运动神经元疾病的姑息治疗：我们现在在哪里？

Palliative Care Pub Date : 2019-01-21 DOI:10.1177/1178224218813914

David J Oliver

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引用次数: 27

摘要

姑息治疗在运动神经元疾病患者及其家属的护理中发挥着非常重要的作用。在研究的支持下，越来越强调在指南范围内对患者进行多学科评估和支持。这包括诊断的告知、症状的评估和管理、干预措施的考虑，如胃造口术和通气支持，以及生命末期的护理。姑息治疗的目的是使患者及其家人能够保持尽可能好的生活质量，并帮助确保和平死亡。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Palliative care in motor neurone disease: where are we now?

Palliative care has a very important role in the care of patients with motor neurone disease and their families. There is increasing emphasis on the multidisciplinary assessment and support of patients within guidelines, supported by research. This includes the telling of the diagnosis, the assessment and management of symptoms, consideration of interventions, such as gastrostomy and ventilatory support, and care at the end of life. The aim of palliative care is to enable patients, and their families, to maintain as good a quality of life as possible and helping to ensure a peaceful death.

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来源期刊

Palliative Care

自引率

0.00%

发文量

审稿时长

15 weeks

期刊介绍： Palliative Care and Social Practice is an international, peer-reviewed, open access journal that publishes articles on all aspects of palliative care. It welcomes articles from symptom science, clinical practice, and health services research. However, its aim is also to publish cutting-edge research from the realm of social practice - from public health theory and practice, social medicine, and social work, to social sciences related to dying and its care, as well as policy, criticism, and cultural studies. We encourage reports from work with under-represented groups, community development, and studies of civic engagement in end of life issues. Furthermore, we encourage scholarly articles that challenge current thinking about dying, its current care models and practices, and current understandings of grief and bereavement. We want to showcase the next generation of palliative care innovation research and practice - in clinics and in the wider society. Relaunched in July 2019. Partnered with Public Health Palliative Care International (PHPCI) (Title 2008-2018: - Palliative Care: Research and Treatment)