家庭功能与中风:家庭成员的观点。

IF 1.3 Q4 HEALTH CARE SCIENCES & SERVICES African Journal of Disability Pub Date : 2021-10-25 eCollection Date: 2021-01-01 DOI:10.4102/ajod.v10i0.801
Sibulelo Gawulayo, Charlene J Erasmus, Anthea J Rhoda
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引用次数: 4

摘要

背景:中风幸存者经常经历永久性或暂时性的身体和心理中风损伤。因此,中风幸存者经常出院,在家中康复,并主要由家庭成员照顾。此外,看护角色通常没有经过任何正式的培训或准备。这可以改变家庭的功能模式,因为调整是为了适应照顾的需要。目的:探讨脑卒中对家庭及家庭功能的影响。方法:采用探索性描述性定性研究设计,采用深度访谈法作为数据收集手段。样本量为8个家庭成员,以饱和点为指导。对数据进行了主题分析。结果:分析中出现了四个主题:1)由于沟通障碍导致与家庭成员的互动减少;2)中风对家庭关系的影响;3)照顾中风家庭成员的情感投入;4)中风对家庭功能的经济影响。本研究发现中风会对家庭功能产生负面影响,因为家庭成员可能被迫改变其功能模式。然而,一些家庭成员报告了积极的经历,他们建立了一个支持结构来适应中风幸存者的新生活。结论:利用麦克马斯特的家庭功能模型,本研究发现中风对家庭功能的六个维度构成威胁:1)解决问题,2)沟通,3)角色,4)情感反应,5)情感参与,6)行为控制。
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Family functioning and stroke: Family members' perspectives.

Background: Stroke survivors often experience permanent or temporal physical and psychological stroke impairments. As a result, stroke survivors are often discharged to recover in their home environments and are cared for mostly by family members. Additionally, caregiving roles are often assumed without any formal training or preparation whatsoever. This can transform the family's functional patterns due to adjustments that are made to accommodate the caregiving needs.

Objectives: To explore the experiences and influence of stroke on families and on family functioning.

Method: Explorative descriptive qualitative research design through the use of in-depth interviews were employed as the means of data collection. The sample size was eight (8) family members and was guided by the saturation point. Data was thematically analysed.

Results: Four themes emerged from the analysis: 1) reduced interactions with family members due to communication barriers, 2) the influence of stroke on family relationships, 3) emotional engagement in caring for a family member with a stroke and 4) financial implications of stroke on family functioning. This study found that stroke can influence the family functioning negatively as family members may be forced to change their functional patterns. However, some family members reported positive experiences, they developed a supportive structure to accommodate the new life of the stroke survivor.

Conclusion: Using the McMaster's model of family functioning, this study found that stroke is a threat to the six dimensions of family functioning: 1) problem-solving, 2) communication, 3) roles, 4) affective responsiveness, 5) affective involvement, and 6) behaviour control.

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来源期刊
African Journal of Disability
African Journal of Disability HEALTH CARE SCIENCES & SERVICES-
CiteScore
2.10
自引率
5.90%
发文量
50
审稿时长
20 weeks
期刊介绍: The African Journal of Disability, the official journal of CRS, AfriNEAD and CEDRES, introduce and discuss issues and experiences relating to and supporting the act of better understanding the interfaces between disability, poverty and practices of exclusion and marginalisation. Its articles yield new insight into established human development practices, evaluate new educational techniques and disability research, examine current cultural and social discrimination, and bring serious critical analysis to bear on problems shared across the African continent. Emphasis is on all aspects of disability particularity in the developing African context. This includes, amongst others: -disability studies as an emerging field of public health enquiry -rehabilitation, including vocational and community-based rehabilitation -community development and medical issues related to disability and poverty -disability-related stigma and discrimination -inclusive education -legal, policy, human rights and advocacy issues related to disability -the role of arts and media in relation to disability -disability as part of global Sustainable Development Goals transformation agendas -disability and postcolonial issues -globalisation and cultural change in relation to disability -environmental and climate-related issues linked to disability -disability, diversity and intersections of identity -disability and the promotion of human development.
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