向青春期过渡的神经分裂女孩和神经畸形女孩的伪装及其与心理健康的关系:参与式方法研究

JCPP advances Pub Date : 2024-12-17 eCollection Date: 2024-12-01 DOI:10.1002/jcv2.12294
Ailbhe McKinney, Sarah O'Brien, Jacqueline A Maybin, Stella W Y Chan, Simone Richer, Sinead Rhodes
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引用次数: 0

摘要

背景:被诊断为自闭症、多动症和/或发育协调障碍(DCD)的青春期女孩比同样诊断的男孩和神经正常的女孩有更高的心理健康问题风险。这些女孩在这里被称为神经分化,尽管神经分化包括更广泛的诊断。造成这种心理健康差异的一个可能原因是伪装,这是女孩更常用的一种应对策略。伪装是指一个人假装自己是正常的,通常需要付出很大的努力。本研究旨在了解:(a)伪装的使用是否在青春期早期就开始了;(b)伪装的成分(同化、掩盖和补偿)在这个年龄段是如何存在的;(c)年龄是否预测了伪装;(d)与心理健康的关系是什么。方法:参与式方法:一个由15名成年神经分化女性组成的合作制作团队共同制作了这个项目,并将伪装作为他们最重要的研究主题。主要研究对象:119名11-14岁的女孩(70名神经发散型,49名神经正常型)。采用跨诊断方法,神经发散组被诊断为自闭症、ADHD和/或DCD。在与研究人员的在线会议中,女孩们完成了伪装、焦虑和抑郁的自我报告。结果:神经发散型和神经正常型女孩在伪装的两个组成部分,即掩蔽和补偿,以社会可接受的方式呈现和模仿相关的组成部分上表现相似。各组在同化成分上存在差异,同化成分与试图融入社会有关,涉及假装/表演的感觉。年龄对伪装有中等影响,在年龄较大的女孩中观察到更高的伪装水平。伪装得分强烈预测了两组的焦虑和抑郁得分。结论:在11-14岁神经发散性女孩的跨诊断样本中,伪装,特别是同化的使用是明显的。重要的是,伪装和不良心理健康之间的强烈关系在这个早期就存在,证实了联合制作团队的见解。
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Camouflaging in neurodivergent and neurotypical girls at the transition to adolescence and its relationship to mental health: A participatory methods research study.

Background: Adolescent girls with diagnoses of autism, ADHD and/or developmental coordination disorder (DCD) are at higher risk for mental health problems than boys with the same diagnoses and neurotypical girls. These girls are called neurodivergent here, though neurodivergence includes a broader range of diagnoses. One possible reason for this mental health disparity could be camouflaging, a coping strategy used more by girls. Camouflaging is when the individual pretends to be neurotypical, often involving substantial effort. This study aims to understand: (a) if the use of camouflaging has started by early adolescence, (b) how components of camouflaging (assimilation, masking, and compensation) present at this age, (c) if age predicts camouflaging and (d) what is the relationship with mental health.

Methods: Participatory methods: A co-production team of 15 adult neurodivergent women co-produced the project and ranked camouflaging as their most important research theme.

Main Study: Participants were 119 girls (70 neurodivergent, 49 neurotypical) aged 11-14 years. A transdiagnostic approach was adopted and the neurodivergent group had a diagnosis of autism, ADHD and/or DCD. Girls completed self-report measures of camouflaging, anxiety, and depression in an online meeting with a researcher.

Results: Neurodivergent and neurotypical girls presented similarly on two components of camouflaging namely masking and compensation, components related to presenting in a socially acceptable way and mimicry. Groups differed on the assimilation component, which is related to trying to fit in and involves the feelings of pretending/acting. Age had a medium effect on camouflaging with higher levels of camouflaging observed in older girls. Camouflaging scores strongly predicted anxiety and depression scores in both groups.

Conclusions: The use of camouflaging, specifically assimilation, is evident in a transdiagnostic sample of 11-14 year old neurodivergent girls. Importantly, the strong relationship between camouflaging and poor mental health is present at this early age, substantiating the co-production team's insights.

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