“精神疾病”与正义的认同

S. Goering
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But it's also because he questions whether whatever occurred in his brain and resulted in his difficulty functioning \"normally\" is chronic, and in any case, he's not convinced that \"normal\" functioning is always to be preferred. In this judgment, he is echoed by many patients and former patients, both those relatively sanguine about psychiatry (Redfield Jamison) and those who identify with the more radical \"psychiatric survivors' network.\" What he wants is to be respected for his abilities, accommodated for his illness (when it cannot be adequately treated), and treated as capable of making a positive social contribution. When many people hear T's story, they think, \"What a sad story; what bad luck!\" They understand it through a lens of personal tragedy and misfortune. If they sense unfairness, it is unfairness in an existential or perhaps even divine sense: how could the impersonal world or God treat him so poorly? The idea that some part--perhaps even a large part--of his disadvantage is socially imposed is foreign to them. Most people firmly believe in a medical model of disability, and by extension, a medical model of psychiatric disability. For them, disability is an intrinsic feature of a person, and the best way to help a disabled person is to find a cure. If a cure is not available, the person might be compensated for an inability to work, or pitied and offered charity. But according to my friend and people in the disability rights movement, many of his disadvantages could and indeed should be addressed through social change. If so, then we shouldn't shake our heads in pity over his case; we should wrestle with how to do justice for him. Sociopolitical Conception of Disability Disability scholars often distinguish between an impairment (usually taken to be a non-standard state of the body, such as deafness or paraplegia) and disability (understood to be a lack of fit between the body and the social environment, resulting in disadvantages for the individual who is impaired). With this distinction, the disadvantage of disability is something that calls out for social change. In many cases, people with impairments prefer not to have their bodies altered (as when Deaf individuals do not want cochlear implants), or are simply faced with no known medical treatments for their impairments (e.g., spinal cord injuries result in paralysis that cannot be \"fixed\"). The disability rights movement has emphasized how such people deserve fair opportunities to work and to engage in a variety of aspects of social life, even if their modes of functioning are non-standard. 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Sociopolitical Conception of Disability Disability scholars often distinguish between an impairment (usually taken to be a non-standard state of the body, such as deafness or paraplegia) and disability (understood to be a lack of fit between the body and the social environment, resulting in disadvantages for the individual who is impaired). With this distinction, the disadvantage of disability is something that calls out for social change. In many cases, people with impairments prefer not to have their bodies altered (as when Deaf individuals do not want cochlear implants), or are simply faced with no known medical treatments for their impairments (e.g., spinal cord injuries result in paralysis that cannot be \\\"fixed\\\"). The disability rights movement has emphasized how such people deserve fair opportunities to work and to engage in a variety of aspects of social life, even if their modes of functioning are non-standard. 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引用次数: 3

摘要

我的朋友T在十多年前被诊断出患有双相情感障碍,当时他正在做住院医生。从那时起,他就没能完成他的住院医生实习期,尽管他做过各种不同的工作,其中一些工作利用了他的医学知识(保险公司的接诊医生),另一些则没有(高尔夫球场服务员)。尽管T承认他在诊断时需要帮助,但直到今天他都不赞成他接受的那种帮助(相对强迫,但官方上是“自愿”的承诺,各种无效的药物鸡尾酒,电击)。像许多被诊断为双相情感障碍的人一样,他曾多次停止服用处方药物。部分原因是人们对它们的副作用(肝损伤、体重增加、脱发、精神模糊、焦虑)和有限的疗效感到沮丧。但也因为他质疑大脑中发生的事情,导致他难以“正常”运作,这是否是慢性的,无论如何,他不相信“正常”运作总是被优先考虑的。在这一判断中,他得到了许多病人和前病人的赞同,包括那些对精神病学相对乐观的人(雷德菲尔德·贾米森)和那些认同更激进的“精神病学幸存者网络”的人。他想要的是尊重他的能力,照顾他的疾病(当疾病无法得到充分治疗时),并将他视为能够对社会做出积极贡献的人。当许多人听到T的故事时,他们认为,“多么悲伤的故事;真倒霉!”他们通过个人的悲剧和不幸来理解它。如果他们感觉到了不公平,那是一种存在主义的不公平,甚至是一种神圣的不公平:这个没有人情味的世界或上帝怎么能如此糟糕地对待他?他的某些劣势——甚至可能是很大一部分劣势——是社会强加给他们的,这种想法对他们来说是陌生的。大多数人坚定地相信残疾的医学模型,延伸开来,精神残疾的医学模型。对他们来说,残疾是一个人的内在特征,帮助残疾人的最好方法就是找到治疗方法。如果无法治愈,可能会对无法工作的人进行补偿,或者给予同情和慈善。但在我的朋友和残疾人权利运动人士看来,他的许多缺点可以而且确实应该通过社会变革来解决。如果是这样,那么我们就不应该对他的情况摇头同情;我们应该考虑如何公正地对待他。残障学者经常区分残障(通常被认为是身体的一种非标准状态,如耳聋或截瘫)和残障(被理解为身体与社会环境不相适应,导致残障个体处于不利地位)。有了这个区别,残疾的缺点就需要社会变革。在许多情况下,有缺陷的人不愿意改变他们的身体(如聋人不希望植入耳蜗),或者只是面临着没有已知的药物治疗他们的缺陷(例如,脊髓损伤导致瘫痪,无法“固定”)。残疾人权利运动强调,这些人应该得到公平的工作机会,并参与社会生活的各个方面,即使他们的运作模式是非标准的。事实上,它庆祝了生活方式的多样性,并试图帮助非残疾公众重新思考残疾的概念。残障和残疾的区别有一个问题,那就是在与那些认为残疾是身体固有的人讨论时,它会造成术语上的混淆。一个后果是,当许多人认识到某些损伤显然会导致身体上的不利时,如果残疾的社会政治模型总是坚持社会变革而不是身体治疗,那么它可能会显得被夸大。...
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"Mental Illness" and Justice as Recognition
My friend T was diagnosed with bipolar disorder over a decade ago, just in the midst of his medical residency. Since that time, he hasn't been able to complete his residency, though he's held a variety of different jobs, some of them making use of his medical knowledge (intake physician for insurance companies), others not (golf course attendant). Although T will grant that he needed help at the time of his diagnosis, to this day he doesn't approve of the kind of help he received (relatively coerced but officially "voluntary" commitment, a wide range of ineffective pharmaceutical cocktails, electroshock). Like many people diagnosed as bipolar, he has at various times come off the medications prescribed for him. In part this is due to frustration with their side effects (liver damage, weight gain, hair loss, mental fuzziness, anxiety) and their limited effectiveness. But it's also because he questions whether whatever occurred in his brain and resulted in his difficulty functioning "normally" is chronic, and in any case, he's not convinced that "normal" functioning is always to be preferred. In this judgment, he is echoed by many patients and former patients, both those relatively sanguine about psychiatry (Redfield Jamison) and those who identify with the more radical "psychiatric survivors' network." What he wants is to be respected for his abilities, accommodated for his illness (when it cannot be adequately treated), and treated as capable of making a positive social contribution. When many people hear T's story, they think, "What a sad story; what bad luck!" They understand it through a lens of personal tragedy and misfortune. If they sense unfairness, it is unfairness in an existential or perhaps even divine sense: how could the impersonal world or God treat him so poorly? The idea that some part--perhaps even a large part--of his disadvantage is socially imposed is foreign to them. Most people firmly believe in a medical model of disability, and by extension, a medical model of psychiatric disability. For them, disability is an intrinsic feature of a person, and the best way to help a disabled person is to find a cure. If a cure is not available, the person might be compensated for an inability to work, or pitied and offered charity. But according to my friend and people in the disability rights movement, many of his disadvantages could and indeed should be addressed through social change. If so, then we shouldn't shake our heads in pity over his case; we should wrestle with how to do justice for him. Sociopolitical Conception of Disability Disability scholars often distinguish between an impairment (usually taken to be a non-standard state of the body, such as deafness or paraplegia) and disability (understood to be a lack of fit between the body and the social environment, resulting in disadvantages for the individual who is impaired). With this distinction, the disadvantage of disability is something that calls out for social change. In many cases, people with impairments prefer not to have their bodies altered (as when Deaf individuals do not want cochlear implants), or are simply faced with no known medical treatments for their impairments (e.g., spinal cord injuries result in paralysis that cannot be "fixed"). The disability rights movement has emphasized how such people deserve fair opportunities to work and to engage in a variety of aspects of social life, even if their modes of functioning are non-standard. Indeed, it has celebrated the diversity of ways of living and attempted to help the non-disabled public rethink the concept of disability. One problem with the impairment/disability distinction is that it creates terminological confusion in discussions with people who presume that disability is inherently in the body. One consequence is that the sociopolitical model of disability may appear overstated if it always insists on social change rather than bodily treatments, when many people recognize that some impairments clearly result in bodily disadvantages. …
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