COVID-19与高和非常高支持需求的智力残疾/自闭症谱系障碍:身心脆弱性问题

E. Buonaguro, M. Bertelli
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引用次数: 9

摘要

目的:2019冠状病毒病疫情严重困扰着世界,目前的卫生工作重点是提供预防,并确保症状最严重的人获得强化服务。许多报告已经描述了普通人群中存在的严重心理困扰。具有高和极高支持需求的智力残疾/自闭症谱系障碍(PwID/ASD-HSN)个体似乎是受影响最严重的人群之一。本文旨在对PwID/ASD-HSN相关问题进行全面的讨论和评估。对现有文献的评论和对PwID/ASD-HSN身体和精神脆弱性因素的新初步数据的分析这些知识对于为家庭和照顾者提供特殊建议以抵消与当前大流行相关的风险至关重要。PwID/ASD-HSN是2019冠状病毒病(COVID-19)疫情及其相关精神痛苦因素的最弱势群体之一,原因包括多重发病、卫生素养水平低、难以理解和沟通、依赖他人照护、不遵守复杂的卫生规则、强烈的常规/一致性需求和低适应技能。在本工作中,作者分析了PwID/ASD-HSN患者身心脆弱性的具体因素,通过对全球公布的第一批数据的讨论以及在意大利境内收集的关于大规模隔离期间PwID/ASD-HSN患者的COVID-19患病率和并发症以及精神困扰体征和症状的初步数据,证实了论文©2020,Emerald Publishing Limited
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COVID-19 and intellectual disability/autism spectrum disorder with high and very high support needs: issues of physical and mental vulnerability
Purpose: The COVID-19 outbreak has profoundly plagued the world, and current health efforts are focused on providing prevention and ensuring access to intensive services for people with the most severe symptomatology Many reports have already described substantial psychological distress in the general population Nevertheless, disasters tend to affect vulnerable subjects disproportionately, and individuals with intellectual disabilities/autism spectrum disorder with high and very high support needs (PwID/ASD-HSN) seem to be counted among the hardest hit populations The present paper aims to provide a comprehensive discussion and evaluation of COVID-19 related issues specific to PwID/ASD-HSN Design/methodology/approach: Commentary on available literature and analysis of new preliminary data on PwID/ASD-HSN’s physical and psychic vulnerability factors This knowledge is fundamental to provide families and caregivers special advice to counteract the risks associated with the current pandemic Findings: PwID/ASD-HSN represent one of the most vulnerable population to the COVID-19 outbreak and the associated factors of mental distress for several reasons, including multimorbidity, low levels of health literacy, difficulties to understand and communicate, reliance on other people for care, low compliance with complex hygiene rules, the strong need of routine/sameness and low adaptive skills Originality/value: In the present work, the authors analyze the specific factors of physical and mental vulnerability in PwID/ASD-HSN, corroborating the dissertation with a discussion on the first data published worldwide and with preliminary data collected on the Italian territory for what concerns prevalence rates of COVID-19 and complications in persons with PwID/ASD-HSN and signs and symptoms of psychic distress during the mass quarantine period © 2020, Emerald Publishing Limited
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来源期刊
CiteScore
1.60
自引率
18.20%
发文量
22
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