夏娃的三面:香港母亲在离校过渡期照顾高功能自闭症儿童的生活经验

Pub Date : 2022-05-27 DOI:10.1080/10522158.2023.2170544
Yang Lu Frances, Vivian Lou Wei Qun, S. Tsang
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引用次数: 0

摘要

摘要本研究旨在探讨主要照顾者,即高功能自闭症儿童的母亲,在离开学校和有时开始工作的过渡过程中的照顾经历。对9名16-27岁患有自闭症的高功能儿童的护理母亲进行了深入访谈。研究结果显示,在自闭症高功能儿童的生命过渡过程中,照顾他们包括三个角色:社会倡导、照顾生活教练和个人自我复查。因此,可以建立一个理论模型,在孩子从学校到工作生活的过渡过程中赋予这些照顾者权力。通过加强多重作用的赋权战略,研究结果使从业者和政策制定者能够在不同的系统层面,包括个人、家庭和更大的社区,反思支持家庭过渡规划的干预措施。
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The three faces of eve: mothers’ lived experiences of caring for children with high-functioning autism during the school-leaving transition in Hong Kong
ABSTRACT This study aimed to explore the caregiving experiences of primary caregivers, mothers of children with high-functioning autism, during the transition of leaving school and sometimes starting work. In-depth interviews were conducted with nine caregiving mothers with high-functioning children with autism aged 16–27 years. Results revealed that caring for a high-functioning child with autism during their life transition includes three roles: social advocacy, caregiving life coach, and personal selfhood reexamination. Thus, a theoretical model of empowering these caregivers during the child’s school-to-work life transition can be established. With the empowerment strategies of strengthening multiple roles, findings allow practitioners and policymakers to reflect on the interventions supporting families in transitioning planning at different systematic levels, including the individual, the family, and the larger community.
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