Kathryn L Braun, JoAnn Tsark, Lorrie Ann Santos, Lehua Abrigo
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Emphasis is placed on transferring skills and resources to Native Hawaiians through training, technical assistance, and mentorship. A biennial survey assesses the extent to which community-based participatory research principles are being followed.</p><p><strong>Principal findings: </strong>By the end of the school year, statewide and island-specific awareness plans were produced, and 9 funded awareness projects are supporting the development and dissemination of Hawaiian health education materials. Research accomplishments include the enrollment of 42 Native Hawaiian Na Liko Noelo (budding researchers), 22 of which are involved in 14 funded research projects. The biennial evaluation survey found that 92% of our advisors felt that 'Imi Hale was promoting scientifically rigorous research that was culturally appropriate and respectful of Native Hawaiian beliefs, and 96% felt that 'Imi Hale was following its own principles of community-based participatory research.</p><p><strong>Conclusion: </strong>'Imi Hale's community-based approach to promoting cancer awareness will result in a sustainable infrastructure for reducing the cancer burden on Native Hawaiians.</p>","PeriodicalId":80567,"journal":{"name":"Asian American and Pacific Islander journal of health","volume":"10 1","pages":"4-16"},"PeriodicalIF":0.0000,"publicationDate":"2003-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2914229/pdf/nihms218090.pdf","citationCount":"0","resultStr":"{\"title\":\"'Imi Hale -- the Native Hawaiian cancer awareness, research, and training network: second-year status report.\",\"authors\":\"Kathryn L Braun, JoAnn Tsark, Lorrie Ann Santos, Lehua Abrigo\",\"doi\":\"\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Purpose: </strong>The purpose of this paper is to describe 'Imi Hale, a program developed and managed by Native Hawaiians to increase cancer awareness and research capacity among Native Hawaiians. 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引用次数: 0
摘要
目的:本文的目的是描述“Imi Hale”,一个由夏威夷原住民开发和管理的项目,旨在提高夏威夷原住民对癌症的认识和研究能力。夏威夷群岛的这一美国土著群体癌症死亡率高得不成比例,参与健康和研究事业的比例低。方法:作为一个以社区为基础的研究项目,Imi Hale第一年就从夏威夷原住民那里收集了关于他们的癌症意识和研究重点的数据。这些发现指导Imi Hale的社区和科学顾问、以社区为基础的机构审查委员会、Na Liko Noelo(崭露头角的研究人员)和工作人员制定和实施针对这些优先领域的项目。重点是通过培训、技术援助和指导向夏威夷原住民传授技能和资源。两年一次的调查评估社区参与性研究原则得到遵守的程度。主要成果:到学年结束时,制定了全州和特定岛屿的宣传计划,并资助了9个宣传项目,以支持夏威夷卫生教育材料的编制和传播。研究成果包括招收了42名夏威夷原住民Na Liko Noelo(崭露头角的研究人员),其中22人参与了14项资助的研究项目。这项两年一次的评估调查发现,92%的顾问认为Imi Hale正在推动科学严谨的研究,这种研究在文化上是适当的,并且尊重夏威夷原住民的信仰,96%的顾问认为Imi Hale遵循了自己的社区参与性研究原则。结论:“Imi Hale以社区为基础的提高癌症意识的方法将导致可持续的基础设施,以减少夏威夷原住民的癌症负担。
'Imi Hale -- the Native Hawaiian cancer awareness, research, and training network: second-year status report.
Purpose: The purpose of this paper is to describe 'Imi Hale, a program developed and managed by Native Hawaiians to increase cancer awareness and research capacity among Native Hawaiians. This US subgroup of indigenous people of the Hawaiian islands has disproportionately high rates of cancer mortality and low rates of participation in health and research careers.
Methods: As a community-based research project, 'Imi Hale spent its first year gathering data from Native Hawaiians about their cancer awareness and research priorities. These findings guide 'Imi Hale's community and scientific advisors, a community-based Institutional Review Board, Na Liko Noelo (budding researchers), and staff in developing and carrying out projects that address these priority areas. Emphasis is placed on transferring skills and resources to Native Hawaiians through training, technical assistance, and mentorship. A biennial survey assesses the extent to which community-based participatory research principles are being followed.
Principal findings: By the end of the school year, statewide and island-specific awareness plans were produced, and 9 funded awareness projects are supporting the development and dissemination of Hawaiian health education materials. Research accomplishments include the enrollment of 42 Native Hawaiian Na Liko Noelo (budding researchers), 22 of which are involved in 14 funded research projects. The biennial evaluation survey found that 92% of our advisors felt that 'Imi Hale was promoting scientifically rigorous research that was culturally appropriate and respectful of Native Hawaiian beliefs, and 96% felt that 'Imi Hale was following its own principles of community-based participatory research.
Conclusion: 'Imi Hale's community-based approach to promoting cancer awareness will result in a sustainable infrastructure for reducing the cancer burden on Native Hawaiians.