智力和发育障碍者的自我决定和生活质量:过去、现在和未来的密切研究路径

IF 2.5 4区 医学 Q2 HEALTH POLICY & SERVICES Journal of Policy and Practice in Intellectual Disabilities Pub Date : 2023-05-26 DOI:10.1111/jppi.12460
Cristina Mumbardó-Adam, Eva Vicente, Giulia Balboni
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引用次数: 0

摘要

近几十年来,智力和发育障碍领域的研究以自我决定和生活质量为目标。生活质量已在各种理论框架内得到广泛研究。它被用来指导在日常生活中提供适当的支持。此外,大量的科学文献都把重点放在自我决定本身作为一种建构的理论和实践基础上。为了了解自我决定如何成为生活质量范式中一个重要的辅助概念,本简要报告将揭示每种建构(生活质量和自我决定)所体现的互补而又独特的作用。此外,我们还讨论了自决在科学文献中的作用以及在智力和发育障碍人士生活质量中的作用,并反思了这两个研究方向如何能够趋于一致,并从一个共同的方法出发进行调整。目的是促使人们关注未来研究发展的领域,以加强对生活质量和自决概念的理解。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

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Self-determination and quality of life of people with intellectual and developmental disabilities: Past, present, and future of close research paths

In recent decades, research in the field of intellectual and developmental disabilities has targeted self-determination and quality of life constructs. Quality of life has been extensively studied within various theoretical frameworks. It has been used to guide the provision of appropriate support in daily life. In addition, a vast body of scientific literature has focused on the theoretical and practical underpinnings of self-determination as a construct in itself. To understand how self-determination is an essential supporting concept in the quality of life paradigm, this brief report unravels the complementary but unique role that each construct (quality of life and self-determination) embodies. Furthermore, we discuss the role of self-determination in the scientific literature and in the quality of life of people with intellectual and developmental disabilities, reflecting on how both lines of research can converge and be aligned from a common approach. The aim is to drive attention to areas of future research development that strengthen understanding of quality of life and the self-determination construct.

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来源期刊
CiteScore
4.10
自引率
5.90%
发文量
38
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