北方邦马图拉市智障儿童父母的生活质量和家庭负担

Pradeep Kumar, Jiterdra Yadav, R. Panday, S. Rathee, A. Sharma, Surbhi Gupta
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引用次数: 1

摘要

背景:一个孩子出生在一个家庭通常是喜悦的,被认为是一种祝福,但当孩子是智力残疾,那么祝福显然是混合的。接受智障儿童对父母和家庭来说变得很困难,尤其是在现代社会非常重视能力和成就的情况下。父母在知道自己的孩子有智力障碍后,会表现出一系列的反应——震惊、否认、内疚、悲伤、拒绝和接受。本研究以智障儿童父母的生活质量和家庭负担为基础,是一项基于性别的研究。目的:探讨智力残疾儿童父母生活质量和家庭负担的性别差异。方法和材料:这是在北方邦马图拉进行的横断面研究。样本采用有目的抽样技术。正在制定半结构化访谈计划以评估人口统计资料,对患有ID儿童的父母实施生活质量量表和家庭负担量表。结果与结论:本研究发现,与智障儿童的父亲相比,智障儿童的母亲生活质量较差,负担水平较高。
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Quality of Life and Family Burden between Parents of Children with Intellectual Disability, Mathura,Uttar Pradesh.(UP)
Background: A child born into family is usually received with joy and considered a blessing but when the child is intellectual disability then blessing is clearly mixed. Acceptance of child with intellectual disability becomes difficult to parents along with family particularly when competence and achievement are very much valued in modern world. A parent shows a series of reactions shock, denial, guilt, sorrow, rejection and acceptance after knowing that their child is intellectual disabled. This study is based on quality of life and family burden among parents of children with intellectual disability and it is gender-based study. Aim: To study the gender differences in term of Quality of Life and Family Burden among parents of children with intellectual disability. Methods and Material: It is cross sectional study conducted at Mathura, Uttar Pradesh. Samples were recruited through purposive sampling technique. Semistructured interview schedule was developing to assess the demographics profile, Quality of life scales and family burden schedule were administered on parents of children with ID. Results and Conclusion: Finding of this study showed that mother of children with intellectual disability have poor Quality of Life and high level of burden in comparison to the father of children with intellectual disability.
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