国内外电子健康档案数据存取现状研究

Ting Shu, Fan Xu
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引用次数: 0

摘要

电子健康档案的开放获取是推动电子健康档案建设和应用的重要环节。从电子病历开放数据的定义入手,探讨了电子病历开放数据的内容和形式,总结了美国、英国、丹麦等电子病历开放程度较高的国家的先进经验。本文结合目前中国电子病历开放仅局限于数据访问而非数据利用的现状。报告还指出了中国电子病历开放中存在的数据归属不清、居民健康意识淡薄、缺乏统一建设标准等问题。本文从国家和医疗机构的角度,提出了发布标准规范电子病历开放、实施患者实名认证、实现区域平台整体开放、应用范围和监管范围与数据开放内容挂钩等一系列政策建议。关键词:电子健康档案;开放数据;数据访问;医疗保健信息技术
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Research on the current electronic health record data access at home and abroad
The open access of electronic health record(EHR) is an important link to promote the construction and application of EHR. Starting with the definition of open data of EHR, the authors discussed the content and form of open data of electronic health records, summarized the advanced experiences of countries with higher openness of EHR in the United States, the United Kingdom and Denmark. This paper combined the current situation that the opening of EHR in China is limited within data access instead of data utilization. It also pointed out such problems in the opening of EHR in China, as unclear data ownership, weak health awareness of residents and lack of unified construction standards.From the point of view of the state and medical institutions, this paper put forward a series of policy suggestions, such as issuing standards to standardize the opening of EHR, implementing patient real-name certification, realizing the overall opening of regional platforms, and linking the scope of application and supervision with the content of data opening. Key words: Electronic health records; Open data; Data access; Healthcare information technology
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