姑息治疗患者的生活质量:适当评估工具的特点及早期整合姑息治疗的影响

Thomas Antony Thaniyath
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引用次数: 6

摘要

根据世界卫生组织的定义,姑息治疗(PC)的主要目标是通过多学科方法提高面临生命威胁疾病的患者的生活质量(QoL)。PC患者的生活质量评估是识别患者整体状况的重要过程,包括心理社会、精神问题以及评估为患者提供的服务。理想的评估工具——PC患者的生活质量测量——应该以患者为中心,包含主观和客观领域,并能够与生活质量的定义相关联。积极影响生活质量延伸的因素包括良好的医患沟通、经济地位、教育、社会经济支持和精神。负面因素是社会孤立、缺乏就业、贫困、被排斥和污名化以及出现症状,如无法控制的疼痛。PC的早期整合会带来更高的心理社会支持和对诊断的接受度,以及疾病的严重程度,这反过来有助于更好的症状管理,并减少与疾病相关的压力,这显然与生活质量的改善有关。它为临终决策提供了更多的时间,促进了自我效能感和对个人价值观的决策控制感。
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The Quality of Life of the Patients Under Palliative Care: The Features of Appropriate Assessment Tools and the Impact of Early Integration of Palliative Care
Based on the WHO definition, the primary objective of palliative care (PC) is to improve the quality of life (QoL) of the patients facing life threatening illness by means of a multidisciplinary approach. The assessment of QoL in patients under PC is an important process for the identification of patient’s overall conditions including psycho-social, spiritual issues as well as the evaluation of the services provided to the patient. The ideal assessment tool the measurement of QoL in patients under PC should be patient centered and contain both subjective and objective domains and be able to correlate with the definition of QoL. The factors which positively influence the extend of the QoL include, good doctor-patient communication, economic status, education, socio-economic support and spirituality. The negative factors are social isolation, lack of employment, poverty, rejection and stigmatization and experience of symptoms, such as uncontrolled pain. Early Integration of PC leads to higher psycho-social support and acceptance of diagnosis, and severity of illness, which in turn helps for the better symptom management and reduces the disease related stress, which clearly associated with improved QoL. It provides more time for the end of life decision making, promotes self-efficacy and sense of control in decision with respect to individual values.
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来源期刊
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审稿时长
15 weeks
期刊介绍: Palliative Care and Social Practice is an international, peer-reviewed, open access journal that publishes articles on all aspects of palliative care. It welcomes articles from symptom science, clinical practice, and health services research. However, its aim is also to publish cutting-edge research from the realm of social practice - from public health theory and practice, social medicine, and social work, to social sciences related to dying and its care, as well as policy, criticism, and cultural studies. We encourage reports from work with under-represented groups, community development, and studies of civic engagement in end of life issues. Furthermore, we encourage scholarly articles that challenge current thinking about dying, its current care models and practices, and current understandings of grief and bereavement. We want to showcase the next generation of palliative care innovation research and practice - in clinics and in the wider society. Relaunched in July 2019. Partnered with Public Health Palliative Care International (PHPCI) (Title 2008-2018: - Palliative Care: Research and Treatment)
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