Jessica C Kichler, Alana Gyemi, Robert Papak, Kenzie Tapp, Brianna Grandi, Krista Lucier
{"title":"“我将永远是那个站在舞池中央喝果汁盒的人”:在中学后的大学/学院环境中支持1型糖尿病患者向成年期的过渡","authors":"Jessica C Kichler, Alana Gyemi, Robert Papak, Kenzie Tapp, Brianna Grandi, Krista Lucier","doi":"10.2337/ds22-0077","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>The transition to adulthood is a challenging period for individuals with type 1 diabetes, especially those attending post-secondary education (PSE) at a university or college. In addition to balancing academic responsibilities and adapting to a novel environment, young adults (YAs) with type 1 diabetes must more independently manage the daily demands of diabetes care.</p><p><strong>Objective: </strong>The aim of this study was to collect qualitative data from multiple stakeholders addressing the transition of students with type 1 diabetes into a PSE setting.</p><p><strong>Methods: </strong>A total of 15 participants were interviewed, including three health care provider diabetes educators, four parents of YAs with type 1 diabetes, and eight YAs with type 1 diabetes. Reflexive thematic analysis of the qualitative interviews revealed four major themes and 11 subthemes.</p><p><strong>Results: </strong>The four major themes revealed included <i>1</i>) inappropriateness of services available to support students with type 1 diabetes in PSE settings, <i>2</i>) individuals with type 1 diabetes having to compensate for inadequate systems, <i>3</i>) variability of social support effectiveness, and <i>4</i>) the need for a more holistic approach to improve diabetes education and social support systemically.</p><p><strong>Conclusion: </strong>This study identified some key systemic barriers experienced by PSE students with type 1 diabetes. Future research needs to extend the sample populations to understand a wider range of PSE student experiences. The findings from this study provide initial recommendations to develop new PSE readiness interventions for YAs with type 1 diabetes.</p>","PeriodicalId":39737,"journal":{"name":"Diabetes Spectrum","volume":" ","pages":"354-363"},"PeriodicalIF":0.0000,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10654117/pdf/","citationCount":"0","resultStr":"{\"title\":\"\\\"I'll Just Forever Be That Person Who Stands in the Middle of the Dance Floor Drinking a Juice Box\\\": Supporting the Transition to Adulthood With Type 1 Diabetes in a Post-Secondary University/College Setting.\",\"authors\":\"Jessica C Kichler, Alana Gyemi, Robert Papak, Kenzie Tapp, Brianna Grandi, Krista Lucier\",\"doi\":\"10.2337/ds22-0077\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>The transition to adulthood is a challenging period for individuals with type 1 diabetes, especially those attending post-secondary education (PSE) at a university or college. In addition to balancing academic responsibilities and adapting to a novel environment, young adults (YAs) with type 1 diabetes must more independently manage the daily demands of diabetes care.</p><p><strong>Objective: </strong>The aim of this study was to collect qualitative data from multiple stakeholders addressing the transition of students with type 1 diabetes into a PSE setting.</p><p><strong>Methods: </strong>A total of 15 participants were interviewed, including three health care provider diabetes educators, four parents of YAs with type 1 diabetes, and eight YAs with type 1 diabetes. Reflexive thematic analysis of the qualitative interviews revealed four major themes and 11 subthemes.</p><p><strong>Results: </strong>The four major themes revealed included <i>1</i>) inappropriateness of services available to support students with type 1 diabetes in PSE settings, <i>2</i>) individuals with type 1 diabetes having to compensate for inadequate systems, <i>3</i>) variability of social support effectiveness, and <i>4</i>) the need for a more holistic approach to improve diabetes education and social support systemically.</p><p><strong>Conclusion: </strong>This study identified some key systemic barriers experienced by PSE students with type 1 diabetes. Future research needs to extend the sample populations to understand a wider range of PSE student experiences. The findings from this study provide initial recommendations to develop new PSE readiness interventions for YAs with type 1 diabetes.</p>\",\"PeriodicalId\":39737,\"journal\":{\"name\":\"Diabetes Spectrum\",\"volume\":\" \",\"pages\":\"354-363\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2023-01-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10654117/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Diabetes Spectrum\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.2337/ds22-0077\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2023/5/16 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q3\",\"JCRName\":\"Medicine\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Diabetes Spectrum","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.2337/ds22-0077","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2023/5/16 0:00:00","PubModel":"Epub","JCR":"Q3","JCRName":"Medicine","Score":null,"Total":0}
"I'll Just Forever Be That Person Who Stands in the Middle of the Dance Floor Drinking a Juice Box": Supporting the Transition to Adulthood With Type 1 Diabetes in a Post-Secondary University/College Setting.
Background: The transition to adulthood is a challenging period for individuals with type 1 diabetes, especially those attending post-secondary education (PSE) at a university or college. In addition to balancing academic responsibilities and adapting to a novel environment, young adults (YAs) with type 1 diabetes must more independently manage the daily demands of diabetes care.
Objective: The aim of this study was to collect qualitative data from multiple stakeholders addressing the transition of students with type 1 diabetes into a PSE setting.
Methods: A total of 15 participants were interviewed, including three health care provider diabetes educators, four parents of YAs with type 1 diabetes, and eight YAs with type 1 diabetes. Reflexive thematic analysis of the qualitative interviews revealed four major themes and 11 subthemes.
Results: The four major themes revealed included 1) inappropriateness of services available to support students with type 1 diabetes in PSE settings, 2) individuals with type 1 diabetes having to compensate for inadequate systems, 3) variability of social support effectiveness, and 4) the need for a more holistic approach to improve diabetes education and social support systemically.
Conclusion: This study identified some key systemic barriers experienced by PSE students with type 1 diabetes. Future research needs to extend the sample populations to understand a wider range of PSE student experiences. The findings from this study provide initial recommendations to develop new PSE readiness interventions for YAs with type 1 diabetes.
期刊介绍:
The mission of Diabetes Spectrum: From Research to Practice is to assist health care professionals in the development of strategies to individualize treatment and diabetes self-management education for improved quality of life and diabetes control. These goals are achieved by presenting review as well as original, peer-reviewed articles on topics in clinical diabetes management, professional and patient education, nutrition, behavioral science and counseling, educational program development, and advocacy. In each issue, the FROM RESEARCH TO PRACTICE section explores, in depth, a diabetes care topic and provides practical application of current research findings.