Pub Date : 2024-07-01DOI: 10.1097/or9.0000000000000133
Maggie Watson
This invited commentary briefly describes some of the milestones and events from the period of 2010–2012 while I was President of the International Psycho-Oncology Society (IPOS). Important events covered include the introduction and implementation of an International Standard of Quality Psychosocial Care, the setting up of IPOS Press, the initiation of a partnership with the WHO and further development of the curriculum, and the IPOS Federation of Societies implemented by Dr Luigi Grassi. It also briefly covers important changes to the governance, byelaws, and committee structures of IPOS.
这篇特邀评论简要介绍了2010-2012年我担任国际肿瘤心理学会（IPOS）主席期间的一些里程碑事件。其中涉及的重要事件包括引入和实施《优质社会心理护理国际标准》、成立 IPOS 新闻社、与世界卫生组织建立合作伙伴关系、进一步开发课程以及由 Luigi Grassi 博士负责实施的 IPOS 协会联合会。报告还简要介绍了 IPOS 在管理、附则和委员会结构方面的重要变化。
{"title":"Reflections on the contribution of IPOS to psycho-oncology","authors":"Maggie Watson","doi":"10.1097/or9.0000000000000133","DOIUrl":"https://doi.org/10.1097/or9.0000000000000133","url":null,"abstract":"\u0000 This invited commentary briefly describes some of the milestones and events from the period of 2010–2012 while I was President of the International Psycho-Oncology Society (IPOS). Important events covered include the introduction and implementation of an International Standard of Quality Psychosocial Care, the setting up of IPOS Press, the initiation of a partnership with the WHO and further development of the curriculum, and the IPOS Federation of Societies implemented by Dr Luigi Grassi. It also briefly covers important changes to the governance, byelaws, and committee structures of IPOS.","PeriodicalId":73915,"journal":{"name":"Journal of psychosocial oncology research and practice","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141688959","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-01DOI: 10.1097/or9.0000000000000134
Andreja Cirila Škufca Smrdel, Anja Podlesek, Jana Markovič, Jana Jereb, M. Vidmar, U. Smrdel
High-grade gliomas without isocitrate dehydrogenase (IDH) mutations are associated with poor survival and have been poorly studied. Our aim was to investigate the prognostic factors for survival in this group, focusing on frailty, age, and cognition. This study included Slovenian patients with high-grade IDH1 wild-type gliomas. Frailty and cognitive functioning were measured postoperatively using the Clinical Frailty Scale and neuropsychological test battery. Descriptive statistics were used to analyze the demographic and clinical data. Univariate and multivariate Cox proportional hazard regression models were used to examine the clinical predictors and prognostic value of the cognitive test scores. Kaplan-Meier curves were generated, and the log-rank test was used. Data from 75 patients were analyzed. The median time to progression was 11.0 months, and the median survival was 12.8 months. Multivariate analysis revealed that frailty, sex, O6-methylguanine-DNA methyltransferase methylation, and verbal fluency, but not the global cognitive functioning, were significant prognostic factors for survival. Age was a statistically significant prognostic factor in the univariate regression model; when other factors were controlled for in the multivariate model, age lost its prognostic value. Frailty is an important prognostic factor for survival of patients with high-grade IDH1 wild-type gliomas. Cognitive functioning in the domain of verbal fluency remained an independent prognostic factor for survival after controlling for other factors.
{"title":"Evaluation of frailty, cognitive function, and age as prognostic factors for survival in patients with IDH1wild-type high-grade glioma","authors":"Andreja Cirila Škufca Smrdel, Anja Podlesek, Jana Markovič, Jana Jereb, M. Vidmar, U. Smrdel","doi":"10.1097/or9.0000000000000134","DOIUrl":"https://doi.org/10.1097/or9.0000000000000134","url":null,"abstract":"\u0000 \u0000 \u0000 High-grade gliomas without isocitrate dehydrogenase (IDH) mutations are associated with poor survival and have been poorly studied. Our aim was to investigate the prognostic factors for survival in this group, focusing on frailty, age, and cognition.\u0000 \u0000 \u0000 \u0000 This study included Slovenian patients with high-grade IDH1 wild-type gliomas. Frailty and cognitive functioning were measured postoperatively using the Clinical Frailty Scale and neuropsychological test battery. Descriptive statistics were used to analyze the demographic and clinical data. Univariate and multivariate Cox proportional hazard regression models were used to examine the clinical predictors and prognostic value of the cognitive test scores. Kaplan-Meier curves were generated, and the log-rank test was used.\u0000 \u0000 \u0000 \u0000 Data from 75 patients were analyzed. The median time to progression was 11.0 months, and the median survival was 12.8 months. Multivariate analysis revealed that frailty, sex, O6-methylguanine-DNA methyltransferase methylation, and verbal fluency, but not the global cognitive functioning, were significant prognostic factors for survival. Age was a statistically significant prognostic factor in the univariate regression model; when other factors were controlled for in the multivariate model, age lost its prognostic value.\u0000 \u0000 \u0000 \u0000 Frailty is an important prognostic factor for survival of patients with high-grade IDH1 wild-type gliomas. Cognitive functioning in the domain of verbal fluency remained an independent prognostic factor for survival after controlling for other factors.\u0000","PeriodicalId":73915,"journal":{"name":"Journal of psychosocial oncology research and practice","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141691444","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-04-01DOI: 10.1097/or9.0000000000000128
Marc Sleiman, M. R. Yockel, A. Fleischmann, E. Silber, Mingqian Liu, Olivia Young, Sahana Arumani, K. Tercyak
Community-based organizations (CBO) offer support, including patient navigation (PN), to women at-risk for (eg, those with BRCA pathogenic variants) and surviving with breast cancer. However, the impacts of CBO efforts on survivors' empowerment (eg, control, self-confidence, knowledge/skills, coping) are largely unknown. As part of a quality improvement initiative (N = 2,247) focused on PN, care satisfaction, peer support, and quality of life (QoL), we conducted a secondary analysis of a CBO care delivery model on women's empowerment. Under CBO led cancer control, empowerment was high: most survivors felt confident in (71.2%) and knowledgeable about (66.4%) managing their care. Perceived care quality was also high (91%): it was recommendable to others (93.9%), helpful (92.7%), informative (92.6%), timely (92.2%), reliable (91.5%), supportive (91.3%), and effective (88.7%). Regarding CBO care satisfaction, survivors felt supported by abundant resources (92.8%) and programs (91.2%), understood (92.0%), and helped (91.6%). Peer support (offered to >25%) demonstrated high engagement (>85%). Regarding QoL, 25.3% were in fair/poor health and 25.6% endorsed frequent mental distress (M = 7.2 physically unhealthy days, M = 7.8 mentally unhealthy days, and M = 6.4 activity-limited days within the past month). Disparities in empowerment were observed as a function of survivors' QoL: lowest among those with more frequent mental distress (t = −2.13, P < .05), mentally unhealthy days (r = −0.083, P < .05), and activity-limited days (r = −0.058, P < .05)). These burdens may have influenced survivors' feelings of empowerment, especially among those without peer support (t = 3.77, P < .001), who downgraded the quality of PN (t = 0.60, P < .01), and were least satisfied with CBO cancer control (t = 0.57, P < .01). In a multivariable model adjusting for mental distress, both perceived PN quality (B = 0.16, SE = 0.01, P < .001) and peer support (B = 0.24, SE = 0.13, P = .05) were positively associated with empowerment: survivors who rated their PN higher, and offered peer support, felt more empowered. CBO cancer control can uplift most survivors: addressing socially determined disparities, through programs such as peer support, may enhance their effectiveness and particularly among those with poor mental health.
{"title":"The role of peer support and patient navigation for empowerment in breast cancer survivors: implications for community cancer control","authors":"Marc Sleiman, M. R. Yockel, A. Fleischmann, E. Silber, Mingqian Liu, Olivia Young, Sahana Arumani, K. Tercyak","doi":"10.1097/or9.0000000000000128","DOIUrl":"https://doi.org/10.1097/or9.0000000000000128","url":null,"abstract":"\u0000 \u0000 \u0000 Community-based organizations (CBO) offer support, including patient navigation (PN), to women at-risk for (eg, those with BRCA pathogenic variants) and surviving with breast cancer. However, the impacts of CBO efforts on survivors' empowerment (eg, control, self-confidence, knowledge/skills, coping) are largely unknown.\u0000 \u0000 \u0000 \u0000 As part of a quality improvement initiative (N = 2,247) focused on PN, care satisfaction, peer support, and quality of life (QoL), we conducted a secondary analysis of a CBO care delivery model on women's empowerment.\u0000 \u0000 \u0000 \u0000 Under CBO led cancer control, empowerment was high: most survivors felt confident in (71.2%) and knowledgeable about (66.4%) managing their care. Perceived care quality was also high (91%): it was recommendable to others (93.9%), helpful (92.7%), informative (92.6%), timely (92.2%), reliable (91.5%), supportive (91.3%), and effective (88.7%). Regarding CBO care satisfaction, survivors felt supported by abundant resources (92.8%) and programs (91.2%), understood (92.0%), and helped (91.6%). Peer support (offered to >25%) demonstrated high engagement (>85%). Regarding QoL, 25.3% were in fair/poor health and 25.6% endorsed frequent mental distress (M = 7.2 physically unhealthy days, M = 7.8 mentally unhealthy days, and M = 6.4 activity-limited days within the past month). Disparities in empowerment were observed as a function of survivors' QoL: lowest among those with more frequent mental distress (t = −2.13, P < .05), mentally unhealthy days (r = −0.083, P < .05), and activity-limited days (r = −0.058, P < .05)). These burdens may have influenced survivors' feelings of empowerment, especially among those without peer support (t = 3.77, P < .001), who downgraded the quality of PN (t = 0.60, P < .01), and were least satisfied with CBO cancer control (t = 0.57, P < .01). In a multivariable model adjusting for mental distress, both perceived PN quality (B = 0.16, SE = 0.01, P < .001) and peer support (B = 0.24, SE = 0.13, P = .05) were positively associated with empowerment: survivors who rated their PN higher, and offered peer support, felt more empowered.\u0000 \u0000 \u0000 \u0000 CBO cancer control can uplift most survivors: addressing socially determined disparities, through programs such as peer support, may enhance their effectiveness and particularly among those with poor mental health.\u0000","PeriodicalId":73915,"journal":{"name":"Journal of psychosocial oncology research and practice","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140774257","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-04-01DOI: 10.1097/or9.0000000000000129
K. Shaffer, J. Glazer, Philip I. Chow, Karen S. Ingersoll, Lee Ritterband
Cancer caregivers are more likely to report clinically significant symptoms of insomnia than patients with cancer and the general population, yet research has been limited regarding cognitive-behavioral therapy for insomnia (CBT-I) among this population. To better understand cancer caregivers' engagement with and benefit from CBT-I, cancer caregivers were enrolled in a nonrandomized pilot feasibility trial of an evidence-based Internet-delivered insomnia program. Thirteen caregivers completed mixed-methods assessments before receiving the insomnia program and after the nine-week intervention period. Compared with the five caregivers who did not complete any intervention Cores, the eight caregivers who completed at least one of the intervention Cores tended to report more sleep impairment (insomnia symptom severity; minutes of sleep onset latency and wake after sleep onset), less physical and emotional strain from caregiving, and less maladaptive sleep beliefs at the baseline assessment. These caregivers who used the program also showed large improvements in their insomnia symptoms. Caregivers' qualitative feedback about their experience with the program identified potential areas that might be modified to improve caregivers' engagement with and benefit from Internet-delivered insomnia programs. Findings suggest that family cancer caregivers can use and benefit from a fully automated Internet-delivered CBT-I program, even without caregiving-specific tailoring. Further rigorous research is needed to better understand whether and how program modifications may allow more caregivers to initiate and engage with this program.
{"title":"Family cancer caregiver use of and benefit from an internet-delivered insomnia intervention: results from a single-group feasibility trial","authors":"K. Shaffer, J. Glazer, Philip I. Chow, Karen S. Ingersoll, Lee Ritterband","doi":"10.1097/or9.0000000000000129","DOIUrl":"https://doi.org/10.1097/or9.0000000000000129","url":null,"abstract":"\u0000 \u0000 \u0000 Cancer caregivers are more likely to report clinically significant symptoms of insomnia than patients with cancer and the general population, yet research has been limited regarding cognitive-behavioral therapy for insomnia (CBT-I) among this population.\u0000 \u0000 \u0000 \u0000 To better understand cancer caregivers' engagement with and benefit from CBT-I, cancer caregivers were enrolled in a nonrandomized pilot feasibility trial of an evidence-based Internet-delivered insomnia program. Thirteen caregivers completed mixed-methods assessments before receiving the insomnia program and after the nine-week intervention period.\u0000 \u0000 \u0000 \u0000 Compared with the five caregivers who did not complete any intervention Cores, the eight caregivers who completed at least one of the intervention Cores tended to report more sleep impairment (insomnia symptom severity; minutes of sleep onset latency and wake after sleep onset), less physical and emotional strain from caregiving, and less maladaptive sleep beliefs at the baseline assessment. These caregivers who used the program also showed large improvements in their insomnia symptoms. Caregivers' qualitative feedback about their experience with the program identified potential areas that might be modified to improve caregivers' engagement with and benefit from Internet-delivered insomnia programs.\u0000 \u0000 \u0000 \u0000 Findings suggest that family cancer caregivers can use and benefit from a fully automated Internet-delivered CBT-I program, even without caregiving-specific tailoring. Further rigorous research is needed to better understand whether and how program modifications may allow more caregivers to initiate and engage with this program.\u0000","PeriodicalId":73915,"journal":{"name":"Journal of psychosocial oncology research and practice","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140767284","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-04-01DOI: 10.1097/or9.0000000000000130
Joanna E Fardell, Clarissa E Schilstra, Jemima Hikila, Daisy E. Collins, L. Kelada, S. Lah, Richard J. Cohn, Claire E. Wakefield, Sarah J. Ellis
Childhood cancer survivors can face social difficulties on return to school after treatment. One such difficulty with significant consequences is bullying. This study aimed to describe the experiences of bullying among survivors of childhood cancer. We recruited survivors aged 8–25 years, 1–10 years posttreatment and their parents. Participants completed a survey, and we conducted semistructured interviews about their experiences with bullying and other social experiences on return to school or work. A total of 73 survivors (52 children/adolescents and 21 young adults) and 61 parents (including 47 survivor-parent dyads) participated in a questionnaire. Nine survivors and 16 parents completed interviews. A large proportion of survivors experienced some form of bullying (44%) on survey, and one survivor and 7 parents reported experiencing some form of bullying during interview. There was low agreement between survivor self-reports and parent reports of bullying, with survivors more commonly reporting experiencing bullying. Bullying commonly included verbal teasing or social exclusion. Survivors and parents that reported bullying resulted from peer misunderstanding regarding survivors' physical or psychological differences or from survivors' poor social competence. Having proactive parents and close friendships were protective. Programs that increased peer understanding, facilitated friendships and directly targeted bullying reduced or prevented bullying of survivors. A significant proportion of young survivors experienced bullying on return to school which was associated with poor social and emotional functioning. A coordinated approach between young survivors, their families, treating team and school, combined with opportunities for socialization and peer education, is needed to reduce bullying.
{"title":"Survivors of child and adolescent cancer experiences of bullying at school or work: self-report and parent proxy report","authors":"Joanna E Fardell, Clarissa E Schilstra, Jemima Hikila, Daisy E. Collins, L. Kelada, S. Lah, Richard J. Cohn, Claire E. Wakefield, Sarah J. Ellis","doi":"10.1097/or9.0000000000000130","DOIUrl":"https://doi.org/10.1097/or9.0000000000000130","url":null,"abstract":"\u0000 \u0000 \u0000 Childhood cancer survivors can face social difficulties on return to school after treatment. One such difficulty with significant consequences is bullying. This study aimed to describe the experiences of bullying among survivors of childhood cancer.\u0000 \u0000 \u0000 \u0000 We recruited survivors aged 8–25 years, 1–10 years posttreatment and their parents. Participants completed a survey, and we conducted semistructured interviews about their experiences with bullying and other social experiences on return to school or work.\u0000 \u0000 \u0000 \u0000 A total of 73 survivors (52 children/adolescents and 21 young adults) and 61 parents (including 47 survivor-parent dyads) participated in a questionnaire. Nine survivors and 16 parents completed interviews. A large proportion of survivors experienced some form of bullying (44%) on survey, and one survivor and 7 parents reported experiencing some form of bullying during interview. There was low agreement between survivor self-reports and parent reports of bullying, with survivors more commonly reporting experiencing bullying. Bullying commonly included verbal teasing or social exclusion. Survivors and parents that reported bullying resulted from peer misunderstanding regarding survivors' physical or psychological differences or from survivors' poor social competence. Having proactive parents and close friendships were protective. Programs that increased peer understanding, facilitated friendships and directly targeted bullying reduced or prevented bullying of survivors.\u0000 \u0000 \u0000 \u0000 A significant proportion of young survivors experienced bullying on return to school which was associated with poor social and emotional functioning. A coordinated approach between young survivors, their families, treating team and school, combined with opportunities for socialization and peer education, is needed to reduce bullying.\u0000","PeriodicalId":73915,"journal":{"name":"Journal of psychosocial oncology research and practice","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140756104","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-01-01DOI: 10.1097/or9.0000000000000126
Shinichi Goto, Yuki Itani, M. Fujimori, M. Okamura, K. Obama, Ayako Sato, Yosuke Uchitomi
Adolescent and young adult (AYA) cancer survivors often face unique work-related challenges and poor health-related quality of life (HRQOL). This study aimed to (1) assess work-related changes after cancer diagnosis in AYA cancer survivors and (2) explore the association between work-related changes and HRQOL. In a cross-sectional web-based survey, AYA cancer survivors were assessed for work-related changes after cancer diagnosis and their HRQOL using the EuroQoL 5-Dimension 5-Level scale (EQ-5D-5L). The percentage of AYA cancer survivors who had experienced work-related changes was calculated. Multiple regression analysis was used to examine the association between EQ-5D-5L scores and work-related changes, demographics, and clinical variables. The participants were 206 AYA cancer survivors (180 women) with a mean age of 33.7 years (SD 4.3, range: 22–39 years). Among them, 115 (56%) had experienced work-related changes, including 53 (25.7%) who had quit their jobs after their cancer diagnosis. The EQ-5D-5L score (mean: 0.79) was lower in the AYA cancer survivors than in the general population. Moreover, AYA cancer survivors who experienced work-related changes had significantly lower EQ-5D-5L scores compared with AYA cancer survivors who did not (0.75 vs 0.84, P < .001). Multiple regression analyses indicated that lower income, reduced working hours, and lower performance status, as measured by the Eastern Cooperative Oncology Group Scale, were associated with lower EQ-5D-5L scores. More than half of the AYA cancer survivors reported work-related changes and had lower HRQOL. Identifying potential interventions supporting AYA cancer survivors with low physical and financial status may be useful for improving their HRQOL.
{"title":"Impact of work-related changes on health-related quality of life in adolescent and young adult cancer survivors","authors":"Shinichi Goto, Yuki Itani, M. Fujimori, M. Okamura, K. Obama, Ayako Sato, Yosuke Uchitomi","doi":"10.1097/or9.0000000000000126","DOIUrl":"https://doi.org/10.1097/or9.0000000000000126","url":null,"abstract":"\u0000 \u0000 \u0000 Adolescent and young adult (AYA) cancer survivors often face unique work-related challenges and poor health-related quality of life (HRQOL). This study aimed to (1) assess work-related changes after cancer diagnosis in AYA cancer survivors and (2) explore the association between work-related changes and HRQOL.\u0000 \u0000 \u0000 \u0000 In a cross-sectional web-based survey, AYA cancer survivors were assessed for work-related changes after cancer diagnosis and their HRQOL using the EuroQoL 5-Dimension 5-Level scale (EQ-5D-5L). The percentage of AYA cancer survivors who had experienced work-related changes was calculated. Multiple regression analysis was used to examine the association between EQ-5D-5L scores and work-related changes, demographics, and clinical variables.\u0000 \u0000 \u0000 \u0000 The participants were 206 AYA cancer survivors (180 women) with a mean age of 33.7 years (SD 4.3, range: 22–39 years). Among them, 115 (56%) had experienced work-related changes, including 53 (25.7%) who had quit their jobs after their cancer diagnosis. The EQ-5D-5L score (mean: 0.79) was lower in the AYA cancer survivors than in the general population. Moreover, AYA cancer survivors who experienced work-related changes had significantly lower EQ-5D-5L scores compared with AYA cancer survivors who did not (0.75 vs 0.84, P < .001). Multiple regression analyses indicated that lower income, reduced working hours, and lower performance status, as measured by the Eastern Cooperative Oncology Group Scale, were associated with lower EQ-5D-5L scores.\u0000 \u0000 \u0000 \u0000 More than half of the AYA cancer survivors reported work-related changes and had lower HRQOL. Identifying potential interventions supporting AYA cancer survivors with low physical and financial status may be useful for improving their HRQOL.\u0000","PeriodicalId":73915,"journal":{"name":"Journal of psychosocial oncology research and practice","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140518092","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-01-01DOI: 10.1097/or9.0000000000000124
Rosario Costas-Muñiz, M. F. Montaña, L. Ruda-Santolaria, J. Sánchez-Ramírez, N. Torres-Blasco, Eida M Castro-Figueroa, Loida Esenarro, O. Galindo-Vázquez, Cristiane Bergerot, M. Claros, Bharat Narang, Jackie Finik, F. Gany, W. Breitbart
Latino people with cancer might face additional health, emotional, and socioeconomic burdens of the COVID-19 pandemic. This study included data from two waves of (independent) assessments with providers of mental health services to Latino/Hispanic people with cancer from the United States, Spain, and Latin America (first wave: May–July 2020; second wave: March–July 2021) who completed a cross-sectional online survey with open-ended and closed-ended questions, including concerns of people with cancer with/without COVID-19. The response rates were 15% for Wave 1 (N = 88) and 14% for Wave 2 (N = 115). For Wave 1, 74 surveys were completed by clinicians and included in the analyses; for Wave 2, 115 surveys were included. Providers (first [77%] and second [84%] waves) reported that most patients had concerns about stress/symptoms of anxiety, followed by concerns about COVID-19 exposure (first [74%] and second [82%] waves) and family members' exposure (second wave 75%), hospital visits or appointments (82%, 79%, respectively), treatment/testing delays (69%, 72%, respectively), general health (58%, 71%, respectively), and income/salary loss or reduction (60%, 50%, respectively). According to providers, concerns of patients diagnosed with COVID-19 included fear of death and dying, spreading the disease, getting worse, and lack of appropriate medical care. Our findings reveal the need to address health, emotional, and socioeconomic burdens of the COVID-19 pandemic throughout Latin America, Spain, and the United States for Latino people with cancer. Interventions targeting the health care access, emotional, and socioeconomic needs of Latino people with cancer are warranted.
{"title":"COVID-19 pandemic–related emotional, social, and medical concerns of Latino patients with cancer: perspectives of mental health providers","authors":"Rosario Costas-Muñiz, M. F. Montaña, L. Ruda-Santolaria, J. Sánchez-Ramírez, N. Torres-Blasco, Eida M Castro-Figueroa, Loida Esenarro, O. Galindo-Vázquez, Cristiane Bergerot, M. Claros, Bharat Narang, Jackie Finik, F. Gany, W. Breitbart","doi":"10.1097/or9.0000000000000124","DOIUrl":"https://doi.org/10.1097/or9.0000000000000124","url":null,"abstract":"\u0000 \u0000 \u0000 Latino people with cancer might face additional health, emotional, and socioeconomic burdens of the COVID-19 pandemic.\u0000 \u0000 \u0000 \u0000 This study included data from two waves of (independent) assessments with providers of mental health services to Latino/Hispanic people with cancer from the United States, Spain, and Latin America (first wave: May–July 2020; second wave: March–July 2021) who completed a cross-sectional online survey with open-ended and closed-ended questions, including concerns of people with cancer with/without COVID-19.\u0000 \u0000 \u0000 \u0000 The response rates were 15% for Wave 1 (N = 88) and 14% for Wave 2 (N = 115). For Wave 1, 74 surveys were completed by clinicians and included in the analyses; for Wave 2, 115 surveys were included. Providers (first [77%] and second [84%] waves) reported that most patients had concerns about stress/symptoms of anxiety, followed by concerns about COVID-19 exposure (first [74%] and second [82%] waves) and family members' exposure (second wave 75%), hospital visits or appointments (82%, 79%, respectively), treatment/testing delays (69%, 72%, respectively), general health (58%, 71%, respectively), and income/salary loss or reduction (60%, 50%, respectively). According to providers, concerns of patients diagnosed with COVID-19 included fear of death and dying, spreading the disease, getting worse, and lack of appropriate medical care.\u0000 \u0000 \u0000 \u0000 Our findings reveal the need to address health, emotional, and socioeconomic burdens of the COVID-19 pandemic throughout Latin America, Spain, and the United States for Latino people with cancer. Interventions targeting the health care access, emotional, and socioeconomic needs of Latino people with cancer are warranted.\u0000","PeriodicalId":73915,"journal":{"name":"Journal of psychosocial oncology research and practice","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140524769","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-01-01DOI: 10.1097/or9.0000000000000127
L. M. Wijnhoven, Linda van Zutphen, J. Custers, F. E. van Beek, K. Holtmaat, F. Jansen, Irma M. Verdonck-de Leeuw, L. Kwakkenbos, Judith B Prins
The aim of this study was to evaluate the adherence, interrater agreement, and content of a guideline-based semistructured interview for adjustment disorder (AD) in patients with cancer. In total, 120 AD interviews with patients with cancer were performed by 9 trained psychologists. The interview contained topics related to stressors, resilience, and symptoms and complaints. Audiotaped interviews of 72 patients were available. Adherence to the interview manual was scored by two researchers independently, and the average adherence was calculated per topic. Interrater agreement was calculated using Cohen's Kappa. The content of the interviews was evaluated using thematic analysis of the transcribed interviews of patients with an AD diagnosis. In the interviews, 97% of the topics were covered at least briefly and 78% of all topics were addressed at least adequately. Interviewers asked questions regarding stressors and symptoms and complaints more thoroughly compared with resilience. The interrater agreement regarding the AD diagnosis was moderate (Kappa 0.55). The content analysis showed that stressors and resilience can be additionally specified into physical, psychological, spiritual, and social themes, which are relevant to explore in the context of an AD diagnosis after cancer. The guideline-based interview for AD identifies problems and protective factors with adequate adherence and moderate agreement. A balanced investigation of stressors, resilience, and symptoms is important for optimal clinical decision-making regarding AD in the context of cancer.
{"title":"Diagnosing adjustment disorder in patients with cancer: evaluation of the adherence, interrater agreement, and content of a guideline-based interview","authors":"L. M. Wijnhoven, Linda van Zutphen, J. Custers, F. E. van Beek, K. Holtmaat, F. Jansen, Irma M. Verdonck-de Leeuw, L. Kwakkenbos, Judith B Prins","doi":"10.1097/or9.0000000000000127","DOIUrl":"https://doi.org/10.1097/or9.0000000000000127","url":null,"abstract":"\u0000 \u0000 \u0000 The aim of this study was to evaluate the adherence, interrater agreement, and content of a guideline-based semistructured interview for adjustment disorder (AD) in patients with cancer.\u0000 \u0000 \u0000 \u0000 In total, 120 AD interviews with patients with cancer were performed by 9 trained psychologists. The interview contained topics related to stressors, resilience, and symptoms and complaints. Audiotaped interviews of 72 patients were available. Adherence to the interview manual was scored by two researchers independently, and the average adherence was calculated per topic. Interrater agreement was calculated using Cohen's Kappa. The content of the interviews was evaluated using thematic analysis of the transcribed interviews of patients with an AD diagnosis.\u0000 \u0000 \u0000 \u0000 In the interviews, 97% of the topics were covered at least briefly and 78% of all topics were addressed at least adequately. Interviewers asked questions regarding stressors and symptoms and complaints more thoroughly compared with resilience. The interrater agreement regarding the AD diagnosis was moderate (Kappa 0.55). The content analysis showed that stressors and resilience can be additionally specified into physical, psychological, spiritual, and social themes, which are relevant to explore in the context of an AD diagnosis after cancer.\u0000 \u0000 \u0000 \u0000 The guideline-based interview for AD identifies problems and protective factors with adequate adherence and moderate agreement. A balanced investigation of stressors, resilience, and symptoms is important for optimal clinical decision-making regarding AD in the context of cancer.\u0000","PeriodicalId":73915,"journal":{"name":"Journal of psychosocial oncology research and practice","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140519785","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-01-01DOI: 10.1097/or9.0000000000000123
Claire Cooper, J. Gilchrist, L. Beatty, L. Kirsten, Louise Sharpe, Nienke Zomerdijk, Maree Grier, Jane Turner, Kim Hobbs, H. Haydon, Haryana Dhillon, B. Kelly, Joanne Shaw
In response to COVID-19, psycho-oncology clinicians moved to a model of telephone and videoconference treatment in Australia. The Psycho-oncology Co-operative Research Group (PoCoG) identified a paucity of evidence available to guide adaptation of therapy for remote delivery. This research aimed to develop consensus for evidence-based guidelines on ways to adapt psychological therapies in psycho-oncology for remote delivery. A national expert advisory group (N = 11) was convened consisting of psycho-oncology clinicians and clinical researchers. An iterative codesign methodology was used to draft psycho-oncology telehealth guidelines. Australian psycho-oncology clinicians participated in a Delphi consensus process to guide the content included in the guidelines. Content was presented under six domains: (i) screening and outcome measures, (ii) formulation, (iii) safety considerations, (iv) resource adaptation, (v) adaptations to therapy, and (vi) example case studies. Participants rated items based on importance, therapeutic appropriateness, and/or usefulness. Consensus was defined as >80% agreement. Thirty-two psycho-oncology clinicians with telehealth experience participated in three Delphi rounds. Agreement was reached on (i) the importance of including screening and outcome measures (90%) and items (n = 5) related to how best to facilitate this; (ii) the importance of addressing provision of a formulation (100%), although only 2/6 strategies presented to facilitate formulation reached consensus; (iii) the appropriateness of proposed risk assessment and management strategies (84%); (iv) therapeutic appropriateness of simplifying resources (100%), including 3/5 visual optimization strategies; and (v) common behavioral components of therapy (n=5). Providing guidance to psycho-oncology clinicians for integrating telehealth into routine clinical practice must go beyond logistical considerations. These consensus-based guidelines provide support to clinicians for adaptation of psycho-oncology therapy to telehealth and will ensure evidence-based practice.
{"title":"Development of psycho-oncology telehealth guidelines: a modified Delphi consensus study","authors":"Claire Cooper, J. Gilchrist, L. Beatty, L. Kirsten, Louise Sharpe, Nienke Zomerdijk, Maree Grier, Jane Turner, Kim Hobbs, H. Haydon, Haryana Dhillon, B. Kelly, Joanne Shaw","doi":"10.1097/or9.0000000000000123","DOIUrl":"https://doi.org/10.1097/or9.0000000000000123","url":null,"abstract":"\u0000 \u0000 \u0000 In response to COVID-19, psycho-oncology clinicians moved to a model of telephone and videoconference treatment in Australia. The Psycho-oncology Co-operative Research Group (PoCoG) identified a paucity of evidence available to guide adaptation of therapy for remote delivery. This research aimed to develop consensus for evidence-based guidelines on ways to adapt psychological therapies in psycho-oncology for remote delivery.\u0000 \u0000 \u0000 \u0000 A national expert advisory group (N = 11) was convened consisting of psycho-oncology clinicians and clinical researchers. An iterative codesign methodology was used to draft psycho-oncology telehealth guidelines. Australian psycho-oncology clinicians participated in a Delphi consensus process to guide the content included in the guidelines. Content was presented under six domains: (i) screening and outcome measures, (ii) formulation, (iii) safety considerations, (iv) resource adaptation, (v) adaptations to therapy, and (vi) example case studies. Participants rated items based on importance, therapeutic appropriateness, and/or usefulness. Consensus was defined as >80% agreement.\u0000 \u0000 \u0000 \u0000 Thirty-two psycho-oncology clinicians with telehealth experience participated in three Delphi rounds. Agreement was reached on (i) the importance of including screening and outcome measures (90%) and items (n = 5) related to how best to facilitate this; (ii) the importance of addressing provision of a formulation (100%), although only 2/6 strategies presented to facilitate formulation reached consensus; (iii) the appropriateness of proposed risk assessment and management strategies (84%); (iv) therapeutic appropriateness of simplifying resources (100%), including 3/5 visual optimization strategies; and (v) common behavioral components of therapy (n=5).\u0000 \u0000 \u0000 \u0000 Providing guidance to psycho-oncology clinicians for integrating telehealth into routine clinical practice must go beyond logistical considerations. These consensus-based guidelines provide support to clinicians for adaptation of psycho-oncology therapy to telehealth and will ensure evidence-based practice.\u0000","PeriodicalId":73915,"journal":{"name":"Journal of psychosocial oncology research and practice","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140524283","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-10-01DOI: 10.1097/or9.0000000000000118
Isaiah Gitonga, Clifton P. Thornton, Fiona Schulte, Michael Jefford, Yvonne Luigjes-Huizer, Kathy Ruble
Abstract Background: Advancements in cancer treatments have enabled more people worldwide to survive cancer, but many experience lasting impacts. The International Psycho-Oncology Society (IPOS) is a global professional organization which hosts an annual World Congress. This study reviewed survivorship content from the World Congress meetings to understand areas of focus, apparent strengths and weaknesses, and global representation. Methods: Peer-reviewed abstracts presented in 2017, 2018, 2019, and 2021 were reviewed. Abstracts were identified by searching for “survivor.” Identified abstracts were read in full to extract content of interest (population of interest, cancer type, number of participants, study design, study topic, first author/country, and international collaboration). Coding was defined a priori. Data were extracted using REDCap. Inter-rater reliability checks were performed. Results: A total of 1813 abstracts were identified and reviewed. The proportion of survivorship-focused abstracts ranged from 13.2%–20.7% annually. Breast cancer dominated survivorship work. The most frequently addressed topics included distress/anxiety/depression (36.6%), quality of life (28.6%), and health behaviors (15.5%). Nearly three-quarters (73%) of abstracts focused on adult populations, and there was apparent international collaboration in 12%–20%. Authorships and abstracts were primarily from high-income countries (91%). Most studies were observational (44%); few were randomized controlled trials (4%). Conclusions: This study found overrepresentation of authorship from some countries. Many topics, patient populations, and countries were not highly represented. IPOS might consider efforts to remedy this imbalance with the ultimate goal of improving psychosocial care for those affected by cancer, globally.
{"title":"Survivorship representation at IPOS World Congress: abstract review and analysis","authors":"Isaiah Gitonga, Clifton P. Thornton, Fiona Schulte, Michael Jefford, Yvonne Luigjes-Huizer, Kathy Ruble","doi":"10.1097/or9.0000000000000118","DOIUrl":"https://doi.org/10.1097/or9.0000000000000118","url":null,"abstract":"Abstract Background: Advancements in cancer treatments have enabled more people worldwide to survive cancer, but many experience lasting impacts. The International Psycho-Oncology Society (IPOS) is a global professional organization which hosts an annual World Congress. This study reviewed survivorship content from the World Congress meetings to understand areas of focus, apparent strengths and weaknesses, and global representation. Methods: Peer-reviewed abstracts presented in 2017, 2018, 2019, and 2021 were reviewed. Abstracts were identified by searching for “survivor.” Identified abstracts were read in full to extract content of interest (population of interest, cancer type, number of participants, study design, study topic, first author/country, and international collaboration). Coding was defined a priori. Data were extracted using REDCap. Inter-rater reliability checks were performed. Results: A total of 1813 abstracts were identified and reviewed. The proportion of survivorship-focused abstracts ranged from 13.2%–20.7% annually. Breast cancer dominated survivorship work. The most frequently addressed topics included distress/anxiety/depression (36.6%), quality of life (28.6%), and health behaviors (15.5%). Nearly three-quarters (73%) of abstracts focused on adult populations, and there was apparent international collaboration in 12%–20%. Authorships and abstracts were primarily from high-income countries (91%). Most studies were observational (44%); few were randomized controlled trials (4%). Conclusions: This study found overrepresentation of authorship from some countries. Many topics, patient populations, and countries were not highly represented. IPOS might consider efforts to remedy this imbalance with the ultimate goal of improving psychosocial care for those affected by cancer, globally.","PeriodicalId":73915,"journal":{"name":"Journal of psychosocial oncology research and practice","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136198946","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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