Larissa Carvalho Saletti, Mariana Lectícia Beraldi, Ana Lucia de Moraes Horta
{"title":"进展性癌症患者的家庭动态和家庭照顾者的支持网络。","authors":"Larissa Carvalho Saletti, Mariana Lectícia Beraldi, Ana Lucia de Moraes Horta","doi":"10.1590/1983-1447.2024.20240019.en","DOIUrl":null,"url":null,"abstract":"<p><strong>Objective: </strong>To analyze family dynamics, the support network of family caregivers of individuals with progressive cancer, and their needs for comprehensive care.</p><p><strong>Method: </strong>Qualitative, descriptive study developed based on the Calgary Family Assessment Model framework. It was conducted from September 2022 to April 2023, through participant observation at a public health institution in São Paulo and interviews with six family caregivers. The analysis was performed using Genogram and Ecomap, following the Calgary Model, with the support of software for data organization.</p><p><strong>Results: </strong>The data were categorized into structural, developmental, and functional family assessments. They revealed the strengthening of family relationships with strong bonds, an increased level of burden on the caregiver as cancer progressed, neglect of self-care, and financial difficulties. Due to the burden, caregivers struggled to outline the composition of their support network, but the employed model enabled the identification of its elements, with faith being mentioned by all.</p><p><strong>Conclusion: </strong>The diagnosis and progression of cancer led to changes in family structure, development, and functionality which need to be individually assessed to improve care planning. This involves mobilizing elements and services according to the reality of families.</p>","PeriodicalId":35609,"journal":{"name":"Revista gaucha de enfermagem / EENFUFRGS","volume":"45 ","pages":"e20240019"},"PeriodicalIF":0.0000,"publicationDate":"2025-01-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Family dynamics and support network of family caregivers of people with progressive cancer.\",\"authors\":\"Larissa Carvalho Saletti, Mariana Lectícia Beraldi, Ana Lucia de Moraes Horta\",\"doi\":\"10.1590/1983-1447.2024.20240019.en\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Objective: </strong>To analyze family dynamics, the support network of family caregivers of individuals with progressive cancer, and their needs for comprehensive care.</p><p><strong>Method: </strong>Qualitative, descriptive study developed based on the Calgary Family Assessment Model framework. It was conducted from September 2022 to April 2023, through participant observation at a public health institution in São Paulo and interviews with six family caregivers. The analysis was performed using Genogram and Ecomap, following the Calgary Model, with the support of software for data organization.</p><p><strong>Results: </strong>The data were categorized into structural, developmental, and functional family assessments. They revealed the strengthening of family relationships with strong bonds, an increased level of burden on the caregiver as cancer progressed, neglect of self-care, and financial difficulties. Due to the burden, caregivers struggled to outline the composition of their support network, but the employed model enabled the identification of its elements, with faith being mentioned by all.</p><p><strong>Conclusion: </strong>The diagnosis and progression of cancer led to changes in family structure, development, and functionality which need to be individually assessed to improve care planning. This involves mobilizing elements and services according to the reality of families.</p>\",\"PeriodicalId\":35609,\"journal\":{\"name\":\"Revista gaucha de enfermagem / EENFUFRGS\",\"volume\":\"45 \",\"pages\":\"e20240019\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2025-01-13\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Revista gaucha de enfermagem / EENFUFRGS\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1590/1983-1447.2024.20240019.en\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2025/1/1 0:00:00\",\"PubModel\":\"eCollection\",\"JCR\":\"Q3\",\"JCRName\":\"Nursing\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Revista gaucha de enfermagem / EENFUFRGS","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1590/1983-1447.2024.20240019.en","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2025/1/1 0:00:00","PubModel":"eCollection","JCR":"Q3","JCRName":"Nursing","Score":null,"Total":0}
Family dynamics and support network of family caregivers of people with progressive cancer.
Objective: To analyze family dynamics, the support network of family caregivers of individuals with progressive cancer, and their needs for comprehensive care.
Method: Qualitative, descriptive study developed based on the Calgary Family Assessment Model framework. It was conducted from September 2022 to April 2023, through participant observation at a public health institution in São Paulo and interviews with six family caregivers. The analysis was performed using Genogram and Ecomap, following the Calgary Model, with the support of software for data organization.
Results: The data were categorized into structural, developmental, and functional family assessments. They revealed the strengthening of family relationships with strong bonds, an increased level of burden on the caregiver as cancer progressed, neglect of self-care, and financial difficulties. Due to the burden, caregivers struggled to outline the composition of their support network, but the employed model enabled the identification of its elements, with faith being mentioned by all.
Conclusion: The diagnosis and progression of cancer led to changes in family structure, development, and functionality which need to be individually assessed to improve care planning. This involves mobilizing elements and services according to the reality of families.
期刊介绍:
A Escola de Enfermagem da Universidade Federal do Rio Grande do Sul edita e publica a Revista Gaúcha de Enfermagem para divulgar a produção científica da Enfermagem e áreas afins. Foi criada em 1976 e atualmente tem periodicidade trimestral.