倡导在行动：国际患者团体改善遗传性血管性水肿的诊断和护理在亚太地区。

IF 6.3 2区医学 Q1 ALLERGY Clinical and Experimental Allergy Pub Date : 2025-01-12 DOI:10.1111/cea.14623

Jane C Y Wong, Cheryl C W Tsui, Kristie C W Lao, Jovilia Abong, Adli Ali, Dharmagat Bhattarai, Michihiro Hide, Ankur Jindal, Anthony Jordan, Hye-Ryun Kang, Constance H Katelaris, Narissara Suratannon, Sze-Chin Tan, Yong-Hao Lim, Deborah Corcoran, Fiona Wardman, Henrik Balle Boysen, Anthony J Castaldo, Philip H Li

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引用次数: 0

摘要

这项研究表明，患者权益团体能显著提高药物的可获得性，改善遗传性血管性水肿（HAE）的诊断，尤其是在亚太地区的新兴经济体。这项研究支持将患者权益团体的参与纳入管理指南，强调他们在改善 HAE 诊断和治疗方面的作用。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Advocacy in Action: International Patient Group Improves Hereditary Angioedema Diagnosis and Care Across the Asia-Pacific.

This study demonstrates that patient advocacy groups significantly enhance medication availability and improve diagnosis of hereditary angioedema (HAE), particularly in emerging economies within the Asia-Pacific region. This study supports integrating patient advocacy group involvement into management guidelines, emphasising their role in improving access to diagnostics and treatment for HAE.

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来源期刊

Clinical and Experimental Allergy 医学-过敏

CiteScore

10.40

自引率

9.80%

发文量

189

审稿时长

3-8 weeks

期刊介绍： Clinical & Experimental Allergy strikes an excellent balance between clinical and scientific articles and carries regular reviews and editorials written by leading authorities in their field. In response to the increasing number of quality submissions, since 1996 the journals size has increased by over 30%. Clinical & Experimental Allergy is essential reading for allergy practitioners and research scientists with an interest in allergic diseases and mechanisms. Truly international in appeal, Clinical & Experimental Allergy publishes clinical and experimental observations in disease in all fields of medicine in which allergic hypersensitivity plays a part.