{"title":"准备育儿:葡萄牙慢性肾病儿童父母的护理做法","authors":"Andréa Bruno de Sousa, A. Goes, Anette Wickström","doi":"10.1332/204674321x16463025919528","DOIUrl":null,"url":null,"abstract":"Parents of a child with chronic kidney disease (CKD) must safely perform advanced care and treatment while at the same time allowing the child some freedom and maintaining everyday parenting and family tasks. Drawing on interviews with primary caregivers of children with CKD in Portugal, we examine the context of raising a child with CKD and how the parents practise their parenthood. The study takes inspiration from parenting studies and child studies and explores how good parenthood is constructed. Based on thematic analysis, three core themes emerged: protecting the child, involving the child in their treatment, and transferring responsibility. The transformation of life-limiting circumstances into a life that worked well for both parents and their child represents what we call ‘readiness parenting’. Assessing risks, supporting the child’s autonomy, and relating to social norms required constant vigilance and readjustments as well as negotiations about parental responsibility.","PeriodicalId":45141,"journal":{"name":"Families Relationships and Societies","volume":"1 1","pages":""},"PeriodicalIF":1.1000,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"1","resultStr":"{\"title\":\"Readiness parenting: practices of care by parents of children with chronic kidney disease in Portugal\",\"authors\":\"Andréa Bruno de Sousa, A. Goes, Anette Wickström\",\"doi\":\"10.1332/204674321x16463025919528\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"Parents of a child with chronic kidney disease (CKD) must safely perform advanced care and treatment while at the same time allowing the child some freedom and maintaining everyday parenting and family tasks. Drawing on interviews with primary caregivers of children with CKD in Portugal, we examine the context of raising a child with CKD and how the parents practise their parenthood. The study takes inspiration from parenting studies and child studies and explores how good parenthood is constructed. Based on thematic analysis, three core themes emerged: protecting the child, involving the child in their treatment, and transferring responsibility. The transformation of life-limiting circumstances into a life that worked well for both parents and their child represents what we call ‘readiness parenting’. Assessing risks, supporting the child’s autonomy, and relating to social norms required constant vigilance and readjustments as well as negotiations about parental responsibility.\",\"PeriodicalId\":45141,\"journal\":{\"name\":\"Families Relationships and Societies\",\"volume\":\"1 1\",\"pages\":\"\"},\"PeriodicalIF\":1.1000,\"publicationDate\":\"2022-01-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"1\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Families Relationships and Societies\",\"FirstCategoryId\":\"90\",\"ListUrlMain\":\"https://doi.org/10.1332/204674321x16463025919528\",\"RegionNum\":3,\"RegionCategory\":\"社会学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"FAMILY STUDIES\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Families Relationships and Societies","FirstCategoryId":"90","ListUrlMain":"https://doi.org/10.1332/204674321x16463025919528","RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"FAMILY STUDIES","Score":null,"Total":0}
Readiness parenting: practices of care by parents of children with chronic kidney disease in Portugal
Parents of a child with chronic kidney disease (CKD) must safely perform advanced care and treatment while at the same time allowing the child some freedom and maintaining everyday parenting and family tasks. Drawing on interviews with primary caregivers of children with CKD in Portugal, we examine the context of raising a child with CKD and how the parents practise their parenthood. The study takes inspiration from parenting studies and child studies and explores how good parenthood is constructed. Based on thematic analysis, three core themes emerged: protecting the child, involving the child in their treatment, and transferring responsibility. The transformation of life-limiting circumstances into a life that worked well for both parents and their child represents what we call ‘readiness parenting’. Assessing risks, supporting the child’s autonomy, and relating to social norms required constant vigilance and readjustments as well as negotiations about parental responsibility.
期刊介绍：
Families, Relationships and Societies (FRS) is a vibrant social science journal advancing scholarship and debates in the field of families and relationships. It explores family life, relationships and generational issues across the life course. Bringing together a range of social science perspectives, with a strong policy and practice focus, it is also strongly informed by sociological theory and the latest methodological approaches. The title ''Families, Relationships and Societies'' encompasses the fluidity, complexity and diversity of contemporary social and personal relationships and their need to be understood in the context of different societies and cultures. International and comprehensive in scope, FRS covers a range of theoretical, methodological and substantive issues, from large scale trends, processes of social change and social inequality to the intricacies of family practices. It welcomes scholarship based on theoretical, qualitative or quantitative analysis. High quality research and scholarship is accepted across a wide range of issues. Examples include family policy, changing relationships between personal life, work and employment, shifting meanings of parenting, issues of care and intimacy, the emergence of digital friendship, shifts in transnational sexual relationships, effects of globalising and individualising forces and the expansion of alternative ways of doing family. Encouraging methodological innovation, and seeking to present work on all stages of the life course, the journal welcomes explorations of relationships and families in all their different guises and across different societies.
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