{"title":"沟通困难时不要放弃:阿尔茨海默氏症和痴呆症患者护理人员的在线健康建议。","authors":"Olivia E Jones, Elizabeth S Parks","doi":"10.1080/01621424.2021.1907266","DOIUrl":null,"url":null,"abstract":"<p><p>Sixteen million people in the United States are unpaid caregivers to people with Alzheimer's or dementia. Although caregiver investment is associated with personal and relational benefits, there are also emotional, mental, relational, and physical costs. This study explores online well-being advice for nonprofessional caregivers of people with Alzheimer's and dementia, resulting in 332 online resources that offer informational support for nonprofessional caregivers. Although competent communication directly impacts the well-being of caregiving relationships, only 39 of these texts offered advice related to communication strategies. Thematic analysis of these 39 sources resulted in 1,024 discrete pieces of caregiver advice related to three overarching themes: <i>Daily Routine, Care Recipient Well-Being</i>, and <i>Caregiver Self-Care</i>. We examine the <i>Caregiver Self-Care</i> theme to understand informational support available to caregivers. These self-care advice themes reveal a need for intentional focus on the home health quality of nonprofessional caregivers about ways that communication impacts their everyday lives.</p>","PeriodicalId":45875,"journal":{"name":"HOME HEALTH CARE SERVICES QUARTERLY","volume":null,"pages":null},"PeriodicalIF":1.2000,"publicationDate":"2021-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/01621424.2021.1907266","citationCount":"0","resultStr":"{\"title\":\"Don't give up when communication is difficult: Online well-being advice for caregivers of people with Alzheimer's and dementia.\",\"authors\":\"Olivia E Jones, Elizabeth S Parks\",\"doi\":\"10.1080/01621424.2021.1907266\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>Sixteen million people in the United States are unpaid caregivers to people with Alzheimer's or dementia. Although caregiver investment is associated with personal and relational benefits, there are also emotional, mental, relational, and physical costs. This study explores online well-being advice for nonprofessional caregivers of people with Alzheimer's and dementia, resulting in 332 online resources that offer informational support for nonprofessional caregivers. Although competent communication directly impacts the well-being of caregiving relationships, only 39 of these texts offered advice related to communication strategies. Thematic analysis of these 39 sources resulted in 1,024 discrete pieces of caregiver advice related to three overarching themes: <i>Daily Routine, Care Recipient Well-Being</i>, and <i>Caregiver Self-Care</i>. We examine the <i>Caregiver Self-Care</i> theme to understand informational support available to caregivers. These self-care advice themes reveal a need for intentional focus on the home health quality of nonprofessional caregivers about ways that communication impacts their everyday lives.</p>\",\"PeriodicalId\":45875,\"journal\":{\"name\":\"HOME HEALTH CARE SERVICES QUARTERLY\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":1.2000,\"publicationDate\":\"2021-04-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://sci-hub-pdf.com/10.1080/01621424.2021.1907266\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"HOME HEALTH CARE SERVICES QUARTERLY\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1080/01621424.2021.1907266\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2021/4/2 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q4\",\"JCRName\":\"HEALTH POLICY & SERVICES\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"HOME HEALTH CARE SERVICES QUARTERLY","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1080/01621424.2021.1907266","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2021/4/2 0:00:00","PubModel":"Epub","JCR":"Q4","JCRName":"HEALTH POLICY & SERVICES","Score":null,"Total":0}
Don't give up when communication is difficult: Online well-being advice for caregivers of people with Alzheimer's and dementia.
Sixteen million people in the United States are unpaid caregivers to people with Alzheimer's or dementia. Although caregiver investment is associated with personal and relational benefits, there are also emotional, mental, relational, and physical costs. This study explores online well-being advice for nonprofessional caregivers of people with Alzheimer's and dementia, resulting in 332 online resources that offer informational support for nonprofessional caregivers. Although competent communication directly impacts the well-being of caregiving relationships, only 39 of these texts offered advice related to communication strategies. Thematic analysis of these 39 sources resulted in 1,024 discrete pieces of caregiver advice related to three overarching themes: Daily Routine, Care Recipient Well-Being, and Caregiver Self-Care. We examine the Caregiver Self-Care theme to understand informational support available to caregivers. These self-care advice themes reveal a need for intentional focus on the home health quality of nonprofessional caregivers about ways that communication impacts their everyday lives.
期刊介绍:
Home Health Care Services Quarterly continues to publish important research on the cutting edge of home care and alternatives to long-term institutional care for the elderly, disabled, and other population groups that use in-home health care and other community services. The journal is aimed toward service providers and health care specialists involved with health care financing, evaluation of services, organization of services, and public policy issues.