W. van Staden, A. Nienaber, T. Rossouw, A. Turner, C. Filmalter, A. E. Mercier, J. Nel, B. Bapela, M. Beetge, R. Blumenthal, C. Castelyn, T. D. de Witt, A. G. Dlagnekova, C. Kotzé, J. Mangwane, L. Napoles, R. Sommers, L. Sykes, W. B. Van Zyl, M. Venter, A. Uys, N. Warren
{"title":"健康研究中的种族问题:研究人员和研究伦理委员会的考虑","authors":"W. van Staden, A. Nienaber, T. Rossouw, A. Turner, C. Filmalter, A. E. Mercier, J. Nel, B. Bapela, M. Beetge, R. Blumenthal, C. Castelyn, T. D. de Witt, A. G. Dlagnekova, C. Kotzé, J. Mangwane, L. Napoles, R. Sommers, L. Sykes, W. B. Van Zyl, M. Venter, A. Uys, N. Warren","doi":"10.7196/sajbl.2023.v16i1.440","DOIUrl":null,"url":null,"abstract":"\n\n\n\nThis article provides ethical guidance on using race in health research as a variable or in defining the study population. To this end, a plain, non-exhaustive checklist is provided for researchers and research ethics committees, preceded by a brief introduction on the need for justification when using race as a variable or in defining a study population, the problem of exoticism, that distinctions pertain between race, ethnicity and ancestry, the problematic naming of races, and that race does not serve well as a presumed biological construct in genetic research.\n\n\n\n","PeriodicalId":43498,"journal":{"name":"South African Journal of Bioethics and Law","volume":" ","pages":""},"PeriodicalIF":0.5000,"publicationDate":"2023-05-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Race in health research: Considerations for researchers and research ethics committees\",\"authors\":\"W. van Staden, A. Nienaber, T. Rossouw, A. Turner, C. Filmalter, A. E. Mercier, J. Nel, B. Bapela, M. Beetge, R. Blumenthal, C. Castelyn, T. D. de Witt, A. G. Dlagnekova, C. Kotzé, J. Mangwane, L. Napoles, R. Sommers, L. Sykes, W. B. Van Zyl, M. Venter, A. Uys, N. Warren\",\"doi\":\"10.7196/sajbl.2023.v16i1.440\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"\\n\\n\\n\\nThis article provides ethical guidance on using race in health research as a variable or in defining the study population. To this end, a plain, non-exhaustive checklist is provided for researchers and research ethics committees, preceded by a brief introduction on the need for justification when using race as a variable or in defining a study population, the problem of exoticism, that distinctions pertain between race, ethnicity and ancestry, the problematic naming of races, and that race does not serve well as a presumed biological construct in genetic research.\\n\\n\\n\\n\",\"PeriodicalId\":43498,\"journal\":{\"name\":\"South African Journal of Bioethics and Law\",\"volume\":\" \",\"pages\":\"\"},\"PeriodicalIF\":0.5000,\"publicationDate\":\"2023-05-08\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"South African Journal of Bioethics and Law\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.7196/sajbl.2023.v16i1.440\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q4\",\"JCRName\":\"MEDICAL ETHICS\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"South African Journal of Bioethics and Law","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.7196/sajbl.2023.v16i1.440","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"MEDICAL ETHICS","Score":null,"Total":0}
Race in health research: Considerations for researchers and research ethics committees
This article provides ethical guidance on using race in health research as a variable or in defining the study population. To this end, a plain, non-exhaustive checklist is provided for researchers and research ethics committees, preceded by a brief introduction on the need for justification when using race as a variable or in defining a study population, the problem of exoticism, that distinctions pertain between race, ethnicity and ancestry, the problematic naming of races, and that race does not serve well as a presumed biological construct in genetic research.