自闭症谱系“障碍”应用行为分析的伦理关注。

IF 1.1 4区 哲学 Q3 ETHICS Kennedy Institute of Ethics Journal Pub Date : 2020-01-01 DOI:10.1353/ken.2020.0000
Daniel A Wilkenfeld, Allison M McCarthy
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引用次数: 44

摘要

本文既有理论意义又有实践意义。理论上的目标是探索自闭症谱系障碍(ASD)的有效和合乎伦理的治疗方法。然而,实际目标可能更重要:我们认为,应用行为分析(ABA)的主导形式,被广泛认为是ASD的最佳“治疗”,表现出对生物伦理学基本原则的系统性违反。此外,所谓的治疗好处不仅不能减轻这些侵犯行为,而且往往使其恶化。对ABA危险的警告对我们来说并不是最初的——自闭症的倡导者们已经敲响这个警钟好几年了。然而,他们的请求在很大程度上被忽视了,ABA继续被提供给父母,并经常被推送给父母,作为自闭症儿童的适当治疗方法。我们的贡献在于,从生物伦理学的角度来看,自闭症倡导者的担忧是完全合理的——自闭症儿童及其父母的权利经常受到侵犯。具体来说,我们将论证,使用ABA违反了正义和非恶意原则,最关键的是,侵犯了儿童的自主权,也侵犯了父母的自主权(在积极推动的情况下)。
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Ethical Concerns with Applied Behavior Analysis for Autism Spectrum "Disorder".

This paper has both theoretical and practical ambitions. The theoretical ambitions are to explore what would constitute both effective and ethical treatment of Autism Spectrum Disorder (ASD). However, the practical ambition is perhaps more important: we argue that a dominant form of Applied Behavior Analysis (ABA), which is widely taken to be far-and-away the best "treatment" for ASD, manifests systematic violations of the fundamental tenets of bioethics. Moreover, the supposed benefits of the treatment not only fail to mitigate these violations, but often exacerbate them. Warnings of the perils of ABA are not original to us-autism advocates have been ringing this bell for some years. However, their pleas have been largely unheeded, and ABA continues to be offered to and quite frequently pushed upon parents as the appropriate treatment for autistic children. Our contribution is to argue that, from a bioethical perspective, autism advocates are fully justified in their concerns-the rights of autistic children and their parents are being regularly infringed upon. Specifically, we will argue that employing ABA violates the principles of justice and nonmaleficence and, most critically, infringes on the autonomy of children and (when pushed aggressively) of parents as well.

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来源期刊
CiteScore
3.00
自引率
0.00%
发文量
19
期刊介绍: The Kennedy Institute of Ethics Journal offers a scholarly forum for diverse views on major issues in bioethics, such as analysis and critique of principlism, feminist perspectives in bioethics, the work of the Advisory Committee on Human Radiation Experiments, active euthanasia, genetics, health care reform, and organ transplantation. Each issue includes "Scope Notes," an overview and extensive annotated bibliography on a specific topic in bioethics, and "Bioethics Inside the Beltway," a report written by a Washington insider updating bioethics activities on the federal level.
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