进展性癌症患者的家庭动态和家庭照顾者的支持网络。

Q3 Nursing Revista gaucha de enfermagem / EENFUFRGS Pub Date : 2025-01-13 eCollection Date: 2025-01-01 DOI:10.1590/1983-1447.2024.20240019.en
Larissa Carvalho Saletti, Mariana Lectícia Beraldi, Ana Lucia de Moraes Horta
{"title":"进展性癌症患者的家庭动态和家庭照顾者的支持网络。","authors":"Larissa Carvalho Saletti, Mariana Lectícia Beraldi, Ana Lucia de Moraes Horta","doi":"10.1590/1983-1447.2024.20240019.en","DOIUrl":null,"url":null,"abstract":"<p><strong>Objective: </strong>To analyze family dynamics, the support network of family caregivers of individuals with progressive cancer, and their needs for comprehensive care.</p><p><strong>Method: </strong>Qualitative, descriptive study developed based on the Calgary Family Assessment Model framework. It was conducted from September 2022 to April 2023, through participant observation at a public health institution in São Paulo and interviews with six family caregivers. The analysis was performed using Genogram and Ecomap, following the Calgary Model, with the support of software for data organization.</p><p><strong>Results: </strong>The data were categorized into structural, developmental, and functional family assessments. They revealed the strengthening of family relationships with strong bonds, an increased level of burden on the caregiver as cancer progressed, neglect of self-care, and financial difficulties. Due to the burden, caregivers struggled to outline the composition of their support network, but the employed model enabled the identification of its elements, with faith being mentioned by all.</p><p><strong>Conclusion: </strong>The diagnosis and progression of cancer led to changes in family structure, development, and functionality which need to be individually assessed to improve care planning. This involves mobilizing elements and services according to the reality of families.</p>","PeriodicalId":35609,"journal":{"name":"Revista gaucha de enfermagem / EENFUFRGS","volume":"45 ","pages":"e20240019"},"PeriodicalIF":0.0000,"publicationDate":"2025-01-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Family dynamics and support network of family caregivers of people with progressive cancer.\",\"authors\":\"Larissa Carvalho Saletti, Mariana Lectícia Beraldi, Ana Lucia de Moraes Horta\",\"doi\":\"10.1590/1983-1447.2024.20240019.en\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Objective: </strong>To analyze family dynamics, the support network of family caregivers of individuals with progressive cancer, and their needs for comprehensive care.</p><p><strong>Method: </strong>Qualitative, descriptive study developed based on the Calgary Family Assessment Model framework. It was conducted from September 2022 to April 2023, through participant observation at a public health institution in São Paulo and interviews with six family caregivers. The analysis was performed using Genogram and Ecomap, following the Calgary Model, with the support of software for data organization.</p><p><strong>Results: </strong>The data were categorized into structural, developmental, and functional family assessments. They revealed the strengthening of family relationships with strong bonds, an increased level of burden on the caregiver as cancer progressed, neglect of self-care, and financial difficulties. Due to the burden, caregivers struggled to outline the composition of their support network, but the employed model enabled the identification of its elements, with faith being mentioned by all.</p><p><strong>Conclusion: </strong>The diagnosis and progression of cancer led to changes in family structure, development, and functionality which need to be individually assessed to improve care planning. This involves mobilizing elements and services according to the reality of families.</p>\",\"PeriodicalId\":35609,\"journal\":{\"name\":\"Revista gaucha de enfermagem / EENFUFRGS\",\"volume\":\"45 \",\"pages\":\"e20240019\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2025-01-13\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Revista gaucha de enfermagem / EENFUFRGS\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1590/1983-1447.2024.20240019.en\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2025/1/1 0:00:00\",\"PubModel\":\"eCollection\",\"JCR\":\"Q3\",\"JCRName\":\"Nursing\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Revista gaucha de enfermagem / EENFUFRGS","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1590/1983-1447.2024.20240019.en","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2025/1/1 0:00:00","PubModel":"eCollection","JCR":"Q3","JCRName":"Nursing","Score":null,"Total":0}
引用次数: 0

摘要

目的:分析进展性癌症患者的家庭动态、家庭照顾者支持网络及其综合护理需求。方法:基于卡尔加里家庭评估模型框架进行定性、描述性研究。该研究于2022年9月至2023年4月期间在圣保罗一家公共卫生机构进行参与者观察,并与6名家庭照顾者进行访谈。在数据组织软件的支持下,根据卡尔加里模型,使用genacgram和Ecomap进行分析。结果:数据分为结构、发育和功能家庭评估。他们揭示了家庭关系的加强与牢固的纽带,随着癌症的发展,照顾者的负担水平增加,忽视自我照顾和经济困难。由于负担,护理人员努力勾勒出他们的支持网络的组成,但所采用的模型能够识别其元素,所有人都提到了信仰。结论:癌症的诊断和进展导致了家庭结构、发展和功能的变化,这些变化需要单独评估,以改善护理计划。这涉及根据家庭的现实情况调动各种因素和服务。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
查看原文
分享 分享
微信好友 朋友圈 QQ好友 复制链接
本刊更多论文
Family dynamics and support network of family caregivers of people with progressive cancer.

Objective: To analyze family dynamics, the support network of family caregivers of individuals with progressive cancer, and their needs for comprehensive care.

Method: Qualitative, descriptive study developed based on the Calgary Family Assessment Model framework. It was conducted from September 2022 to April 2023, through participant observation at a public health institution in São Paulo and interviews with six family caregivers. The analysis was performed using Genogram and Ecomap, following the Calgary Model, with the support of software for data organization.

Results: The data were categorized into structural, developmental, and functional family assessments. They revealed the strengthening of family relationships with strong bonds, an increased level of burden on the caregiver as cancer progressed, neglect of self-care, and financial difficulties. Due to the burden, caregivers struggled to outline the composition of their support network, but the employed model enabled the identification of its elements, with faith being mentioned by all.

Conclusion: The diagnosis and progression of cancer led to changes in family structure, development, and functionality which need to be individually assessed to improve care planning. This involves mobilizing elements and services according to the reality of families.

求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
CiteScore
1.70
自引率
0.00%
发文量
118
审稿时长
16 weeks
期刊介绍: A Escola de Enfermagem da Universidade Federal do Rio Grande do Sul edita e publica a Revista Gaúcha de Enfermagem para divulgar a produção científica da Enfermagem e áreas afins. Foi criada em 1976 e atualmente tem periodicidade trimestral.
期刊最新文献
Association between sociodemographic characteristics, stress level and resilience with family functioning of immigrants. Evidence of organizational support in hospitals in the context of the COVID-19 pandemic: scoping review. Family dynamics and support network of family caregivers of people with progressive cancer. Relationships that promote and threaten family hope during pregnancy and care for high-risk newborns. The (dis)continuity of breastfeeding care in prison: perception of health professionals and managers.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
已复制链接
已复制链接
快去分享给好友吧!
我知道了
×
扫码分享
扫码分享
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1