共济失调和我——生活在神经系统中

IF 1.9 2区 社会学 Q2 REHABILITATION Disability & Society Pub Date : 2022-04-09 DOI:10.1080/09687599.2022.2034110
Tallulah Clark
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引用次数: 0

摘要

摘要从本质上讲,“神经多样性”一词促进了生物多样性的概念,即神经认知功能的奇妙领域。为什么一种旨在庆祝和表达神经多样性群体成员声音的范式表面上让那些患有罕见疾病的人沉默了?患有罕见的神经系统疾病通常本质上意味着与那些患有更常见疾病的人一起生活在神经多样性的社区中,但同时又截然相反。更不常见和被误解的表现往往被妖魔化和谴责,因为它们偏离了社会认为的正常。由于缺乏对共济失调等其他神经系统疾病的认识,神经多样性群体仅限于那些患有更普遍和更容易理解的疾病的人。这篇文章质疑神经多样性群体中存在的等级制度,强调它如何经常加剧那些患有罕见疾病的人的不足感和羞耻感。
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Ataxia and me – living within a neurological hierarchy
Abstract By its very nature, the term Neurodiversity promotes the concept of biodiversity, the wonderful realm of neurocognitive functioning. Why is it that a paradigm that sets out to celebrate and give voice to those belonging to the neurodiverse community ostensibly silences those with rarer conditions? Having a rare neurological condition often intrinsically means living within the neurodiverse community alongside those with more prevalent ailments yet simultaneously living diametrically opposed. More uncommon and misunderstood manifestations are often demonised and condemned as they deviate from what society deems as normal. The neurodiverse community has been limited to those with more prevalent and understood illnesses due to a lack of awareness surrounding other neurological disorders such as ataxia. This article questions the presence of a hierarchy within the neurodiverse community highlighting how it can often exacerbate feelings of inadequacy and shame for those with rarer conditions.
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来源期刊
CiteScore
5.50
自引率
12.50%
发文量
109
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