中国慢性阻塞性肺病患者社区肺健康服务设计

IF 3.1 3区 医学 Q1 PRIMARY HEALTH CARE NPJ Primary Care Respiratory Medicine Pub Date : 2022-08-19 DOI:10.1038/s41533-022-00286-8
Hui Pang, Zihan Pan, Rachel Adams, Eleanor Duncan, Chunhua Chi, Xia Kong, Peymané Adab, Kar Keung Cheng, Brendan G Cooper, Jaime Correia-de-Sousa, Andrew P Dickens, Alexandra Enocson, Amanda Farley, Nicola Gale, Kate Jolly, Sue Jowett, Mariam Maglakelidze, Tamaz Maghlakelidze, Sonia Martins, Alice Sitch, Katarina Stavrik, Raphael Stelmach, Alice Turner, Siân Williams, Rachel E Jordan
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引用次数: 1

摘要

慢性阻塞性肺病在中国越来越普遍,但患者对其了解甚少,不按处方用药,也无法获得推荐的非药物治疗。我们探讨了慢性阻塞性肺病患者和全科医生(gp)对慢性阻塞性肺病的认识、对其管理的看法,以及对提供健康教育、锻炼、自我管理、戒烟和心理健康支持的灵活肺健康服务(LHS)的接受程度。采用融合混合方法设计,采用焦点小组(FGs)对中国4个城市的患者和全科医生进行数据收集,并采用问卷调查方式对患者进行数据收集。对fg进行录音和转录。定量数据采用描述性分析,定性数据采用专题框架分析。251名患者完成了问卷调查;39名患者和30名全科医生参加了10个独立的fg。确定了三个总体主题:患者缺乏对COPD的知识/理解,目前COPD的管理不满足患者的需求和LHS设计,这得到了患者和全科医生的好评。参与者需要COPD教育、太极拳、心理支持和微信社会支持。39%的受访者在呼吸恶化时不知道该怎么做,24%的人不知道如何使用吸入器。36%的受访者要求有指导的放松。总的来说,参与者并没有完全了解COPD的影响,目前的治疗也不是最理想的。研究人员支持开发一种符合中国患者需求、健康信仰和当地医疗保健服务的文化上适当的干预措施。进一步的研究应探讨这种服务的可行性。
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Community lung health service design for COPD patients in China by the Breathe Well group.

COPD is increasingly common in China but is poorly understood by patients, medications are not used as prescribed and there is no access to recommended non-pharmacological treatment. We explored COPD patients' and general practitioners' (GPs) knowledge of COPD, views on its management and the acceptability of a flexible lung health service (LHS) offering health education, exercise, self-management, smoking cessation and mental health support. Using a convergent mixed methods design, data were collected from patients and GPs using focus groups (FGs) in four Chinese cities, questionnaires were also used to collect data from patients. FGs were audio-recorded and transcribed. Quantitative data were analysed descriptively, thematic framework analysis was used for the qualitative data. Two-hundred fifty-one patients completed the questionnaire; 39 patients and 30 GPs participated in ten separate FGs. Three overarching themes were identified: patients' lack of knowledge/understanding of COPD, current management of COPD not meeting patients' needs and LHS design, which was well received by patients and GPs. Participants wanted COPD education, TaiChi, psychological support and WeChat for social support. 39% of survey responders did not know what to do when their breathing worsened and 24% did not know how to use their inhalers. 36% of survey respondents requested guided relaxation. Overall, participants did not fully understand the implications of COPD and current treatment was sub-optimal. There was support for developing a culturally appropriate intervention meeting Chinese patients' needs, health beliefs, and local healthcare delivery. Further research should explore the feasibility of such a service.

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来源期刊
NPJ Primary Care Respiratory Medicine
NPJ Primary Care Respiratory Medicine PRIMARY HEALTH CARE-RESPIRATORY SYSTEM
CiteScore
5.50
自引率
6.50%
发文量
49
审稿时长
10 weeks
期刊介绍: npj Primary Care Respiratory Medicine is an open access, online-only, multidisciplinary journal dedicated to publishing high-quality research in all areas of the primary care management of respiratory and respiratory-related allergic diseases. Papers published by the journal represent important advances of significance to specialists within the fields of primary care and respiratory medicine. We are particularly interested in receiving papers in relation to the following aspects of respiratory medicine, respiratory-related allergic diseases and tobacco control: epidemiology prevention clinical care service delivery and organisation of healthcare (including implementation science) global health.
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