Sarah Bérubé, David Ogez, Jennifer Aramideh, Claudine Amesse, Claude J Bourque, Claire Longpré, Lorraine Muise, Ariane Levesque, Serge Sultan
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It's difficult to say no: Development of a parenting booklet about physical activity restrictions and recommendations in pediatric hemophilia.
Physical activity restrictions can be particularly difficult for children with hemophilia and their parents, as most children want to engage in the same activities as their friends or siblings. This study aimed to assess parents' need for a booklet on how to manage physical activity restrictions based on the self-determination theory and gather their suggestions for the booklet's improvement in a focus group. Data were analyzed using thematic analyses to highlight to what extent the needs of parents were met by the booklet, as well as their suggestions for improvement. A discussion on the methodology of the booklet's creation is also presented.
期刊介绍：
Health Psychology Open (HPO) is an international, peer-reviewed, open access, online-only journal providing rapid publication. HPO is dedicated to publishing cutting-edge research in health psychology from around the world. HPO seeks to provide a platform for both traditional empirical analyses and more qualitative and/or critically oriented approaches to health psychology. All areas of health psychology are covered, but these topics are of particular interest: Clinical health psychology Critical health psychology Community health psychology Health psychology practice Health psychology through a social, cultural or regional lens The journal particularly favours papers that focus on health psychology in practice, including submissions concerning community and/or clinical applications and interventions. Review articles are also welcomed. There is no fixed limit to the length of manuscripts, which is normally strictly limited in other journals, for example HPO’s sister journal, Journal of Health Psychology (JHP). Studies published in this journal are required to obtain ethical approval from an Institutional Review Board. Such approval must include informed, signed consent by all research participants. Any manuscript not containing an explicit statement concerning ethical approval and informed consent will not be considered.
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