{"title":"人类群体遗传学的叙述:冰岛和俄罗斯的两个案例。","authors":"Vadim Chaly, Olga V Popova","doi":"10.1177/09636625231203481","DOIUrl":null,"url":null,"abstract":"<p><p>Using the two cases of the Icelandic Health Sector Database and Russian initiatives in biobanking, the article criticizes the view of narratives and imaginaries as a sufficient and unproblematic means of shaping public understanding of genetics and justifying population-wide projects. Narrative representations of national biobanking engage particular imaginaries that are not bound by the universal normative framework of human rights, promote affective thinking, distract the public from recognizing and discussing tangible ethical and socioeconomic issues, and harm trust in science and technology. In the Icelandic case, the presentation of the project in association with national imaginaries concealed its market identity and could lead to the commodification of biodata. In the Russian case, framing in terms of \"genetic sovereignty\" and \"civilizational code\" offers pretexts for state securitization. Adherence to normative framework of human rights and public discussion of genetics in an argumentative and factual mode can counter these trends.</p>","PeriodicalId":48094,"journal":{"name":"Public Understanding of Science","volume":" ","pages":"370-386"},"PeriodicalIF":3.5000,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Narrativization of human population genetics: Two cases in Iceland and Russia.\",\"authors\":\"Vadim Chaly, Olga V Popova\",\"doi\":\"10.1177/09636625231203481\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>Using the two cases of the Icelandic Health Sector Database and Russian initiatives in biobanking, the article criticizes the view of narratives and imaginaries as a sufficient and unproblematic means of shaping public understanding of genetics and justifying population-wide projects. Narrative representations of national biobanking engage particular imaginaries that are not bound by the universal normative framework of human rights, promote affective thinking, distract the public from recognizing and discussing tangible ethical and socioeconomic issues, and harm trust in science and technology. In the Icelandic case, the presentation of the project in association with national imaginaries concealed its market identity and could lead to the commodification of biodata. In the Russian case, framing in terms of \\\"genetic sovereignty\\\" and \\\"civilizational code\\\" offers pretexts for state securitization. Adherence to normative framework of human rights and public discussion of genetics in an argumentative and factual mode can counter these trends.</p>\",\"PeriodicalId\":48094,\"journal\":{\"name\":\"Public Understanding of Science\",\"volume\":\" \",\"pages\":\"370-386\"},\"PeriodicalIF\":3.5000,\"publicationDate\":\"2024-04-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Public Understanding of Science\",\"FirstCategoryId\":\"98\",\"ListUrlMain\":\"https://doi.org/10.1177/09636625231203481\",\"RegionNum\":2,\"RegionCategory\":\"文学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2023/11/8 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q1\",\"JCRName\":\"COMMUNICATION\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Public Understanding of Science","FirstCategoryId":"98","ListUrlMain":"https://doi.org/10.1177/09636625231203481","RegionNum":2,"RegionCategory":"文学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2023/11/8 0:00:00","PubModel":"Epub","JCR":"Q1","JCRName":"COMMUNICATION","Score":null,"Total":0}
Narrativization of human population genetics: Two cases in Iceland and Russia.
Using the two cases of the Icelandic Health Sector Database and Russian initiatives in biobanking, the article criticizes the view of narratives and imaginaries as a sufficient and unproblematic means of shaping public understanding of genetics and justifying population-wide projects. Narrative representations of national biobanking engage particular imaginaries that are not bound by the universal normative framework of human rights, promote affective thinking, distract the public from recognizing and discussing tangible ethical and socioeconomic issues, and harm trust in science and technology. In the Icelandic case, the presentation of the project in association with national imaginaries concealed its market identity and could lead to the commodification of biodata. In the Russian case, framing in terms of "genetic sovereignty" and "civilizational code" offers pretexts for state securitization. Adherence to normative framework of human rights and public discussion of genetics in an argumentative and factual mode can counter these trends.
期刊介绍:
Public Understanding of Science is a fully peer reviewed international journal covering all aspects of the inter-relationships between science (including technology and medicine) and the public. Public Understanding of Science is the only journal to cover all aspects of the inter-relationships between science (including technology and medicine) and the public. Topics Covered Include... ·surveys of public understanding and attitudes towards science and technology ·perceptions of science ·popular representations of science ·scientific and para-scientific belief systems ·science in schools