Pub Date : 2024-01-02DOI: 10.1080/09687599.2022.2070060
Colleen M. Peterson, Robyn W. Birkeland, Sara Barsel, Tamara L. Statz, Joseph E Gaugler, Jessica M. Finlay
Abstract Persons living with dementia continue to desire and need air travel. This study gives voice to the current lived experiences of persons with dementia and their caregiving travel companions using U.S. airports. Forty-eight persons living with dementia and 176 travel companions shared information about themselves and their airport experiences through a web-survey. Results identified common challenges and ways in which U.S. airports could be improved to better serve persons living with dementia and their travel companions. Anxiety, understanding signs and announcements, and getting lost or separated were primary travel concerns. Participants detailed themes of frustration with security and locating family restrooms or quiet spaces. Many are unaware of the services available to assist travelers. Among other recommendations, participants suggested staff training on hidden disabilities to improve air travel experiences. Results inform ongoing efforts to develop dementia-friendly airports and support continuing independence and quality of life. Points of interest This study surveyed the air travel experiences of persons living with dementia and their travel companions to understand how going through the airport can be made more comfortable for them. Primary concerns voiced by the participants were anxiety and frustration at security, trouble finding their way around the airport, and not enough quiet spaces or family bathrooms. Participants shared that better staff training, hidden disability badges, and more wheelchair or electric cart services could help travelers like them and other persons living with disabilities. Airport updates that reduce noise and add more family bathrooms can make airport travel better for persons living with dementia and their travel companions. This paper shows how persons living with dementia and their travel companions’ could be more comfortable in public spaces like airports if we use their experiences and opinions to make improvements.
{"title":"‘Sick with stress’: perspectives on airport travel from persons living with dementia and their travel companions","authors":"Colleen M. Peterson, Robyn W. Birkeland, Sara Barsel, Tamara L. Statz, Joseph E Gaugler, Jessica M. Finlay","doi":"10.1080/09687599.2022.2070060","DOIUrl":"https://doi.org/10.1080/09687599.2022.2070060","url":null,"abstract":"Abstract Persons living with dementia continue to desire and need air travel. This study gives voice to the current lived experiences of persons with dementia and their caregiving travel companions using U.S. airports. Forty-eight persons living with dementia and 176 travel companions shared information about themselves and their airport experiences through a web-survey. Results identified common challenges and ways in which U.S. airports could be improved to better serve persons living with dementia and their travel companions. Anxiety, understanding signs and announcements, and getting lost or separated were primary travel concerns. Participants detailed themes of frustration with security and locating family restrooms or quiet spaces. Many are unaware of the services available to assist travelers. Among other recommendations, participants suggested staff training on hidden disabilities to improve air travel experiences. Results inform ongoing efforts to develop dementia-friendly airports and support continuing independence and quality of life. Points of interest This study surveyed the air travel experiences of persons living with dementia and their travel companions to understand how going through the airport can be made more comfortable for them. Primary concerns voiced by the participants were anxiety and frustration at security, trouble finding their way around the airport, and not enough quiet spaces or family bathrooms. Participants shared that better staff training, hidden disability badges, and more wheelchair or electric cart services could help travelers like them and other persons living with disabilities. Airport updates that reduce noise and add more family bathrooms can make airport travel better for persons living with dementia and their travel companions. This paper shows how persons living with dementia and their travel companions’ could be more comfortable in public spaces like airports if we use their experiences and opinions to make improvements.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"22 12","pages":"234 - 254"},"PeriodicalIF":2.4,"publicationDate":"2024-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139452404","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-26DOI: 10.1080/09687599.2022.2065463
S. Tesemma, Susanna Coetzee
Abstract In this article, we investigated dominant manifestations of spatial exclusion and inclusion of people with disabilities in Africa. Manifestations of spatial exclusion include: design that create inaccessible spaces; socially constructed spatialisation that prevents people with disabilities from using and enjoying spaces in the same way as people without disabilities and harmful cultural practices, like concealment and institutionalisation. Spatial inclusion is promoted through law and policy in support of universal design, inclusive urban development, elimination of concealment and deinstitutionalisation. The authors argue that there are signs of positive progress towards spatial inclusion, but that problems that impede the implementation of progressive laws, policies and practices will have to be dealt with to ensure spatial inclusion for people with disabilities in Africa. Points of Interest: The human rights disability model supports communities which value accessibility of all spaces to all. Accessibility is more than physical access; it is also allowing all people the full use and enjoyment of a space. Despite laws, policies and practices that support spatial inclusion, the built environment is mostly inaccessible to people with disabilities in Africa. Concealment, a reality in many African countries, is a harmful cultural practice that is spatially disabling. Spatial inclusion of people with disabilities can be realised with a greater commitment to all-inclusive design, avoiding placement of people with disabilities in mental and psychiatric institutions, developing accessible urban spaces and better implementation of laws and policies.
{"title":"Manifestations of spatial exclusion and inclusion of people with disabilities in Africa","authors":"S. Tesemma, Susanna Coetzee","doi":"10.1080/09687599.2022.2065463","DOIUrl":"https://doi.org/10.1080/09687599.2022.2065463","url":null,"abstract":"Abstract In this article, we investigated dominant manifestations of spatial exclusion and inclusion of people with disabilities in Africa. Manifestations of spatial exclusion include: design that create inaccessible spaces; socially constructed spatialisation that prevents people with disabilities from using and enjoying spaces in the same way as people without disabilities and harmful cultural practices, like concealment and institutionalisation. Spatial inclusion is promoted through law and policy in support of universal design, inclusive urban development, elimination of concealment and deinstitutionalisation. The authors argue that there are signs of positive progress towards spatial inclusion, but that problems that impede the implementation of progressive laws, policies and practices will have to be dealt with to ensure spatial inclusion for people with disabilities in Africa. Points of Interest: The human rights disability model supports communities which value accessibility of all spaces to all. Accessibility is more than physical access; it is also allowing all people the full use and enjoyment of a space. Despite laws, policies and practices that support spatial inclusion, the built environment is mostly inaccessible to people with disabilities in Africa. Concealment, a reality in many African countries, is a harmful cultural practice that is spatially disabling. Spatial inclusion of people with disabilities can be realised with a greater commitment to all-inclusive design, avoiding placement of people with disabilities in mental and psychiatric institutions, developing accessible urban spaces and better implementation of laws and policies.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"15 1","pages":"1934 - 1957"},"PeriodicalIF":2.4,"publicationDate":"2023-11-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139235678","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-26DOI: 10.1080/09687599.2022.2045188
Shixin Huang
Abstract This study examines the evolution and development of two collective care networks formed by and for people with disabilities and their family members during the COVID-19 outbreak in China. Inspired by the feminist disability studies approach to the ethics of care, I traced the interdependent moment in which people with disabilities, their family members, and non-disabled allies were connected in response to the tragic death of a 16-year-old teenager with severe cerebral palsy for the lack of care. This tragedy painfully exemplified the vulnerability of families of disabled people, as well as a care system that disproportionally allocated the care responsibility on the family; it also turned into emotional power that nurtured the emergence of two care networks that provide collective support to families of disabled people, organize the community, as well as generate public, political appeals of policies and legislation surrounding disability care. Points of interest This article pays attention to two collective care networks formed by and for people with disabilities and their family members following the tragic death of a young man with severe disabilities for the lack of care in China’s COVID-19 outbreak. The collective care networks provided collective, social support to families of disabled people, organized the community, as well as generated public, political appeals of policies and legislation surrounding disability care. This article calls for the value of interdependence and the social, collective responsibility of disability care. This article calls for an emancipatory research agenda in Disability Studies to include the study of care through a cross-cultural perspective, and vice versa.
{"title":"Activating disability care: the formation of collective disability care networks in China’s COVID-19 outbreak","authors":"Shixin Huang","doi":"10.1080/09687599.2022.2045188","DOIUrl":"https://doi.org/10.1080/09687599.2022.2045188","url":null,"abstract":"Abstract This study examines the evolution and development of two collective care networks formed by and for people with disabilities and their family members during the COVID-19 outbreak in China. Inspired by the feminist disability studies approach to the ethics of care, I traced the interdependent moment in which people with disabilities, their family members, and non-disabled allies were connected in response to the tragic death of a 16-year-old teenager with severe cerebral palsy for the lack of care. This tragedy painfully exemplified the vulnerability of families of disabled people, as well as a care system that disproportionally allocated the care responsibility on the family; it also turned into emotional power that nurtured the emergence of two care networks that provide collective support to families of disabled people, organize the community, as well as generate public, political appeals of policies and legislation surrounding disability care. Points of interest This article pays attention to two collective care networks formed by and for people with disabilities and their family members following the tragic death of a young man with severe disabilities for the lack of care in China’s COVID-19 outbreak. The collective care networks provided collective, social support to families of disabled people, organized the community, as well as generated public, political appeals of policies and legislation surrounding disability care. This article calls for the value of interdependence and the social, collective responsibility of disability care. This article calls for an emancipatory research agenda in Disability Studies to include the study of care through a cross-cultural perspective, and vice versa.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"43 1","pages":"1826 - 1847"},"PeriodicalIF":2.4,"publicationDate":"2023-11-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139235254","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-11DOI: 10.1080/09687599.2023.2279484
Lina Masana, Fernando Vidal
AbstractEffects of COVID-19 lockdown for people with disabilities have been examined in the social and health sciences regarding both access to health and caregiving services, and their personal experiences. This article adds to such scholarship by investigating the lived experience of the lockdown in persons diagnosed with Locked-in Syndrome (LIS) by drawing on testimonies of confinement provided between March and June 2020 by members of the French Locked-in Syndrome Association (ALIS), and responses to a qualitative questionnaire during the same period by Spanish participants of our research project. Thematic analysis was performed; through inductive coding, five major themes were identified. By the time the pandemic broke out, some persons with LIS had long led a largely locked-in life. Studying their experience will allow us promote awareness of the resources needed to ensure the rights of people with disabilities and improve their quality of life and wellbeing.Points of interestThis article examines the individual experiences of confinement during the COVID-19 lockdown of persons diagnosed with Locked-in Syndrome in Spain and France.By the time the pandemic broke out, persons with Locked-in Syndrome had long led a largely locked-in life; we have called that familiarity with confinement, which somehow prepared them for coping with the COVID-19 lockdown.Despite the impact the lockdown had on the lives of persons with Locked-in Syndrome with regard to receiving care and sociability, it did not significantly change their perceptions of their overall situation.The pandemic aggravated the discrimination usually suffered by persons with disabilities, and highlighted that (as we also show) inclusion requires giving up the 'one size fits all' approach.Keywords: COVID-19confinementdisabilityLocked-in Syndromelived experienceinclusive healthcare AcknowledgmentsWe are grateful to all participants for their valuable contributions, as well as to ALIS, the French LIS Association, for its initiative to solicit and post the testimonies of its members during the initial COVID-19 lockdown. We thank in particular Véronique Blandin, the Association's director, for her help in completing the data concerning the French participants.Ethics statementThis research has been performed in accordance with the principles stated in the Declaration of Helsinki and obtained the ethical approval of the Ethics Committee of the Department of Anthropology, Philosophy and Social Work (DAFiTS), of the University of Tarragona (URV), Spain, where this research was conducted.Disclosure statementNo potential conflict of interest was reported by the author(s).Additional informationFundingThis work was supported by the Spanish Ministry of Science and Innovation under Grant PID2019-106723GB-I00.
{"title":"The lockdown of the locked-in: experiences of persons with Locked-in Syndrome during COVID-19 pandemic","authors":"Lina Masana, Fernando Vidal","doi":"10.1080/09687599.2023.2279484","DOIUrl":"https://doi.org/10.1080/09687599.2023.2279484","url":null,"abstract":"AbstractEffects of COVID-19 lockdown for people with disabilities have been examined in the social and health sciences regarding both access to health and caregiving services, and their personal experiences. This article adds to such scholarship by investigating the lived experience of the lockdown in persons diagnosed with Locked-in Syndrome (LIS) by drawing on testimonies of confinement provided between March and June 2020 by members of the French Locked-in Syndrome Association (ALIS), and responses to a qualitative questionnaire during the same period by Spanish participants of our research project. Thematic analysis was performed; through inductive coding, five major themes were identified. By the time the pandemic broke out, some persons with LIS had long led a largely locked-in life. Studying their experience will allow us promote awareness of the resources needed to ensure the rights of people with disabilities and improve their quality of life and wellbeing.Points of interestThis article examines the individual experiences of confinement during the COVID-19 lockdown of persons diagnosed with Locked-in Syndrome in Spain and France.By the time the pandemic broke out, persons with Locked-in Syndrome had long led a largely locked-in life; we have called that familiarity with confinement, which somehow prepared them for coping with the COVID-19 lockdown.Despite the impact the lockdown had on the lives of persons with Locked-in Syndrome with regard to receiving care and sociability, it did not significantly change their perceptions of their overall situation.The pandemic aggravated the discrimination usually suffered by persons with disabilities, and highlighted that (as we also show) inclusion requires giving up the 'one size fits all' approach.Keywords: COVID-19confinementdisabilityLocked-in Syndromelived experienceinclusive healthcare AcknowledgmentsWe are grateful to all participants for their valuable contributions, as well as to ALIS, the French LIS Association, for its initiative to solicit and post the testimonies of its members during the initial COVID-19 lockdown. We thank in particular Véronique Blandin, the Association's director, for her help in completing the data concerning the French participants.Ethics statementThis research has been performed in accordance with the principles stated in the Declaration of Helsinki and obtained the ethical approval of the Ethics Committee of the Department of Anthropology, Philosophy and Social Work (DAFiTS), of the University of Tarragona (URV), Spain, where this research was conducted.Disclosure statementNo potential conflict of interest was reported by the author(s).Additional informationFundingThis work was supported by the Spanish Ministry of Science and Innovation under Grant PID2019-106723GB-I00.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"39 24","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-11-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135041779","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-09DOI: 10.1080/09687599.2023.2279489
Emil Falster, Pia Ringø
{"title":"Is something rotten in the state of Denmark? Austerity measures from a child and youth perspective","authors":"Emil Falster, Pia Ringø","doi":"10.1080/09687599.2023.2279489","DOIUrl":"https://doi.org/10.1080/09687599.2023.2279489","url":null,"abstract":"","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":" 2","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-11-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135290942","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-09DOI: 10.1080/09687599.2023.2279934
Samuel Amponsah
AbstractThe emergence of COVID-19 accelerated the integration of digital technologies in teaching and learning to expand access to education. However, one cannot ascertain if visually impaired students learning online benefited from this innovation, a phenomenon this netnographic study explored. Social media tools were used to interview 12 visually impaired students from a Ghanaian and an Egyptian higher education institution. Analysis of the data revealed multiple ‘shadows’ in the students’ experiences. The findings further revealed that the studied institutions prioritized physical access and they also used lopsided crippling discourse. Lastly, the support systems that enhanced the studies of visually impaired students came to light. The study findings have consequences for this cohort of students, so this study recommends agile and futuristic policies to reverse the trend. Finally, it is recommended that the capabilities of faculty and staff need to be enhanced to effectively accommodate visually impaired students in virtual spaces.Points of InterestThe study uses shadow pandemic, a concept mostly associated with violence against women and children during pandemics, to mirror the challenges of Ghanaian and Egyptian visually impaired students who learned online during the lockdownThis study is among the first to adopt Shaheen’s Accessibility for Equity theory as a lens to explore the experiences of visually impaired studentsThe elements of the accessibility for equity framework helped in framing the categories and themes that emerged from the analysis of the field dataThe findings of the study revealed that the challenges the study participants experienced significantly outweighed the support that was available to them during the difficult periods of their study.Keywords: A4E frameworkcovid-19netnographyonline learningshadow pandemicvisually impaired students learning online AcknowledgementsMy sincere appreciation to the Andrew W. Mellon Foundation for the postdoctoral fellowship award through the Building Capacity for Early Career Humanities Scholars in Africa (BECHS-Africa) which made this study possible. I am also indebted to Professors Samuel Adjei-Mensah and Kwame Offei (both of University of Ghana) and Professor Javed Maswood (of the American University in Cairo) for their kind consideration. Finally, to Professor Teklu A. Bekele for his mentorship, Mr Benedict Fosu Adjei for his support and the study participants for their time, patience and contributions.Disclosure statementThere is no conflict of interest associated with this study.
摘要2019冠状病毒病的出现加速了数字技术在教学和学习中的融合，扩大了教育的可及性。然而，我们无法确定视障学生在线学习是否受益于这一创新，这是一项网络学研究所探索的现象。使用社交媒体工具采访了来自加纳和埃及高等教育机构的12名视障学生。对数据的分析揭示了学生经历中的多重“阴影”。研究结果进一步表明，所研究的机构优先考虑物理访问，他们也使用不平衡的破坏性话语。最后，加强视障学生学习的支持系统被曝光。研究结果对这群学生产生了影响，因此本研究建议采取灵活和未来的政策来扭转这一趋势。最后，建议教师和工作人员的能力需要提高，以有效地适应视障学生在虚拟空间。该研究使用了“影子大流行”，这一概念主要与大流行期间对妇女和儿童的暴力行为有关，反映加纳和埃及视障学生在封锁期间在线学习的挑战。这项研究是首批采用Shaheen的无障碍公平理论作为视角来探索视障学生经历的研究之一。无障碍公平框架的要素有助于构建从现场数据分析中出现的类别和主题远远超过了他们在学习困难时期所能得到的支持。关键词:A4E框架covid-19网络研究在线学习阴影大流行视障学生在线学习感谢安德鲁·w·梅隆基金会通过非洲早期职业人文学者能力建设(beccs -Africa)提供博士后奖学金，使本研究成为可能。我还要感谢加纳大学的Samuel Adjei-Mensah教授和Kwame Offei教授以及开罗美国大学的Javed Maswood教授的盛情关照。最后，感谢Teklu A. Bekele教授的指导，Benedict Fosu Adjei先生的支持，以及研究参与者的时间、耐心和贡献。披露声明本研究不存在利益冲突。
{"title":"The ‘shadow pandemic’ in online learning: perspectives of visually impaired students from Ghana and Egypt","authors":"Samuel Amponsah","doi":"10.1080/09687599.2023.2279934","DOIUrl":"https://doi.org/10.1080/09687599.2023.2279934","url":null,"abstract":"AbstractThe emergence of COVID-19 accelerated the integration of digital technologies in teaching and learning to expand access to education. However, one cannot ascertain if visually impaired students learning online benefited from this innovation, a phenomenon this netnographic study explored. Social media tools were used to interview 12 visually impaired students from a Ghanaian and an Egyptian higher education institution. Analysis of the data revealed multiple ‘shadows’ in the students’ experiences. The findings further revealed that the studied institutions prioritized physical access and they also used lopsided crippling discourse. Lastly, the support systems that enhanced the studies of visually impaired students came to light. The study findings have consequences for this cohort of students, so this study recommends agile and futuristic policies to reverse the trend. Finally, it is recommended that the capabilities of faculty and staff need to be enhanced to effectively accommodate visually impaired students in virtual spaces.Points of InterestThe study uses shadow pandemic, a concept mostly associated with violence against women and children during pandemics, to mirror the challenges of Ghanaian and Egyptian visually impaired students who learned online during the lockdownThis study is among the first to adopt Shaheen’s Accessibility for Equity theory as a lens to explore the experiences of visually impaired studentsThe elements of the accessibility for equity framework helped in framing the categories and themes that emerged from the analysis of the field dataThe findings of the study revealed that the challenges the study participants experienced significantly outweighed the support that was available to them during the difficult periods of their study.Keywords: A4E frameworkcovid-19netnographyonline learningshadow pandemicvisually impaired students learning online AcknowledgementsMy sincere appreciation to the Andrew W. Mellon Foundation for the postdoctoral fellowship award through the Building Capacity for Early Career Humanities Scholars in Africa (BECHS-Africa) which made this study possible. I am also indebted to Professors Samuel Adjei-Mensah and Kwame Offei (both of University of Ghana) and Professor Javed Maswood (of the American University in Cairo) for their kind consideration. Finally, to Professor Teklu A. Bekele for his mentorship, Mr Benedict Fosu Adjei for his support and the study participants for their time, patience and contributions.Disclosure statementThere is no conflict of interest associated with this study.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":" 8","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-11-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135291405","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-08DOI: 10.1080/09687599.2023.2279490
Anita Blakstad Bjørnerås, Eli Langørgen, Aud Elisabeth Witsø, Lisbeth Kvam, Daniel Myhr, Jenny Marie Ragnhild Andersen, Gemma Goodall, Sissel Horghagen
Disabled students encounter complex barriers to participation and inclusion throughout higher education and face challenges transitioning into employment. This study has engaged eight disabled university students in participatory action research. The students, in collaboration with university researchers and staff, have developed and implemented actions at a Norwegian university. The study aimed to explore the students’ experiences of being ambassadors to promote inclusion. Data were generated through participatory observation with field notes during actions, sound recordings of reflection meetings, and a focus group discussion. A reflexive thematic analysis resulted in the construction of four themes: confronting and overcoming the challenges, adding value and being a resource, building strategies to control stigma, and translating knowledge and actions towards inclusion. The results demonstrate the individual and societal value of including student voices to change for more inclusive practices, where disabled students are empowered and build competencies and strategies for the future.
{"title":"Disabled student ambassadors promote inclusion in Norwegian higher education: building competencies and strategies for the future","authors":"Anita Blakstad Bjørnerås, Eli Langørgen, Aud Elisabeth Witsø, Lisbeth Kvam, Daniel Myhr, Jenny Marie Ragnhild Andersen, Gemma Goodall, Sissel Horghagen","doi":"10.1080/09687599.2023.2279490","DOIUrl":"https://doi.org/10.1080/09687599.2023.2279490","url":null,"abstract":"Disabled students encounter complex barriers to participation and inclusion throughout higher education and face challenges transitioning into employment. This study has engaged eight disabled university students in participatory action research. The students, in collaboration with university researchers and staff, have developed and implemented actions at a Norwegian university. The study aimed to explore the students’ experiences of being ambassadors to promote inclusion. Data were generated through participatory observation with field notes during actions, sound recordings of reflection meetings, and a focus group discussion. A reflexive thematic analysis resulted in the construction of four themes: confronting and overcoming the challenges, adding value and being a resource, building strategies to control stigma, and translating knowledge and actions towards inclusion. The results demonstrate the individual and societal value of including student voices to change for more inclusive practices, where disabled students are empowered and build competencies and strategies for the future.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"183 2","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-11-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135342294","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-08DOI: 10.1080/09687599.2023.2255731
Václav Walach, Benjamin Petruželka
AbstractThis study explores the relationship between intellectual disabilities and violent victimization, its reporting, and perceived priority in victim needs in criminal proceedings using data from a survey conducted among Czech organizations working with disabled people. The main aim is to find out whether there are differences between the organizations based on the type of disabilities they focus on. Pearson’s chi-squared, Fisher’s exact test and z-test were applied to determine the statistical differences. The results reveal that the organizations mainly focusing on people with intellectual disabilities reported more experiences with violent victimization, less experiences with reporting the most recent incident of disablist hate crime to police and emphasized more often the need for accompaniment and support during the filing of a crime report and taking other steps in criminal proceedings. The findings imply the need for more research and better targeted assistance for people with intellectual disabilities.Points of interestThis study adds to the still-limited knowledge on violent victimization and its reporting in people with intellectual disabilities, focusing on the under-explored context of East-Central Europe.People with intellectual disabilities are at risk of becoming victims of violence and facing barriers in the criminal justice system.Organizations working with people with intellectual disabilities reported more experiences with violence and disablist hate crime than other organizations.Employees of organizations working with people with intellectual disabilities encountered more violence against themselves or their colleagues because of their activities on behalf of disabled people.Organizations that mainly target people with intellectual disabilities reported lower rates of reporting of the most recent incident of disablist hate crime.Organizations that mainly target people with intellectual disabilities saw as more pressing the need to accompany and support people with disabilities in criminal proceedings.Keywords: Violenceviolent victimizationdisablist hate crimeintellectual disabilitiessocial service providersreporting Disclosure statementNo potential conflict of interest was reported by the author(s).Additional informationFundingThis work was supported by the European Regional Development Fund Project ‘Creativity and Adaptability as Conditions of the Success of Europe in an Interrelated World’ [Grant No. CZ.02.1.01/0.0/0.0/16_019/0000734].
{"title":"Violence and disablist hate crime against people with intellectual disabilities: Czech NGOs and service providers’ experiences","authors":"Václav Walach, Benjamin Petruželka","doi":"10.1080/09687599.2023.2255731","DOIUrl":"https://doi.org/10.1080/09687599.2023.2255731","url":null,"abstract":"AbstractThis study explores the relationship between intellectual disabilities and violent victimization, its reporting, and perceived priority in victim needs in criminal proceedings using data from a survey conducted among Czech organizations working with disabled people. The main aim is to find out whether there are differences between the organizations based on the type of disabilities they focus on. Pearson’s chi-squared, Fisher’s exact test and z-test were applied to determine the statistical differences. The results reveal that the organizations mainly focusing on people with intellectual disabilities reported more experiences with violent victimization, less experiences with reporting the most recent incident of disablist hate crime to police and emphasized more often the need for accompaniment and support during the filing of a crime report and taking other steps in criminal proceedings. The findings imply the need for more research and better targeted assistance for people with intellectual disabilities.Points of interestThis study adds to the still-limited knowledge on violent victimization and its reporting in people with intellectual disabilities, focusing on the under-explored context of East-Central Europe.People with intellectual disabilities are at risk of becoming victims of violence and facing barriers in the criminal justice system.Organizations working with people with intellectual disabilities reported more experiences with violence and disablist hate crime than other organizations.Employees of organizations working with people with intellectual disabilities encountered more violence against themselves or their colleagues because of their activities on behalf of disabled people.Organizations that mainly target people with intellectual disabilities reported lower rates of reporting of the most recent incident of disablist hate crime.Organizations that mainly target people with intellectual disabilities saw as more pressing the need to accompany and support people with disabilities in criminal proceedings.Keywords: Violenceviolent victimizationdisablist hate crimeintellectual disabilitiessocial service providersreporting Disclosure statementNo potential conflict of interest was reported by the author(s).Additional informationFundingThis work was supported by the European Regional Development Fund Project ‘Creativity and Adaptability as Conditions of the Success of Europe in an Interrelated World’ [Grant No. CZ.02.1.01/0.0/0.0/16_019/0000734].","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"37 4","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-11-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135341919","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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