O. Le Lidec , C. Michelon , C. Vernhet , A. Baghdadli
{"title":"患者治疗性教育计划对多动症儿童及其父母生活质量的影响","authors":"O. Le Lidec , C. Michelon , C. Vernhet , A. Baghdadli","doi":"10.1016/j.neurenf.2023.07.004","DOIUrl":null,"url":null,"abstract":"<div><h3>Objectives</h3><p>Patient education is a holistic therapeutic approach that focuses on the needs of individuals with a chronic condition and aims to improve quality of life. The patient education program “Living better with ADHD” is aimed at children and adolescents with ADHD from 8 to 14 years old and their parents. It consists of 5 themed group sessions and 2 semi-structured individual interviews. The aim of this study was to investigate the change in quality of life of the children and their parents who benefited from the program.</p></div><div><h3>Patients and method</h3><p>This is a prospective monocentric study of 35 families who participated in the “Living better with ADHD” program between February 2022 and July 2022 and completed the quality of life questionnaires KIDSCREEN-27 for children and WHOQOL-BREF for parents, pre-intervention and then 6 weeks later.</p></div><div><h3>Results</h3><p>There was an improvement in the children's quality of life in the area of physical wellbeing and a trend towards an improvement in the quality of life in the “school environment”. This change was not correlated with any of the socio-demographic or clinical variables examined. On the other hand, there was no change in parental quality of life.</p></div><div><h3>Conclusion</h3><p>These preliminary results suggest the value of therapeutic education for children with ADHD. Given the limitations of our method, randomized controlled trials should investigate the effects on quality of life for the long term.</p></div>","PeriodicalId":39666,"journal":{"name":"Neuropsychiatrie de l''Enfance et de l''Adolescence","volume":"71 7","pages":"Pages 356-363"},"PeriodicalIF":0.0000,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Impact d’un programme d’éducation thérapeutique du patient sur la qualité de vie d’enfants avec TDAH et celle de leurs parents\",\"authors\":\"O. Le Lidec , C. Michelon , C. Vernhet , A. Baghdadli\",\"doi\":\"10.1016/j.neurenf.2023.07.004\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><h3>Objectives</h3><p>Patient education is a holistic therapeutic approach that focuses on the needs of individuals with a chronic condition and aims to improve quality of life. The patient education program “Living better with ADHD” is aimed at children and adolescents with ADHD from 8 to 14 years old and their parents. It consists of 5 themed group sessions and 2 semi-structured individual interviews. The aim of this study was to investigate the change in quality of life of the children and their parents who benefited from the program.</p></div><div><h3>Patients and method</h3><p>This is a prospective monocentric study of 35 families who participated in the “Living better with ADHD” program between February 2022 and July 2022 and completed the quality of life questionnaires KIDSCREEN-27 for children and WHOQOL-BREF for parents, pre-intervention and then 6 weeks later.</p></div><div><h3>Results</h3><p>There was an improvement in the children's quality of life in the area of physical wellbeing and a trend towards an improvement in the quality of life in the “school environment”. This change was not correlated with any of the socio-demographic or clinical variables examined. On the other hand, there was no change in parental quality of life.</p></div><div><h3>Conclusion</h3><p>These preliminary results suggest the value of therapeutic education for children with ADHD. Given the limitations of our method, randomized controlled trials should investigate the effects on quality of life for the long term.</p></div>\",\"PeriodicalId\":39666,\"journal\":{\"name\":\"Neuropsychiatrie de l''Enfance et de l''Adolescence\",\"volume\":\"71 7\",\"pages\":\"Pages 356-363\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2023-11-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Neuropsychiatrie de l''Enfance et de l''Adolescence\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://www.sciencedirect.com/science/article/pii/S0222961723001113\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q4\",\"JCRName\":\"Medicine\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Neuropsychiatrie de l''Enfance et de l''Adolescence","FirstCategoryId":"1085","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S0222961723001113","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"Medicine","Score":null,"Total":0}
Impact d’un programme d’éducation thérapeutique du patient sur la qualité de vie d’enfants avec TDAH et celle de leurs parents
Objectives
Patient education is a holistic therapeutic approach that focuses on the needs of individuals with a chronic condition and aims to improve quality of life. The patient education program “Living better with ADHD” is aimed at children and adolescents with ADHD from 8 to 14 years old and their parents. It consists of 5 themed group sessions and 2 semi-structured individual interviews. The aim of this study was to investigate the change in quality of life of the children and their parents who benefited from the program.
Patients and method
This is a prospective monocentric study of 35 families who participated in the “Living better with ADHD” program between February 2022 and July 2022 and completed the quality of life questionnaires KIDSCREEN-27 for children and WHOQOL-BREF for parents, pre-intervention and then 6 weeks later.
Results
There was an improvement in the children's quality of life in the area of physical wellbeing and a trend towards an improvement in the quality of life in the “school environment”. This change was not correlated with any of the socio-demographic or clinical variables examined. On the other hand, there was no change in parental quality of life.
Conclusion
These preliminary results suggest the value of therapeutic education for children with ADHD. Given the limitations of our method, randomized controlled trials should investigate the effects on quality of life for the long term.
期刊介绍：
Organ of the Société française de psychiatrie de enfant et de adolescent, Neuropsychiatrie de enfance et de adolescence tackles all fields of child-adolescent psychiatry and offers a link between field and clinical work. As a reference and training tool for students and practitioners, the journal publishes original papers in child psychiatry as well as book reviews and conference reports. Each issue also offers a calendar of the main events dealing with the speciality.
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