解决癌症的下一个禁忌:讨论和解决金融毒性的紧迫性

Béatrice Fortin, Auréliana-Marie Billy-Da Silveira, D. Tremblay
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引用次数: 0

摘要

经济毒性与癌症患者的痛苦程度更高、疾病管理更差、生活质量甚至生存能力更差有关。癌症护理提供者需要认识到,无论癌症的类型和阶段以及医疗保健系统的性质如何,这种日益增长的负担及其可能产生的不良影响。我们与魁北克省(加拿大)公共资助的全民医疗体系中的癌症团队成员的讨论表明,他们认为自己没有能力,没有时间解决经济毒性问题,也没有正式指定专业人员来解决癌症给患者和护理人员带来的经济问题。许多国家也报告了类似的调查结果,表明在目前的专业实践中,金融毒性问题仍然没有得到充分解决。早就应该努力克服围绕癌症经济负担的禁忌,并提高人们对这一禁忌的认识,以支持癌症患者及其后的生活。我们的目标是通过围绕知识与实践之间的差距、提高认识的策略、克服干预障碍的方法以及所需的学习来提高人们对金融毒性的认识。
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Tackling the next taboo in cancer: the urgency of talking about and addressing financial toxicity
Financial toxicity is associated with greater levels of distress and poorer disease management, quality of life and even survival for people living with and beyond cancer. Cancer care providers need to recognize this growing burden and the adverse effects it can have regardless of the type and stage of cancer, and the nature of the health care systems. Our discussions with cancer team members in Québec’s (Canada) publicly funded universal health care system reveal that they consider themselves illequipped and lack time to address financial toxicity, and that no professional is formally designated to address the financial concerns cancer creates for patients and caregivers. Similar findings have been reported in many countries, demonstrating that financial toxicity remains under-addressed in present professional practice. Efforts are long overdue to overcome the taboo around the financial burden of cancer and bring awareness about it to support patients living with and beyond cancer. Our aim is to increase awareness of financial toxicity with arguments around the knowledge-to-practice gap, strategies to increase awareness, ways to overcome barriers to intervention, and required learning.
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