CLIMB®项目后癌症父母的情绪变化和经历:一项试点研究

Yuko Akagawa, H. Andoh, Mai Narita, Kaori Osawa, S. Heiney, Sachiko Makabe
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摘要

当抚养孩子的父母患上癌症时,他/她将面临继续扮演父母角色的困难。为了让父母能够安心地面对自己的癌症治疗,支持他们减少与父母角色相关的挑战,促进与孩子的沟通是至关重要的。本初步研究旨在为癌症父母实施儿童生活包括勇敢时刻(CLIMB®)计划,并确定生活质量(QoL)、心理焦虑和父母的情绪变化/经历。本研究分析了参加CLIMB®测试前后患者生活质量和心理焦虑评分的变化。通过半结构化访谈,对父母感知到的变化进行定性和描述性的检查。共有五位参与者(四位母亲和一位父亲)。平均年龄48±7.0岁。生活质量由63.4±4.1(63.0)分提高到69.2±5.1(70.0)分。在分量表上,情绪变化/体验从16.6±3.1(16.0)分显著增加到20.4±3.2(20.0)分(p = 0.04)。使用状态-特质焦虑量表(STAI)测量的心理焦虑在状态焦虑和特质焦虑中均有所下降(p = 0.04)。参加CLIMB®活动后,家长们认可了自己的努力,并减轻了对孩子的负罪感。在亲子关系中,父母和孩子能够一起面对癌症,互相交流自己的感受。继续干预以促进父母和孩子之间的沟通是至关重要的。
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Emotional Changes and Experiences of Parents with Cancer Following CLIMB® Program: A Pilot Study
When a parent raising a child develops cancer, he/she faces difficulties in continuing the parental role. For parents to face their own cancer treatment with peace of mind, supporting them in reducing challenges related to the parental role and promoting communication with their children is essential. This pilot study was designed to implement the Children’s Lives Include Moments of Bravery (CLIMB®) program for cancer parents and determine quality of life (QoL), psychological anxiety, and parents’ emotional changes/experiences. This study analyzed the changes in scores for QoL and psychological anxiety before and after participation in CLIMB®. The changes perceived by the parents were examined qualitatively and descriptively through semi-structured interviews. There were five participants (four mothers and one father). Their mean age was 48 ± 7.0 years. QoL increased from 63.4 ± 4.1 (63.0) to 69.2 ± 5.1 (70.0) points. On the subscale, emotional changes/experiences increased significantly from 16.6 ± 3.1 (16.0) to 20.4 ± 3.2 (20.0) points (p = 0.04). Psychological anxiety, measured using the State-Trait Anxiety Inventory (STAI), decreased for both state and trait anxiety (p = 0.04). After participating in CLIMB®, parents recognized their own hard work and felt less guilty about their children. In the parent-child relationship, parents and children were able to face cancer together and communicate their feelings to each other. It is essential to continue to intervene to promote communication between parents and children.
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