结构、制度和人际种族主义:呼吁自闭症研究和实践中的公平。

IF 3.2 3区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Journal of Racial and Ethnic Health Disparities Pub Date : 2025-01-16 DOI:10.1007/s40615-024-02280-x
Jennifer S Singh, Susan Brasher, Jennifer Sarrett, Brian Barger, Karen Guerra, Laura J Dilly, I Leslie Rubin, Jennifer L Stapel-Wax, Teal Benevides, Samuel Fernandez-Carriba
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引用次数: 0

摘要

基于种族和民族的自闭症研究和实践的差异在许多结果和生命历程阶段都很明显。然而,大多数研究都集中在概述差异上,而不是导致这些差异的潜在系统性不平等。在这篇概念性论文中,我们的目标是通过概述美国科学、医疗、居住隔离和教育系统中结构性种族主义的机制来转移焦点。我们认为,这些和其他形式的制度性种族主义构成了结构性种族主义,影响了我们在自闭症服务和护理中看到的种族和民族差异。对于这些机构,我们确定了与自闭症相关的机构种族主义,并提供了一个例子,说明它如何塑造人际种族主义和不良后果,包括误诊、延误诊断、获得教育服务的不平等机会,以及临床遭遇中的差别待遇。然后,我们为这些机构提供自闭症研究和实践中的反种族主义方法,以解决造成种族和少数民族之间自闭症不平等的制度和人际种族主义。最后,我们呼吁临床医生、研究人员和其他人采取行动,通过有针对性的反种族主义方法,优先考虑并破坏结构性、制度性和人际性种族主义的影响。
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Structural, Institutional, and Interpersonal Racism: Calling for Equity in Autism Research and Practice.

Disparities in autism research and practices based on race and ethnicity are evident across many outcomes and life course stages. However, most of the research has focused on outlining differences and not the underlying systemic inequities driving these disparities. In this conceptual paper, we aim to shift the focus by outlining mechanisms of structural racism within the institutions of science, healthcare, and residential segregation and educational systems in the United States (U.S.). We argue that these and other forms of institutional racism constitute structural racism that are influencing the racial and ethnic disparities we see in autism services and care. For each of these institutions, we identify institutional racism related to autism and offer an example of how it shapes interpersonal racism and adverse outcomes, including misdiagnosis, delayed diagnosis, unequal access to educational services, and differential treatment in clinical encounters. We then provide anti-racism approaches in autism research and practice for each of these institutions that addresses institutional and interpersonal racism shaping autism inequities among racial and ethnic minorities. We conclude with a call to action to clinicians, researchers, and others to prioritize and disrupt the impacts of structural, institutional, and interpersonal racism through targeted anti-racism approaches.

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来源期刊
Journal of Racial and Ethnic Health Disparities
Journal of Racial and Ethnic Health Disparities PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH-
CiteScore
7.30
自引率
5.10%
发文量
263
期刊介绍: Journal of Racial and Ethnic Health Disparities reports on the scholarly progress of work to understand, address, and ultimately eliminate health disparities based on race and ethnicity. Efforts to explore underlying causes of health disparities and to describe interventions that have been undertaken to address racial and ethnic health disparities are featured. Promising studies that are ongoing or studies that have longer term data are welcome, as are studies that serve as lessons for best practices in eliminating health disparities. Original research, systematic reviews, and commentaries presenting the state-of-the-art thinking on problems centered on health disparities will be considered for publication. We particularly encourage review articles that generate innovative and testable ideas, and constructive discussions and/or critiques of health disparities.Because the Journal of Racial and Ethnic Health Disparities receives a large number of submissions, about 30% of submissions to the Journal are sent out for full peer review.
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