Deanna Allred, Tracy M Frech, Cynthia McComber, Kathryn Peterson, Gloria Ortiz, Constance McNeill, Linsey Broadbent, Nancy Elorreaga, Thomas Miller, Mary Beth Scholand
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Chronic Multiorgan Rare Disease: The Role of the Nurse Practitioner as a Leader of the Healthcare Team.
Value in healthcare must focus on accessibility, quality, and affordability. This article describes how a healthcare team provides value by meeting the needs of a rare disease patient and underscores the importance of a chronic multiorgan rare disease home. A nurse practitioner can ensure that barriers to evaluation are removed and communication is prioritized in order to provide accessible and affordable care to a patient with rare disease without jeopardizing quality of care.
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