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"It's sometimes a tightrope walk…" - Exploring dyadic coping arrangements between young adults with chronic conditions and their peers (friends or partners) in interviewing both sides. “有时就像走钢丝一样……”——在采访中探讨患有慢性疾病的年轻人和他们的同龄人(朋友或伴侣)之间的二元应对安排。
IF 1.3 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2026-01-19 eCollection Date: 2026-01-01 DOI: 10.1177/20551029251413630
Uwe Flick, Gundula Röhnsch

Living with long-term conditions requires adaptation and coping. It is unclear how young adults - often still in unstable social relationships - and their partners or friends cope with the challenges of a long-term condition. Our study aimed to explore how young adults and their friends or partners arrange themselves with this situation. In a comparative design, we interviewed 24 young adults with differing long-term conditions and 30 of their friends or partners in episodic interviews, which we analyzed with thematic coding. We identified four patterns of dyadic arrangements of coping for both sides: Joint Management and Supportive Arrangement show congruence and cooperation in dealing with the condition. Divergence and Diffusiveness illustrate conflicts and tensions. Our results show the importance romantic partners or close friends can have for dyadic disease management in young adulthood and suggest including friends and partners in training courses on long-term conditions and in professional support.

长期生活需要适应和应对。目前尚不清楚年轻人(通常仍处于不稳定的社会关系中)及其伴侣或朋友如何应对长期疾病的挑战。我们的研究旨在探索年轻人和他们的朋友或伴侣如何应对这种情况。在比较设计中,我们以情景访谈的方式采访了24名长期状况不同的年轻人和30名他们的朋友或伴侣,并对其进行了主题编码分析。我们确定了双方应对的四种二元安排模式:联合管理和支持安排在处理条件方面表现出一致性和合作。分歧和扩散说明了冲突和紧张。我们的研究结果表明,恋人或亲密的朋友对青年期双联病管理的重要性,并建议将朋友和伴侣纳入长期条件和专业支持的培训课程。
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引用次数: 0
The role of artificial intelligence in promoting kindness in society: A qualitative study to advance well-being, equity, and positive social change. 人工智能在促进社会友善中的作用:一项促进福祉、公平和积极社会变革的定性研究。
IF 1.3 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2026-01-08 eCollection Date: 2026-01-01 DOI: 10.1177/20551029251413309
Ali Ebrahimian, Morteza Mansourian, Sheida Vahidi, Fatemehsadat Alavi

Background and Objective: Artificial Intelligence (AI) has the potential to influence social behavior and public well-being. This study investigates AI's role in promoting kindness and identifies ethical strategies to foster empathy, support, and compassionate communities. Materials and Methods: This qualitative content analysis involved purposive sampling of 30 participants, including AI experts, social scientists, religious leaders, developers, and users. Semi-structured interviews were conducted until theoretical saturation was reached. Data were analyzed using Granheim and Lundman's method. Trustworthiness was ensured using Lincoln and Guba's criteria: credibility (via member checking), transferability (detailed contextual descriptions), dependability (audit trail), and confirmability (researcher reflexivity and documentation). Results: Five key themes emerged: emotional well-being, social justice, behavioral change, ethical responsibility, and education. AI fosters prosocial behavior, enhances social inclusion, and promotes sustainable relationships. Conclusion: When ethically and thoughtfully applied, AI can support and complement, but not replace, human relationships, particularly in promoting kindness and prosocial behaviors. This approach can strengthen social cohesion, enhance public health, and improve community well-being. Explicitly acknowledging AI's supportive role reinforces the manuscript's ethical positioning and conceptual clarity.

背景与目的:人工智能(AI)具有影响社会行为和公众福祉的潜力。本研究调查了人工智能在促进善良方面的作用,并确定了培养同理心、支持和富有同情心的社区的道德策略。材料和方法:这项定性内容分析涉及30名参与者的有目的抽样,包括人工智能专家、社会科学家、宗教领袖、开发人员和用户。进行半结构化访谈,直到达到理论饱和。数据分析采用Granheim和Lundman的方法。使用Lincoln和Guba的标准来确保可信性:可信性(通过成员检查)、可转移性(详细的上下文描述)、可靠性(审计跟踪)和可确认性(研究人员反思和文档)。结果:出现了五个关键主题:情感健康、社会正义、行为改变、道德责任和教育。人工智能培养亲社会行为,增强社会包容,促进可持续的关系。结论:当合乎伦理和深思熟虑地应用时,人工智能可以支持和补充,而不是取代人类关系,特别是在促进善良和亲社会行为方面。这种做法可以加强社会凝聚力,增进公共卫生,改善社区福祉。明确承认人工智能的支持作用加强了手稿的伦理定位和概念清晰度。
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引用次数: 0
Barriers and facilitators to continuous glucose monitor use in type 1 diabetes: A biopsychosocial model of the adolescent experience. 在1型糖尿病中使用连续血糖监测仪的障碍和促进因素:青少年经历的生物心理社会模型
IF 1.3 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-12-09 eCollection Date: 2025-01-01 DOI: 10.1177/20551029251408544
Kimberly S Hsiung, Karishma A Datye, David G Schlundt

Our study aims to understand the barriers and facilitators surrounding continuous glucose monitors (CGMs) in adolescents experiencing diabetes distress from type 1 diabetes through a biopsychosocial lens. We qualitatively analyzed interviews of 21 adolescents and coded their emotional experiences. Findings show that biologically, adolescents noted improved mood with healthier glucose ranges and future health prospects. Psychologically, adolescents preferred a sense of control over when to use, and take a break from, their CGM. Socially, they described mixed feelings surrounding how CGM use impacts relationships with friends, with family, and at school. The biopsychosocial framework captures the complexity and interplay among these factors, highlighting the desire for identity exploration, sense of belonging, and good health as important themes in adolescent diabetes management with a CGM. Clinicians can play a crucial role by bringing a biopsychosocial understanding of the CGM experience into care conversations for adolescents and families to consider.

我们的研究旨在通过生物心理社会视角了解持续血糖监测(cgm)对患有1型糖尿病的青少年的障碍和促进因素。我们对21名青少年的访谈进行了定性分析,并对他们的情感经历进行了编码。研究结果表明,从生物学角度来看,青少年的血糖水平和未来的健康前景都有所改善,情绪也有所改善。从心理上讲,青少年更喜欢控制感,而不是何时使用和中断他们的CGM。在社交方面,他们描述了关于使用CGM如何影响与朋友、家人和学校的关系的复杂感受。生物心理社会框架抓住了这些因素之间的复杂性和相互作用,强调了对身份探索、归属感和良好健康的渴望是CGM青少年糖尿病管理的重要主题。临床医生可以发挥至关重要的作用,将对CGM经历的生物心理社会理解带入青少年和家庭的护理对话中。
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引用次数: 0
Time spent following the Russian-Ukranian war (RUW) and psychological distress: The role of sleep problems. 俄乌战争后的时间和心理困扰:睡眠问题的作用。
IF 1.3 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-12-07 eCollection Date: 2025-01-01 DOI: 10.1177/20551029251405054
Taina Hintsa, Petri Karkkola, Juhani Julkunen, Esther Greenglass

Background: The Russian-Ukranian war (RUW) broke in 2022. Finland is a neighboring country of Russia. People in Finland could be assumed to be especially vulnerable to war-related stress. We examined the relationship between time spent following the RUW from media, sleep problems and psychological distress in university students. Methods: The participants were university students who responded anonymously to a questionnaire. They reported their age, gender, time spent following RUW, anxiety, depressive symptoms, and sleep problems. Statistical analyses were conducted using SPSS and Mplus for structural equation modeling. Results: The time spent following RUW from media was associated with greater psychological distress, and more sleep disturbances. Sleep disturbances accounted for more than 12% of the association between time spent following RUW and psychological distress. Conclusions: Present findings suggest that sleep problems should be taken into account when supporting students. Support programs should emphasize the importance of sleep in psychological well-being.

背景:俄乌战争(RUW)于2022年爆发。芬兰是俄罗斯的邻国。芬兰人可能会被认为特别容易受到战争相关压力的影响。我们研究了大学生在媒体、睡眠问题和心理困扰之后所花的时间之间的关系。方法:研究对象为大学生,以匿名方式填写问卷。他们报告了自己的年龄、性别、跟随RUW的时间、焦虑、抑郁症状和睡眠问题。采用SPSS和Mplus进行结构方程建模进行统计分析。结果:媒体曝光后所花费的时间与更大的心理困扰和更多的睡眠障碍有关。睡眠障碍占RUW后花费的时间与心理困扰之间关联的12%以上。结论:目前的研究结果表明,在支持学生时应考虑睡眠问题。支持项目应该强调睡眠对心理健康的重要性。
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引用次数: 0
Exploring domains and ways of expressing gratitude in older couples: A qualitative study. 探索老年夫妇表达感激的领域和方式:一项定性研究。
IF 1.3 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-12-03 eCollection Date: 2025-01-01 DOI: 10.1177/20551029251406030
Katharina Weitkamp, Michelle Roth, Michaela Baumann, Guy Bodenmann

In romantic relationships, gratitude promotes positivity, satisfaction and maintenance behaviour. However, little is known about specific domains of and ways of expressing gratitude in long-term relationships, particularly, as studies so far relied on pre-formulated self-report questionnaires that may fail to capture expressions of gratitude beyond direct verbal expressions. The research questions were: How do individuals experience gratitude in their current romantic relationship and how do they describe their partner's expressions of gratitude? Forty-three older couples were interviewed separately by phone. Interview data were analysed with qualitative content analysis. Overall, a strong sense of gratitude was mentioned for the partner's personality, the relationship quality, the partner's support, their joint achievements and the life they have created together. Gratitude was expressed verbally, but also in idiosyncratic ways through love expressions, signs of affection, or gifts. To conclude, gratitude seems to be an integral part of long-term relationships and may be beneficial for healthy aging.

在恋爱关系中,感恩促进积极、满足和维护行为。然而,人们对长期关系中表达感激的具体领域和方式知之甚少,特别是,因为迄今为止的研究依赖于预先制定的自我报告问卷,这些问卷可能无法捕捉到直接口头表达之外的感激表达。研究的问题是:个人在当前的恋爱关系中如何体验感恩?他们如何描述伴侣对感恩的表达?43对老年夫妇分别接受了电话采访。对访谈资料进行定性内容分析。总体而言,人们对伴侣的个性、关系质量、伴侣的支持、他们共同取得的成就以及他们共同创造的生活抱有强烈的感激之情。感激是口头上表达的,但也有特殊的方式,通过爱的表达,感情的迹象,或礼物。总之,感恩似乎是长期关系中不可或缺的一部分,可能对健康老龄化有益。
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引用次数: 0
From inside the country that never closed down: A qualitative research study focusing on the patient experiences of care and rehabilitation after the first wave of COVID-19 in Sweden. 来自从未关闭的国家内部:一项定性研究,重点关注瑞典第一波COVID-19后患者的护理和康复经历。
IF 1.3 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-11-26 eCollection Date: 2025-01-01 DOI: 10.1177/20551029251400494
Linda Swanson, Christine Jones, Susann Azzabi, Anne Söderlund, Lena Nordgren

This study aimed to explore the challenges that patients faced when severely ill with COVID-19 and during their rehabilitation journeys following the first wave in Sweden. Eight patients that were treated in an intensive care unit were interviewed using semi-structured interviews. Three themes were generated through thematic analysis: "transition into illness" (with subthemes: underestimated severity, uncertainty and worry); "to be cared for in a hospital setting" (with subthemes: loss of responsibility, loss of memory and time, contradictory feelings of being hospitalized, physical impact as frustrating); and "after care: managing on your own" (with subthemes: appreciation for care, care gaps and insufficient care, compromised ability, mental health, and self-efficacy for self-managed rehabilitation and post-traumatic growth). The findings indicated that the Swedish open strategy may be beneficial in other countries as it facilitated post-traumatic growth and that there should be a structured rehabilitation strategy in place in case of future pandemics.

本研究旨在探讨瑞典第一波疫情后患者在COVID-19重症患者和康复过程中面临的挑战。在重症监护病房接受治疗的8例患者采用半结构化访谈进行访谈。通过专题分析产生了三个主题:“向疾病的过渡”(副主题:严重程度被低估、不确定性和担忧);“在医院接受照顾”(分主题:失去责任、失去记忆和时间、住院的矛盾感觉、身体受到令人沮丧的影响);以及“护理后:自己管理”(副主题:对护理的感激、护理差距和护理不足、能力受损、心理健康、自我管理康复和创伤后成长的自我效能)。调查结果表明,瑞典的开放战略可能对其他国家有益,因为它促进了创伤后的成长,并且应该制定一项有组织的康复战略,以防未来发生大流行病。
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引用次数: 0
Health care professionals' experiences of caring for children with severe epidermolysis bullosa. 卫生保健专业人员照顾严重大疱性表皮松解症儿童的经验。
IF 1.3 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-11-05 eCollection Date: 2025-01-01 DOI: 10.1177/20551029251391232
Elisabeth Daae, Kristin Billaud Feragen, Terje Nærland, Charlotte von der Lippe

Epidermolysis bullosa (EB) comprises a group of genetically and clinically heterogeneous disorders characterized by skin fragility and blistering. It is currently incurable, and care is complex because of the rarity of the disease. Epidermolysis bullosa has a major impact on the lives of people living with it and on their families. In this study, we aimed to explore health care professionals' (HCPs) experiences of treating and following up on children with EB and their families. Nine HCPs from several health care disciplines participated in semi-structured interviews, which were analyzed through reflexive thematic analysis. Two main themes were identified: caring as an act of balance and facilitating collaboration. All participants experienced the following as challenging: (a) balancing between professional decisions and the provision of guidance to parents and (b) dealing with their own emotions. More systematic research is needed on the psychological impact of caring for children with EB and their families on HCPs.

大疱性表皮松解症(EB)包括一组以皮肤脆弱和起泡为特征的遗传和临床异质性疾病。目前无法治愈,由于该病罕见,护理也很复杂。大疱性表皮松解症对患者及其家人的生活产生重大影响。在本研究中,我们旨在探讨卫生保健专业人员(HCPs)治疗和随访EB儿童及其家庭的经验。来自多个卫生保健学科的9名卫生保健专业人员参加了半结构化访谈,并通过反身性专题分析对访谈进行了分析。会议确定了两个主题:作为平衡行为的关怀和促进合作。所有参与者都经历了以下挑战:(a)在专业决策和向父母提供指导之间取得平衡;(b)处理自己的情绪。需要对照顾EB儿童及其家庭对卫生保健服务提供者的心理影响进行更系统的研究。
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引用次数: 0
A qualitative examination of parental perceptions of eating behavior and body image issues of their adolescent children: Identifying ambivalences and contradictions. 父母对青少年儿童饮食行为和身体形象问题的看法的定性研究:确定矛盾和矛盾。
IF 1.3 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-09-29 eCollection Date: 2025-01-01 DOI: 10.1177/20551029251384431
Irini Kadianaki, Antonia Psalti

This study explores how parents of adolescents perceive their children's eating behaviours and body image influences. Data collected through semi-structured interviews with 14 parent pairs were thematically analysed. Three themes were identified that contained ambivalences and contradictions in parents' perceptions: 1. Normalising weight loss while also questioning dieting, 2. Valorising but also criticising unrealistic beauty ideals, and 3. Pathologising the overweight seemingly only on a health basis, but also due to appearance. All themes were reflective of the influence that dominant social messages on body image have on parental perceptions, primarily sustaining problematic eating behaviours and beauty ideals. They are also illustrative of the challenges that parents face in navigating opposing societal messages about eating practices and body image, leading them to implicit and explicit ambivalences and contradictions. The implications of the findings are discussed, along with suggestions for the development of a socially sensitive and informed parent support program.

本研究探讨青少年父母如何看待孩子的饮食行为和身体形象的影响。通过对14对父母的半结构化访谈收集的数据进行了主题分析。确定了三个主题,其中包含了父母观念中的矛盾和矛盾:1。正常减肥的同时也质疑节食;对不切实际的美丽理想推崇但也批评;将超重病态化似乎只是基于健康,但也与外表有关。所有的主题都反映了关于身体形象的主流社会信息对父母观念的影响,主要是维持有问题的饮食行为和美丽理想。它们也说明了父母在处理有关饮食习惯和身体形象的相反社会信息时所面临的挑战,这些信息导致他们产生或明或暗的矛盾和矛盾。讨论了研究结果的含义,并提出了制定具有社会敏感性和知情的家长支持计划的建议。
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引用次数: 0
"It was definitely for a purpose that I was born this way": Lived experiences of adolescents with chronic illness. “我这样出生绝对是有目的的”:患有慢性病的青少年的生活经历。
IF 1.3 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-08-23 eCollection Date: 2025-01-01 DOI: 10.1177/20551029251370802
Briana P Keller, Emily Rothenberg, Ashton Helveston, Jessika C Boles

Teenagers with chronic illnesses gain uniquely increased awareness of the triumphs, challenges, and responsibilities associated with their condition. Although some studies have explored the experiences of adolescents with cancer, few have studied other chronic illness groups. Therefore, the purpose of this phenomenological qualitative study was to explore adolescent perceptions of living and growing with a chronic illness. 12 individuals (ages 13-17) diagnosed with one or more chronic health conditions participated in a semi-structured interview. Interviews were audio-recorded and transcribed verbatim. Using interpretative phenomenological analysis, five themes were generated by the researchers: (1) trajectory of illness over time, (2) illness- and treatment-related restrictions, (3) interpersonal concerns, (4) reaching acceptance, and (5) perceived gains/benefits. Participants identified negative aspects of a chronic illness while also noting positive impacts on their lives. Despite little overlap in diagnoses, similar themes and experiences were present among participants, suggesting some level of generalizability among chronic health conditions.

患有慢性疾病的青少年对与他们的病情相关的胜利、挑战和责任的认识有所提高。尽管一些研究探讨了青少年癌症患者的经历,但很少有研究其他慢性疾病群体。因此,这个现象学定性研究的目的是探讨青少年对生活和成长与慢性疾病的看法。12名被诊断患有一种或多种慢性健康状况的个人(13-17岁)参加了半结构化访谈。采访录音并逐字抄写。利用解释性现象学分析,研究人员产生了五个主题:(1)疾病随时间的轨迹,(2)疾病和治疗相关的限制,(3)人际关系,(4)达到接受,(5)感知收益/利益。参与者发现了慢性病的负面影响,同时也注意到了对他们生活的积极影响。尽管在诊断上几乎没有重叠,但参与者之间存在相似的主题和经历,这表明慢性健康状况有一定程度的普遍性。
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引用次数: 0
Validation of the exercise-related cognitive errors questionnaire short form. 运动相关认知错误问卷简短形式的验证。
IF 1.3 Q3 PSYCHOLOGY, CLINICAL Pub Date : 2025-08-17 eCollection Date: 2025-01-01 DOI: 10.1177/20551029251369584
Sean R Locke, James Sessford, Mary E Jung

Exercise-related cognitive error represent the extent to which individuals view their exercise engagement through a negative and biased lens. Three datasets were examined to develop a short form of the original 16-item exercise-related cognitive errors questionnaire (E-CEQ) and evaluate evidence of validity. Exploratory factor analysis on datasets 1 (N = 394), 2 (N = 177), and 3 (N = 1027) suggested that a seven-item, one-factor model fit the data. Findings suggested that the ECEQ short form had a unidimensional factor structure that did not vary based on age or gender. As evidence of criterion-related validity, similar magnitude correlations were observed for the E-CEQ short-form (ECEQ-SF) and the original E-CEQ with key exercise variables in datasets 1 and 2 (| rs | ranged from .20 to .76). The ECEQ-SF captures the extent to which individuals view their perceived exercise barriers through a cognitively errored lens.

与运动相关的认知错误代表了个人通过负面和偏见的镜头看待他们的运动参与的程度。研究人员检查了三个数据集,以开发原始的16项运动相关认知错误问卷(E-CEQ)的简短形式,并评估证据的有效性。对数据集1 (N = 394)、2 (N = 177)和3 (N = 1027)进行探索性因子分析表明,采用7项单因素模型拟合数据。研究结果表明,ECEQ简短形式具有一维因子结构,不受年龄或性别的影响。作为标准相关效度的证据,在数据集1和2中,E-CEQ短格式(ECEQ-SF)和原始E-CEQ与关键运动变量之间观察到类似程度的相关性(|和|的范围从。20到0.76)。ECEQ-SF记录了个体通过认知错误的视角看待他们感知到的运动障碍的程度。
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引用次数: 0
期刊
Health Psychology Open
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