综合来看:一项定性研究探讨了多发性疾病患者、医疗保健专业人员、亲属和患者权益倡导者对自我管理和锻炼行为的看法

M. Jäger, Mathias Constantin Lindhardt, J. R. Pedersen, Mette Dideriksen, M. Nyberg, A. Bricca, U. Bodtger, J. Midtgaard, S. Skou
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引用次数: 7

摘要

背景行为改变和锻炼被认为是多发性疾病患者成功自我管理的关键,然而,人们对人们的需求、经历和偏好知之甚少。目的本研究的目的是定性地探讨多发性疾病患者、医疗保健专业人员、亲属和患者倡导者对自我管理和锻炼行为的看法。研究设计分析是通过使用框架分析的混合归纳-演绎方法进行的,该方法使COM-B模型能够在随后的运动行为研究中得到具体应用。研究样本我们进行了17次访谈(9个焦点小组;8名关键信息员),共有来自四个小组的48名信息员(22名多发病患者、17名医疗保健专业人员、5名亲属和5名患者权益倡导者)。数据分析通过归纳框架分析,我们构建了三个主题:患者教育、支持行为改变和缺乏“燃烧平台”。“随后对COM-B档案的演绎应用(仅适用于与锻炼行为相关的数据)揭示了锻炼和自我管理支持的各种障碍(疼痛、疲劳、呼吸困难、缺乏动力、经济问题、可及性、社会支持减少)。结果总的来说,四个小组有着共同的理解,同时也表达了独特的挑战。结论未来针对多发性疾病患者运动行为的干预措施和/或政策应解决本研究中发现的一些障碍。
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Putting the pieces together: A qualitative study exploring perspectives on self-management and exercise behavior among people living with multimorbidity, healthcare professionals, relatives, and patient advocates
Background Behavior change and exercise are considered critical for successful self-management in people with multimorbidity, however, little is known about people’s needs, experiences, and preferences. Purpose The aim of this study was to qualitatively explore the perspectives of people living with multimorbidity, healthcare professionals, relatives, and patient advocates in relation to self-management and exercise behavior. Research design Analysis was carried out by means of a hybrid inductive-deductive approach using Framework Analysis that enabled the subsequent use of the COM-B model in relation to the study of exercise behavior specifically. Study sample We conducted 17 interviews (9 focus groups; 8 key informants) with 48 informants from four groups (22 people living with multimorbidity, 17 healthcare professionals, 5 relatives, and 5 patient advocates). Data analysis Through an inductive Framework analysis, we constructed three themes: Patient education, supporting behavior change, and lack of a “burning platform.” Subsequent deductive application of the COM-B profile (applied solely to data related to exercise behavior) unveiled a variety of barriers to exercise and self-management support (pain, fatigue, breathlessness, lack of motivation, financial issues, accessibility, decreased social support). Results Overall, the four groups shared common understandings while also expressing unique challenges. Conclusions Future interventions and/or policies targeting exercise behavior in people living with multimorbidity should address some of the barriers identified in this study.
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