一本关于自闭症谱系障碍的综合性书籍

F. Fernandes, C. L. H. Amato
{"title":"一本关于自闭症谱系障碍的综合性书籍","authors":"F. Fernandes, C. L. H. Amato","doi":"10.1590/S1516-80342012000100020","DOIUrl":null,"url":null,"abstract":"This is an effectively comprehensive book about Autism Spectrum Disorders (ASD), with 20 chapters about different issues such as language (assessment, therapy, non-linguistic behavior and prosody and reading abilities), family (maternal stress, parents’ coping and quality of life), cross-cultural varia -tions (second language, reality in places as Iran and Africa), sleeping disorders, sexual abuse, creativity, employment issues, moral issues, criminal legislation, financial aspects, experimental research, sensorial motor development, education and transition to adulthood.Each one of these issues is discussed by a researcher of the field that has expertise in the specific area but that is not necessarily involved in a reference research center. Therefo-re there are American, French, Italian, Australian, Belgian, Spanish, Israeli and Brazilian authors; but there are also Chinese, Turkish, Japanese, Irish, Nigerian, Polish, Iranian and Croatian authors.This configuration allows not only a comprehensive perspective about several aspects related to the ASD but also the identification of common problems that may have shared solutions.A study conducted in Europe, for example, suggests se-veral strategies to help parents increase their participation in the intervention processes directed towards their children that can be applied with Brazilian families with the need of very few adaptations.The assessment of issues regarding the quality of life and health of parents of ASD children in Croatia led the authors to conclude about the need of a program to monitor ASD parents’ health. This aspect has been neglected in most developed coun -tries and certainly deserves consideration also in our reality.However, what is really innovative in this book is its characteristic of Open Access. It means that any person may obtain the whole book from the publisher’s website (www.intechopen.com) without any cost. There are many titles in this website about this field and many others. The publishing process is very careful, all material undergoes a scientific review and several revisions and the acquisition of a printed version is possible. But what is meaningful is the possibility available to all, students and professionals, to easily access the scientific development, with no cost.It may transform the responsibility for the professional practice, especially in situations such as the Brazilian reality. The issue of geographic distance between reference centers has one more barrier breeched. If some years ago the open access to journals through systems such as SciELO eliminated this problem in what refer to scientific papers, it now is true also in what refer to books, the choice of a great number of speech-language pathologists and audiologists (SLP-A) to obtain information about scientific recent developments.In what refer to the AS this process is fundamental. The increase in the number of researches in the field has been enormous in the last decades. The clearer knowledge about the characteristics of the disorders included in the spectrum has produced important changes in its prevalence, placing the ASD as a public health issue that demands objective approaches. The role of the SLP-A in the team that deals with these issues in unarguable, but it can only be assumed with some consis-tency along with the responsibility with continuous scientific actualization. The regions where people has less access to specialized services and research centers are exactly the ones where the responsibility with this role is more important be-cause the intervention may have a larger impact in the child’s development and family’s adaptation processes.Technology has facilitated the communication processes that contribute to the continuous education (virtual courses, groups in social networks, discussion web-lists) and to the scientific actualization (with open access to different types of publications) but its use depends on the habit that involves the consideration of the interface between the produced knowledge and its application.","PeriodicalId":21204,"journal":{"name":"Revista Da Sociedade Brasileira De Fonoaudiologia","volume":"17 1","pages":"112-112"},"PeriodicalIF":0.0000,"publicationDate":"2012-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"1","resultStr":"{\"title\":\"Um livro abrangente a respeito dos Distúrbios do Espectro do Autismo\",\"authors\":\"F. Fernandes, C. L. H. Amato\",\"doi\":\"10.1590/S1516-80342012000100020\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"This is an effectively comprehensive book about Autism Spectrum Disorders (ASD), with 20 chapters about different issues such as language (assessment, therapy, non-linguistic behavior and prosody and reading abilities), family (maternal stress, parents’ coping and quality of life), cross-cultural varia -tions (second language, reality in places as Iran and Africa), sleeping disorders, sexual abuse, creativity, employment issues, moral issues, criminal legislation, financial aspects, experimental research, sensorial motor development, education and transition to adulthood.Each one of these issues is discussed by a researcher of the field that has expertise in the specific area but that is not necessarily involved in a reference research center. Therefo-re there are American, French, Italian, Australian, Belgian, Spanish, Israeli and Brazilian authors; but there are also Chinese, Turkish, Japanese, Irish, Nigerian, Polish, Iranian and Croatian authors.This configuration allows not only a comprehensive perspective about several aspects related to the ASD but also the identification of common problems that may have shared solutions.A study conducted in Europe, for example, suggests se-veral strategies to help parents increase their participation in the intervention processes directed towards their children that can be applied with Brazilian families with the need of very few adaptations.The assessment of issues regarding the quality of life and health of parents of ASD children in Croatia led the authors to conclude about the need of a program to monitor ASD parents’ health. This aspect has been neglected in most developed coun -tries and certainly deserves consideration also in our reality.However, what is really innovative in this book is its characteristic of Open Access. It means that any person may obtain the whole book from the publisher’s website (www.intechopen.com) without any cost. There are many titles in this website about this field and many others. The publishing process is very careful, all material undergoes a scientific review and several revisions and the acquisition of a printed version is possible. But what is meaningful is the possibility available to all, students and professionals, to easily access the scientific development, with no cost.It may transform the responsibility for the professional practice, especially in situations such as the Brazilian reality. The issue of geographic distance between reference centers has one more barrier breeched. If some years ago the open access to journals through systems such as SciELO eliminated this problem in what refer to scientific papers, it now is true also in what refer to books, the choice of a great number of speech-language pathologists and audiologists (SLP-A) to obtain information about scientific recent developments.In what refer to the AS this process is fundamental. The increase in the number of researches in the field has been enormous in the last decades. The clearer knowledge about the characteristics of the disorders included in the spectrum has produced important changes in its prevalence, placing the ASD as a public health issue that demands objective approaches. The role of the SLP-A in the team that deals with these issues in unarguable, but it can only be assumed with some consis-tency along with the responsibility with continuous scientific actualization. The regions where people has less access to specialized services and research centers are exactly the ones where the responsibility with this role is more important be-cause the intervention may have a larger impact in the child’s development and family’s adaptation processes.Technology has facilitated the communication processes that contribute to the continuous education (virtual courses, groups in social networks, discussion web-lists) and to the scientific actualization (with open access to different types of publications) but its use depends on the habit that involves the consideration of the interface between the produced knowledge and its application.\",\"PeriodicalId\":21204,\"journal\":{\"name\":\"Revista Da Sociedade Brasileira De Fonoaudiologia\",\"volume\":\"17 1\",\"pages\":\"112-112\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2012-03-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"1\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Revista Da Sociedade Brasileira De Fonoaudiologia\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1590/S1516-80342012000100020\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Revista Da Sociedade Brasileira De Fonoaudiologia","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1590/S1516-80342012000100020","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 1

摘要

这是一本关于自闭症谱系障碍(ASD)的有效全面的书,有20个章节关于不同的问题,如语言(评估、治疗、非语言行为、韵律和阅读能力)、家庭(母亲的压力、父母的应对和生活质量)、跨文化差异(第二语言、伊朗和非洲等地的现实)、睡眠障碍、性虐待、创造力、就业问题、道德问题、刑事立法、财务方面。实验研究,感觉运动发展,教育和向成年过渡。这些问题中的每一个都由该领域的研究人员讨论,该研究人员在特定领域具有专业知识,但不一定涉及参考研究中心。因此,有美国、法国、意大利、澳大利亚、比利时、西班牙、以色列和巴西的作家;但也有中国、土耳其、日本、爱尔兰、尼日利亚、波兰、伊朗和克罗地亚的作家。这种配置不仅允许对与ASD相关的几个方面有一个全面的视角,而且还可以识别可能有共享解决方案的共同问题。例如,在欧洲进行的一项研究提出了几项战略,以帮助父母更多地参与针对其子女的干预进程,这些战略可以应用于巴西家庭,只需要很少的调整。通过对克罗地亚自闭症儿童父母的生活质量和健康状况的评估,作者得出结论,需要一个项目来监测自闭症儿童父母的健康状况。这方面在大多数发达国家都被忽视了,当然在我们的现实中也值得考虑。然而,这本书真正的创新之处在于它的开放获取特性。这意味着任何人都可以免费从出版商的网站(www.intechopen.com)获得整本书。在这个网站上有很多关于这个领域和其他领域的标题。出版过程非常谨慎,所有材料都经过科学审查和几次修订,并有可能获得印刷版。但真正有意义的是,所有人,包括学生和专业人士,都有可能免费方便地获得科学发展。它可能会改变专业实践的责任,特别是在巴西现实这样的情况下。参考中心之间的地理距离问题又突破了一个障碍。如果说几年前通过SciELO等系统开放获取期刊消除了科学论文中的这一问题,那么现在在参考书籍中也是如此,大量的语言病理学家和听力学家(SLP-A)可以选择获取有关科学最新发展的信息。在所谓的AS中,这个过程是基本的。在过去的几十年里,这一领域的研究数量有了巨大的增长。对谱系中包括的疾病特征的更清晰的认识,使其患病率发生了重大变化,使自闭症谱系障碍成为一个需要客观方法的公共卫生问题。SLP-A在处理这些问题的团队中的作用是无可争议的,但它只能被假定为与持续的科学实现的责任具有一定的一致性。在人们很少有机会获得专门服务和研究中心的地区,这一角色的责任更重要,因为干预可能对儿童的发展和家庭的适应过程产生更大的影响。技术促进了交流过程,有助于继续教育(虚拟课程,社交网络中的小组,讨论网络列表)和科学实现(开放获取不同类型的出版物),但它的使用取决于习惯,包括考虑生产知识与其应用之间的接口。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
查看原文
分享 分享
微信好友 朋友圈 QQ好友 复制链接
本刊更多论文
Um livro abrangente a respeito dos Distúrbios do Espectro do Autismo
This is an effectively comprehensive book about Autism Spectrum Disorders (ASD), with 20 chapters about different issues such as language (assessment, therapy, non-linguistic behavior and prosody and reading abilities), family (maternal stress, parents’ coping and quality of life), cross-cultural varia -tions (second language, reality in places as Iran and Africa), sleeping disorders, sexual abuse, creativity, employment issues, moral issues, criminal legislation, financial aspects, experimental research, sensorial motor development, education and transition to adulthood.Each one of these issues is discussed by a researcher of the field that has expertise in the specific area but that is not necessarily involved in a reference research center. Therefo-re there are American, French, Italian, Australian, Belgian, Spanish, Israeli and Brazilian authors; but there are also Chinese, Turkish, Japanese, Irish, Nigerian, Polish, Iranian and Croatian authors.This configuration allows not only a comprehensive perspective about several aspects related to the ASD but also the identification of common problems that may have shared solutions.A study conducted in Europe, for example, suggests se-veral strategies to help parents increase their participation in the intervention processes directed towards their children that can be applied with Brazilian families with the need of very few adaptations.The assessment of issues regarding the quality of life and health of parents of ASD children in Croatia led the authors to conclude about the need of a program to monitor ASD parents’ health. This aspect has been neglected in most developed coun -tries and certainly deserves consideration also in our reality.However, what is really innovative in this book is its characteristic of Open Access. It means that any person may obtain the whole book from the publisher’s website (www.intechopen.com) without any cost. There are many titles in this website about this field and many others. The publishing process is very careful, all material undergoes a scientific review and several revisions and the acquisition of a printed version is possible. But what is meaningful is the possibility available to all, students and professionals, to easily access the scientific development, with no cost.It may transform the responsibility for the professional practice, especially in situations such as the Brazilian reality. The issue of geographic distance between reference centers has one more barrier breeched. If some years ago the open access to journals through systems such as SciELO eliminated this problem in what refer to scientific papers, it now is true also in what refer to books, the choice of a great number of speech-language pathologists and audiologists (SLP-A) to obtain information about scientific recent developments.In what refer to the AS this process is fundamental. The increase in the number of researches in the field has been enormous in the last decades. The clearer knowledge about the characteristics of the disorders included in the spectrum has produced important changes in its prevalence, placing the ASD as a public health issue that demands objective approaches. The role of the SLP-A in the team that deals with these issues in unarguable, but it can only be assumed with some consis-tency along with the responsibility with continuous scientific actualization. The regions where people has less access to specialized services and research centers are exactly the ones where the responsibility with this role is more important be-cause the intervention may have a larger impact in the child’s development and family’s adaptation processes.Technology has facilitated the communication processes that contribute to the continuous education (virtual courses, groups in social networks, discussion web-lists) and to the scientific actualization (with open access to different types of publications) but its use depends on the habit that involves the consideration of the interface between the produced knowledge and its application.
求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
自引率
0.00%
发文量
0
审稿时长
36 weeks
期刊最新文献
Comparação dos estímulos clique e CE-chirp® no registro do Potencial Evocado Auditivo de Tronco Encefálico Tipos de erros de fala em crianças com transtorno fonológico em função do histórico de otite média Ocorrência de dessonorização no desvio fonológico: relação com fonemas mais acometidos, gravidade do desvio e idade Grau de quantidade de fala e intensidade vocal de teleoperadores em ambiente laboral e extralaboral A efetividade dos testes complementares no acompanhamento da intervenção terapêutica no transtorno fonológico
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
已复制链接
已复制链接
快去分享给好友吧!
我知道了
×
扫码分享
扫码分享
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1