唐氏综合症儿童家长对土耳其早期干预服务的看法

IF 1.1 4区 医学 Q3 EDUCATION, SPECIAL Infants & Young Children Pub Date : 2022-04-01 DOI:10.1097/IYC.0000000000000212
G. Tomris, S. Çelik, I. Diken, Yusuf Akemoğlu
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引用次数: 1

摘要

了解接受早期干预的幼儿家长的看法是很重要的。家长对早期干预服务的提供有宝贵的意见,可以提供关键的反馈,帮助专业人员修改他们现有的早期干预提供模式。在目前的研究中,我们调查了土耳其唐氏综合症儿童的父母对早期干预服务的看法。具体而言,我们旨在了解家长对医疗和教育评估和诊断过程的看法。本研究采用横断面研究设计,这是调查设计方法之一。通过一项在线调查,共收集了893名家长的数据。结果表明,患有唐氏综合症的儿童在出生后平均2.3个月内被诊断出来,但开始接受教育的平均年龄是10.5个月。在他们的孩子被诊断出来并获得教育服务之前,大多数家长都认为这是一个相当缓慢的过程,需要他们自己的手段和努力。此外,家长报告说,在诊断过程中,使用的材料、设备、玩具和设置的类型不相关,提供的时间不足。此外,大多数家长报告说,向他们和他们的孩子提供的教育服务不够充分,而且在一个系统内没有提供早期干预服务。因此,尽管土耳其的法律法规与发达国家的法律法规平行,该领域的研究也日益蓬勃发展,但缺乏早期干预系统模式、专家和机构之间的合作不足、该领域专家人员短缺等问题仍然存在,有待解决。
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Views of Parents of Children With Down Syndrome on Early Intervention Services in Turkey
Perceptions of parents of young children receiving early intervention are important to understand. Parents have valuable opinions on the delivery of early interventions services and can provide critical feedback that can help professionals revise their existing early intervention delivery modalities. In the current study, we examined the perceptions of parents of young children with Down syndrome on early intervention services in Turkey. Specifically, we aimed to understand the parents' views on medical and educational evaluation and diagnosis processes. The study was conducted using a cross-sectional research design, which is one of the survey design methods. Data were collected from a total of 893 parents via an online survey. The results demonstrated that children with Down syndrome were diagnosed within an average of 2.3 months from birth, but the average age for starting education was 10.5 months. The majority of the parents evaluated the process until their children were diagnosed and accessed education services as a rather slow process that proceeded with their own means and efforts. Furthermore, the parents reported that during the diagnosis processes the type of materials, equipment, toys, and settings used were not relevant and time provided was insufficient. Moreover, the majority of the parents reported that the education services presented to them and their children were not sufficient and early intervention services were not provided within a system. As a result, although the legal regulations in Turkey are parallel to those in developed countries and studies in the field have been increasingly gaining momentum, issues such as the absence of an early intervention system model, insufficient cooperation between experts and institutions, and the shortage of expert staff in the field are still present and awaiting a solution.
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来源期刊
CiteScore
1.90
自引率
9.10%
发文量
24
期刊介绍: Infants & Young Children is an interdisciplinary journal focusing on vulnerable children from birth to five years of age and their families. Of special interest are articles involving innovative interventions, summaries of important research developments and their implications for practice, updates for high priority topic areas, balanced presentations of controversial issues, and articles that address issues involving policy, professional training, new conceptual models, and related matters. Although data are often presented primarily to illustrate points, some types of data-based articles may be appropriate.
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