未来使用远程会诊。
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[Patients' perceptions of teleconsultation in long-term follow-up after pediatric cancer].

For the past decade, "long-term follow-up consultations" have been established for adults cured of pediatric cancer to ensure the prevention, early detection, and treatment of long-term effects. These consultations are now sometimes conducted in the form of teleconsultations, a practice that has seen significant growth following the COVID-19 crisis. The objective of this study was to evaluate the satisfaction, usefulness, and patient experience of teleconsultations conducted by an oncologist or hematologist as part of the long-term follow-up of adults cured of pediatric cancer. This is a descriptive multicenter study of a sample of adult patients cured of pediatric cancer who benefited from a long-term follow-up teleconsultation. After each teleconsultation, a satisfaction questionnaire was sent to the patient. Descriptive analyses were conducted for all variables, and bivariate analyses were performed between the variables of interest (satisfaction, trust, usefulness) and five covariates (gender, type of diagnosis, health status perception, education level, prior teleconsultation experience) using Fisher's exact test. Regarding the overall appreciation of their long-term follow-up teleconsultation experience, 73% of patients were very satisfied and 25% fairly satisfied. Notably, all of them were satisfied with the consultation time (88%), feeling that they were able to discuss the topics they wanted (83%). Consequently, 71% of patients expressed a desire to use teleconsultation in the future.

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