癌症患者教育材料的全球设计策略:海地试点案例研究

Carlos Cardenas, Lauren E. Schleimer, Maia Olsen, Veronica Manzo, Rachael Guay, Taerim Kim, Peter-Gens Desameau, Ruth Damuse, Lawrence N. Shulman, Franklin W. Huang, Ami S. Bhatt
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引用次数: 5

摘要

马拉维伊丽莎白女王中心医院的癌症护理人员确定需要为他们的低识字率病人提供教育材料。全球肿瘤学(Global Oncology)是一家致力于在资源有限的环境下改善癌症护理、研究和教育的非营利组织,它与THE MEME合作开发了癌症患者教育材料(PEMs)。该项目的目标是在资源有限的情况下,创建与临床相关且文化上合适的低文化水平的PEMs,以改善临床护理、支持服务和患者依从性。该团队还旨在制定长期可持续发展的产品战略和商业模式。本文从全球健康的角度介绍了这一挑战,以及设计可以产生重大影响的方式。它介绍了为多种文化背景编写《癌症与你》小册子的合作过程,并重点介绍了海地一项试点研究的结果,该研究评估了该设计在简化复杂的医疗信息、促进患者教育和改善沟通方面的功效。
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Global Design Strategy for Cancer Patient Education Materials: Haiti Pilot Case Study

Cancer care providers at Queen Elizabeth Central Hospital in Malawi identified a need for educational materials for their low-literacy patients. Global Oncology, a nonprofit focused on improving cancer care, research, and education in resource-limited settings, partnered with THE MEME to develop cancer patient educational materials (PEMs). The goal of the project was to create clinically relevant and culturally appropriate low-literacy PEMs to improve clinical care, support services, and patient adherence in resource-limited settings. The team also aimed to develop a product strategy and business model for long-term sustainability. The article introduces the challenge from a global health perspective and the ways design can have a significant impact. It presents the collaborative process of developing the “Cancer and You” booklet for multiple cultural contexts and focuses on the results of a pilot study in Haiti evaluating the efficacy of the design in simplifying complex medical information, facilitating patient education, and improving communication.

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