学习与否认婴儿猝死原因的小岛屿发展中国家机构沟通

H. Kapuste
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引用次数: 1

摘要

“婴儿猝死”的高发病率和大多数特征在50年前就被描述出来了。虽然避免俯卧睡眠导致小岛屿发展中国家的发病率显著降低,但它仍然是最常见的围产期后死亡。建制派的共识是原因尚不清楚。然而,理查森的有毒气体理论使这种共识变得不正确。虽然它(1)基于明确的实验证据,(2)几乎可以解释与小岛屿发展中国家有关的所有特征,(3)是英格兰和威尔士小岛屿发展中国家发病率首次显著下降的基础,但该机构并不接受这些证据,特别是在英国卫生部成立的两个专家组在1998年5月的最终报告中得出结论说,有毒气体理论是没有根据的。然而,1998年6月提交的反驳这些结论的Richardson的评论被压制了。这种忽视的影响是巨大的。与此同时,新西兰的T. J.斯普罗特提供了确凿的证据,证明使用聚乙烯床垫保护的儿童不会死于小岛屿发展中国家。目前,小岛屿发展中国家机构正在开展一个改进的小岛屿发展中国家的定义和诊断,以提供一个更好的调查框架,并结束“被矛盾和未经证实的结论所困扰的文献”。现在展望一下,预防小岛屿发展中国家(SIDS)的有效手段被接受可能需要多长时间,看看库恩的《科学革命的结构》(The Structure of Scientific Revolutions),可能有助于开始有效的专业沟通,从而带来必要的改变,拯救婴儿的生命。为了改善专业期刊中冗长的专家-专家互动,可以使用现代通信手段,通过电子邮件协调读者-读者和读者-作者的互动,以控制有偏见的机构。经验表明,个人的努力无法克服它们强大的防御。最后,将需要在当地社区建立良好的有积极性的读者利用现代通讯手段进行协调的活动,以促进有效的国家和国际小岛屿发展中国家预防工作。
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Learning to Communicate with a SIDS Establishment that Denies the Cause of Sudden Infant Deaths
A high incidence, and most of the features, of ‘cot deaths’ were described 50 years ago. While avoidance of prone sleeping led to a significant reduction of SIDS incidence it remained the most frequent post-perinatal death. The consensus of the establishment is that the cause(s) is/are not understood. The toxic gas theory by Richardson, however, renders this consensus incorrect. While it (1) was based on definite experimental evidence, (2) could explain practically all of the features associated with SIDS, and (3) was the basis for the first significant decline of SIDS incidence in England and Wales, the establishment did not accept the evidence, in particular after two Expert Groups established by the British Department of Health concluded in their Final Report of May 1998, that the toxic gas theory was unsubstantiated. Richardson’s Comments, however, submitted in June 1998 which refuted these conclusions have been suppressed. The impact of this neglect has been tremendous. T. J. Sprott in New Zealand meanwhile has provided conclusive evidence that children protected by polythene covers of their mattresses will not die from SIDS. At present the SIDS establishment are launching an improved definition and diagnosis of SIDS to provide a better framework for investigations and put an end to ‘‘the literature that is beset by contradictions and unsubstantiated conclusions’’. Looking forward now to how long it may take until an effective means of SIDS prevention will be accepted, a look into Kuhn’s The Structure of Scientific Revolutions may help to begin effective professional communication that can bring about the necessary change to save babies’ lives. To improve the tedious expert–expert interaction in professional journals one may use the modern means of communication, coordinate reader–reader and reader–author interaction by email to gain control of the biased establishment. Experience shows that individual efforts cannot overcome their powerful defence. In conclusion, it will take a coordinated activity of motivated readers who are well established in their local communities using the means of modern communication to promote effective national and international SIDS prevention.
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