机器中的幽灵妇科癌症放疗后的生活。

IF 1.9 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Health Pub Date : 2024-01-01 Epub Date: 2022-07-28 DOI:10.1177/13634593221114749
Hilary Stewart, Lisa Ashmore, Mette Kragh-Furbo, Vicky Singleton, Daniel Hutton
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引用次数: 0

摘要

本文探讨了接受过妇科癌症放疗的妇女的治疗后经历。根据一个探讨治疗后福祉的项目所提供的数据,本文使用鬼魂/萦绕的概念隐喻来探讨癌症的持久遗留问题以及治疗后轨迹中 "被忽视的问题"。当前的护理安排助长了这样一种观念,即一旦积极治疗结束,参与者就 "离开了癌症的另一边"。尽管对癌症的整体康复有着更广泛的期望,但身体和心灵的脆弱性依然存在,即使外在表现为健康、面貌良好和继续前行。我们展示了被忽视的癌症问题(内脏的晚期影响、心理上的痛苦和没有经历过的生活)是如何成为癌症患者生活和超越癌症的一部分。这些 "幽灵 "表现为长期的不稳定状态,而个体化的 "修复 "措施,如调动 "心智胜于物质 "的论述和正念,可以暂时缓解这种不稳定状态。这种论述及其相关工具对与癌症共存和超越癌症是一种强大但贫乏的方法框架。我们认为有必要以不同的方式关注治疗后轨迹中 "被忽视的问题"。
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Ghosts in the machinery: Living with and beyond radiotherapy treatment for gynaecological cancer.

This paper explores post-treatment experiences of women who have had radiotherapy for gynaecological cancer. Drawing on data from a project which explored post-treatment wellbeing, conceptual metaphors of ghosts/haunting are used to engage with enduring legacies of cancer and 'neglected matters' in post-treatment trajectories. Current arrangements of care contribute to the idea that participants are 'out of the other side of cancer' once active treatment completes. Despite broader ambitions for holistic cancer rehabilitation, fragilities of body and mind persist, even when the outward representation is one of health, of looking well, of moving on. We show how neglected matters of cancer (visceral late effects, psychological suffering and lives not lived) are part of living with and beyond cancer. These 'ghosts' manifest in chronic states of unsettledness that are temporarily relieved by individualised 'fixes', such as mobilisation of 'mind over matter' discourse and mindfulness. This discourse and its associated tools are a powerful yet impoverished framing of approaches to living with and beyond cancer. We argue for the need to attend to 'neglected matters' of post-treatment trajectories differently.

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来源期刊
Health
Health Multiple-
CiteScore
4.90
自引率
0.00%
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0
期刊介绍: Health: is published four times per year and attempts in each number to offer a mix of articles that inform or that provoke debate. The readership of the journal is wide and drawn from different disciplines and from workers both inside and outside the health care professions. Widely abstracted, Health: ensures authors an extensive and informed readership for their work. It also seeks to offer authors as short a delay as possible between submission and publication. Most articles are reviewed within 4-6 weeks of submission and those accepted are published within a year of that decision.
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