“我将永远是那个站在舞池中央喝果汁盒的人”:在中学后的大学/学院环境中支持1型糖尿病患者向成年期的过渡

Q3 Medicine Diabetes Spectrum Pub Date : 2023-01-01 Epub Date: 2023-05-16 DOI:10.2337/ds22-0077
Jessica C Kichler, Alana Gyemi, Robert Papak, Kenzie Tapp, Brianna Grandi, Krista Lucier
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引用次数: 0

摘要

对于1型糖尿病患者来说,过渡到成年期是一个具有挑战性的时期,尤其是那些在大学或学院接受高等教育(PSE)的人。除了平衡学业责任和适应新环境外,患有1型糖尿病的年轻人(YAs)必须更独立地管理糖尿病护理的日常需求。本研究的目的是从多个利益相关者那里收集定性数据,解决1型糖尿病学生向PSE环境的转变。共有15名参与者接受了采访,其中包括3名卫生保健提供者糖尿病教育者,4名1型糖尿病青少年的父母,以及8名1型糖尿病青少年。定性访谈的反身性主题分析揭示了4个主要主题和11个次要主题。研究揭示的四个主要主题包括:1)在PSE环境中为1型糖尿病学生提供支持的服务不适当;2)1型糖尿病患者必须补偿系统的不足;3)社会支持有效性的可变性;4)需要更全面的方法来系统地改善糖尿病教育和社会支持。本研究确定了PSE学生患有1型糖尿病的一些关键的系统性障碍。未来的研究需要扩大样本人群,以了解更广泛的PSE学生经历。这项研究的结果为开发新的PSE准备干预措施提供了初步建议,以治疗患有1型糖尿病的青少年。
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"I'll Just Forever Be That Person Who Stands in the Middle of the Dance Floor Drinking a Juice Box": Supporting the Transition to Adulthood With Type 1 Diabetes in a Post-Secondary University/College Setting.

Background: The transition to adulthood is a challenging period for individuals with type 1 diabetes, especially those attending post-secondary education (PSE) at a university or college. In addition to balancing academic responsibilities and adapting to a novel environment, young adults (YAs) with type 1 diabetes must more independently manage the daily demands of diabetes care.

Objective: The aim of this study was to collect qualitative data from multiple stakeholders addressing the transition of students with type 1 diabetes into a PSE setting.

Methods: A total of 15 participants were interviewed, including three health care provider diabetes educators, four parents of YAs with type 1 diabetes, and eight YAs with type 1 diabetes. Reflexive thematic analysis of the qualitative interviews revealed four major themes and 11 subthemes.

Results: The four major themes revealed included 1) inappropriateness of services available to support students with type 1 diabetes in PSE settings, 2) individuals with type 1 diabetes having to compensate for inadequate systems, 3) variability of social support effectiveness, and 4) the need for a more holistic approach to improve diabetes education and social support systemically.

Conclusion: This study identified some key systemic barriers experienced by PSE students with type 1 diabetes. Future research needs to extend the sample populations to understand a wider range of PSE student experiences. The findings from this study provide initial recommendations to develop new PSE readiness interventions for YAs with type 1 diabetes.

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来源期刊
Diabetes Spectrum
Diabetes Spectrum Medicine-Internal Medicine
CiteScore
2.70
自引率
0.00%
发文量
62
期刊介绍: The mission of Diabetes Spectrum: From Research to Practice is to assist health care professionals in the development of strategies to individualize treatment and diabetes self-management education for improved quality of life and diabetes control. These goals are achieved by presenting review as well as original, peer-reviewed articles on topics in clinical diabetes management, professional and patient education, nutrition, behavioral science and counseling, educational program development, and advocacy. In each issue, the FROM RESEARCH TO PRACTICE section explores, in depth, a diabetes care topic and provides practical application of current research findings.
期刊最新文献
Diabetes Care at Summer Camps. Diabetes in Diverse Settings. Managing Type 1 Diabetes in an Inpatient Child Psychiatric Care Setting. Multidisciplinary Diabetes Management and Education Strategies in the Inpatient Rehabilitation Setting. Standardizing Diabetes Care in Colorado Schools: Nearly Two Decades of Success.
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